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#1 of 2 Old 01-17-2013, 12:13 PM - Thread Starter
 
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my 11yr old son had 16p11.2 microdeletion disorder.I would just like to be able to talk to someone who has a child with the same disorder and share are experiences with.

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#2 of 2 Old 01-17-2013, 01:29 PM
 
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Hi Donna!

 

I too have a son with 16p11.2 deletion :)   Are you part of the study?  If not, I highly recommend looking into it.  It really helped give us a ton of insight into the deletion and what it mean to my son.  They have a conference every year and this year it's in July in Orlando.  Feel free to PM me - I'm also part of some really great FB group for 16p and would be happy to direct you to them if you are interested.

 

Best wishes,


Julie


Walking to raise money for Apraxia - feel free to join me if you are in the area or donate http://www.apraxia-kids.org/southjerseywalk/juliefoxx
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