High-functioning Autism and gfcf diet question. - Mothering Forums

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#1 of 4 Old 11-08-2012, 01:40 PM - Thread Starter
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ok, first off, let me say I feel like a horrible mother right now. My 5 year old son has high-functioning autism. We had him on a gfcfsf diet for about 10 months and it was AMAZING how much it helped him. Repetitive behaviors almost gone, obsessions a minimum and he was very clear thinking and was speaking so much better.

A few weeks ago we got we were having some real difficulties financially. I feel horrible about this but I could not afford to keep him on his diet.  So we prayed and hoped for the best and gave him what we could afford; which included gluten, casein, and soy. Sure enough his symptoms returned dramatically. That was a few weeks ago, he has been back on the diet for 3 weeks now and while there has been a small change for the better. He is still not back to where he was. I know it has only been 3 weeks but I am afraid that we caused permanent damage and he will never go back to how he was. Am I paranoid, or is it possible I am not going to get him back? I could just kick myself for doing this, but the kid had to eat!  thoughts? experience?

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#2 of 4 Old 11-09-2012, 06:45 AM
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I haven't ever put gluten, casein, or soy back in my sons diet, but I have put other problematic things in. It has always taken a while for things to clear. I'm sure you know this but gluten can take months to fully clear, so you may be waiting a while. I do really believe you will get back to where you were. Give it time and give yourself a break. You did what you needed to do. There are some good websites on doing gfcfsf on a budget. We are now doing the gaps diet, and while I had heard it was expensive, I'm finding it is actually less expensive that gfcfsf which we had done too for three years because none of the expensive store bought gfcf snacks are allowed.
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#3 of 4 Old 11-12-2012, 08:16 AM
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We have fallen "off the wagon" before. It takes about 4 - 6 weeks for us to notice a difference when we are back on GF (he is fine with dairy). I highly doubt there will be permanent effects, but it does take a while to get it all out of their system. Don't feel guilty - we spend a fortune on food b/c of his diet and it can be tough when money is tight. 

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#4 of 4 Old 11-15-2012, 09:33 PM
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Don't feel guilty at all. Think of this experience as validation of the value of this diet for your kid! You might even want to document the process - the specific behavior changes you saw off the diet, and how the improvements return. This could be useful if you ever want to try tweaking his diet in the future, or even be useful information for some study happening somewhere, sometime.

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