I am the mother of an 8 year old girl who has had encopresis(fecal soiling) for 1.5 years now. About six months after the encopresis started she developed bladder problems too. She was completely potty trained before that. We have seen so many doctors I have lost count. We finally decided to do an MRI last month, at the urging of her pediatric gastroenterologist. The results were "inconclusive". We are waiting for an appointment with a neurosurgeon in January to interpret the MRI results. My understanding is that she does not have full blown tethered cord, but may have some tethered cord-like symptoms (tight filium??). It's all very convoluted and confusing. Noone seems to know what is wrong with her, but the doctors seem to think that the neurosurgeon might want to do surgery. Was wondering if any mamas out there have had experience with this sort of thing, either tethered cord or something like it.
I am sorry to hear of your little girl's health problems...there is a user by name of katwrangler, IIRC, who might be of help.
meanwhile, you mentioned she was fully potty trained before, did she have any other symptoms like lower back pain, weakness, numbness in the legs or feet? did she potty train easily? did she start walking at an average age or later? answers to these questions might help other members in forming a response.
hope you get some answers soon.
You do not mention whether the underlying problem is suspected spina bifida occulta. If so, you might want to head over to spinabifidaconnection.com, where you will meet extraordinarily helpful and knowleadgable people. Good luck with the diagnostic process!