My son was recently diagonsed with eosinophilic esophagitis. Before the he was diagnosed we heard it was a phase, he will grow out of it, and he is a picky eater. Finally one doctor listened. I think it is when I finally looked at the Dr and said he does not eat a thing. I was so relived that finally got some answers. I also really wanted to find a support group due to the fact that some of my family act like this is just food allergies and he will grow out of it. I snapped on one family member and informed them what it is. I think some people would have a better chance of explaining it to the wall and getting more reaction. He was diagnosed only a couple of months ago and now we are doing the elimation of the diet. He is allergic to soy, milk, eggs, and nuts. My worries are that I need to go to work and due to this disease does not show any effects physically how am I suppose to trust someone to know how important that it for his diet when some family members does not even get it.
You can also post under the allergies forum:
You could also search past threads if you want to find other members facing the same issue.
Kim mama to DS 12/2005, Pepper kitty , and 10/03, 1/05;
My son's allergist is suspecting the same diagnosis. Right now, we are waiting to document more symptoms. I don't want to subject ds to an endoscopy unless I'm convinced there's a strong possibility for EE.
My son makes picky eaters look good.
Mama, Painter, Special Needs Coordinator