My son has global dyspraxia (sometimes called developmental dyspraxia). He has low muscle tone, difficulty with motor planning, and feeding issues. I'm trying to work with his school to see if he can get services through them. His intellect and speech are fine, but his handwriting, ability to follow directions, and tendency to fatigue are becoming enormous issues now that he is in school full day. I'm looking for btdt advice.
Yep, Developmental Coordination Delay (diagnosed by PT), Childhood Apraxia of Speech (diagnosed by SLP), and Apraxia (diagnosed by OT). My DS will be 8 in December. He's got low tone, feeding issues (but we don't need a tube), and motor planning issues, especially bilateral motor control which affects riding a bike, swimming, and so on. He couldn't sit up until 9 months old and couldn't walk until 18 months. What kind of help or advice regarding school are you looking for? We have an IEP.
Pattimomma, my son is six and also has low tone and feeding issues. His speech is fine, however. He's been on a 504 until now and I am asking the school to redo his testing to see if an iep would be more appropriate.
Can you share what kinds of things your son's school does to help him? Do you have any materials that have helped his teachers understand him better?
DS1 has it. He's younger than your kid though, not school-age yet. Honestly I'm kind of worried about the same things... I'm probably going to be looking at stuff like APE instead of regular physical education, and just making sure his teachers know about it. He has the tendency to fall down a lot and get hurt.
sageowl, one thing I would do differently if I were to go back a few years is to have whatever plan is in place clearly indicate what kind of support DS would get and how often. I'd also get updated reports from his physicians and whatever private therapists work with him.
My DS's 504 plan states he will get "OT support," but we never clarified what that would look like. DS is almost 1/3 of the way through the school year and the OT hasn't seen him yet. As long as she sees him at some point during the school year the school will technically be following his 504 plan. Meanwhile he is in trouble every day, usually for symptoms of dyspraxia (excessive fidgeting, not completing written work) and constantly complains school is too hard. We did agree verbally that an OT would see him at the first sign of difficulty meeting classroom expectations, but we never put that in writing. In retrospect it is obvious I should have asked for that. Live and learn.
I am working with professionals who used to see DS privately to get all the updated reports and evaluations I wish had gotten last year. I am hoping with these reports I can further justify the need for support, but I would have saved DS a lot of difficulty if I had done that before the school year began.
Thanks for the tip. I'll be sure to bring the arsenal of medical evals to the transition meeting.
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