ok, first off, let me say I feel like a horrible mother right now. My 5 year old son has high-functioning autism. We had him on a gfcfsf diet for about 10 months and it was AMAZING how much it helped him. Repetitive behaviors almost gone, obsessions a minimum and he was very clear thinking and was speaking so much better.
A few weeks ago we got we were having some real difficulties financially. I feel horrible about this but I could not afford to keep him on his diet. So we prayed and hoped for the best and gave him what we could afford; which included gluten, casein, and soy. Sure enough his symptoms returned dramatically. That was a few weeks ago, he has been back on the diet for 3 weeks now and while there has been a small change for the better. He is still not back to where he was. I know it has only been 3 weeks but I am afraid that we caused permanent damage and he will never go back to how he was. Am I paranoid, or is it possible I am not going to get him back? I could just kick myself for doing this, but the kid had to eat! thoughts? experience?
2 Perfect births!. .
3 babes in heaven , 3 boys on earth. Planning UC #3 !!! Jesus is my Lord
We have fallen "off the wagon" before. It takes about 4 - 6 weeks for us to notice a difference when we are back on GF (he is fine with dairy). I highly doubt there will be permanent effects, but it does take a while to get it all out of their system. Don't feel guilty - we spend a fortune on food b/c of his diet and it can be tough when money is tight.
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Mama to DD14 and DS12, both born on MDC.
Don't feel guilty at all. Think of this experience as validation of the value of this diet for your kid! You might even want to document the process - the specific behavior changes you saw off the diet, and how the improvements return. This could be useful if you ever want to try tweaking his diet in the future, or even be useful information for some study happening somewhere, sometime.
Rhu - mother,grandmother,daughter,sister,friend-foster,adoptive,and biological;not necessarily in that order. Some of it's magic, some of it's tragic, but I had a good life all the way (Jimmy Buffet)
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