I had a very similar experience. My baby girl was diagnosed at the 20 week sono, we watched in horror as her cyst continued to grow throughout the pregnancy. We saw 2 neurologists and 2 neurosurgeons, all who seemed to have different opinions. One even suggested we terminate. My baby girl will celebrate her 1st birthday tomorrow and couldn't be more perfect or bring us more joy. She has hit each milestone and everyone agrees now that she most likely will live a completely normal life. The brain is a very mysterious organ, capable of rewiring itself around the faulty areas. That combined with how little is known about DW leaves a huge range of possible outcomes for your little one. To be searching for answers, you obviously care a great deal and will make a wonderful Mom. God bless you both.