My son with ASD has been on a GFCF diet since he was 3. he is 6.5 now. While he had obvious signs of food sensitivities that have cleared up/ lessened (or return when he eats g or c), such as eczema, dark under eye circles, bowel issues, behavioral issues, etc on the diet, they still come and go, and I know for a fact his dad (ex) does not follow the diet 100%, I still feel like something is going on with him that may not be dairy or gluten related. His IBI therapist has a grandson on the spectrum who originally went on the gfcf diet but like my son it helped a little but not a lot. He went to a DAN Dr. in our area and was screened for food sensitivities (outside of what normal lab work will do), and it came back that he was sensitive to soy and pea flour, not so much dairy or gluten. Soy and pea flour are in a ton of gf/cf products. Now that they figured that out, his digestive symptoms have nearly vanished! The down side to this option of testing is it cost them around $500 or so, and medicaid won't cover it. While I know removal/reintroduction processes are the cheaper way to go, It's kind of arduous and It's hard to get really specific with certain ingredients. There is a big part of me that would like to just KNOW (if it's possible) what foods my child is sensitive to- because if, say, gluten isn't actually an issue but soy or egg or something were, it would be a relief to both of us. His digestive issues have been terrible lately. I feel so bad for him, his tummy must hurt all the time. We had finally gotten him fully potty trained and it took a turn for the worst when his intestinal problems flared up. He is going to be tested for parasites/bacteria and celiacs (hit or miss, just the blood test), but I have a hunch that it isn't going to be one of those and it's food related.
I am just wondering if any other moms have had that sort of sensitivity screening done, and if you recommend it, or if you have done the removal process and how you feel about that... I'm just concerned that it has been getting really bad lately, and even though his dad has pretty much admitted to slipping up on his diet, he also implied he has been slipping up on it for a long, long time- another story- so why it is getting so bad right now is making me worried.
Thank you for any input.