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#481 of 735 Old 11-28-2007, 07:38 PM
 
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dd HAS BEEN DX WITH ODD , ocd and and possably ADD. she is 10 .
I am a single parent just here to read and hopefully learn from you!
Elizabeth

mama to Alex 20 Briana 16 Cory 10 and Jade 3Tubes tied and regret it
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#482 of 735 Old 12-04-2007, 06:49 PM
 
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..............
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#483 of 735 Old 12-10-2007, 10:45 AM
 
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DAUGHTER: Migraines and is on Topamax 25 mg 2x Daily

SON 8 1/2 yrs old : Pierre Robin Syndrome, Gerd, Pulmonary stenosis, Cleft Palate, Asthma, VPI, Mastoid Air Cell Disease, Seizure History, Medulliary Sponge Kidneys, Conductive Hearing Loss, Adhd, MRSA and Obseructive Apnea & night reflux. On CPAP & medication's.

Daughter: Had Epilepsy
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#484 of 735 Old 12-11-2007, 02:43 AM
 
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My dd is 5 and was diagnosed with PDD-NOS, anxiety, and sensory problems.
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#485 of 735 Old 12-11-2007, 12:09 PM
 
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My son is 5 and has been diagnosed with Aspergers......although I have some doubts. He also has very serious Sensory issues.

Kristen
Mommy to Jacob
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#486 of 735 Old 12-16-2007, 11:45 AM
 
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My daughter age 10, was born with PVL, which is tiny spots of damage in the white matter. However, at birth her apcar scores were very good. We didn't know there was a problem until her speech wasn't coming and she walked late at 18mths. She has sensory integration dysfunction (is a huge sensory seeker and has sensitivty to sudden sound), auditory processing disorder, and verbal apraxia.
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#487 of 735 Old 12-16-2007, 12:17 PM
 
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DS2 was diagnosed with pdd-nos. DS1 has the same diagnosis. Both also have severe anxiety.

Misty, mama to my nurslings William(11/4/02) and Parker(7/13/04).
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#488 of 735 Old 12-16-2007, 04:45 PM
 
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DS has a tentative William's Syndrome dx and is being watched for also having Marfan Syndrome. In addition, I have Asperger's/HFA and Multiple Sclerosis, and my DH has Marfan and adult ADHD. Whew. The Syndrome Family. We also have one utterly syndromeless child, who is marvelous at dealing with us!
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#489 of 735 Old 12-16-2007, 06:11 PM
 
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Originally Posted by Individuation View Post
DS has a tentative William's Syndrome dx and is being watched for also having Marfan Syndrome. In addition, I have Asperger's/HFA and Multiple Sclerosis, and my DH has Marfan and adult ADHD. Whew. The Syndrome Family. We also have one utterly syndromeless child, who is marvelous at dealing with us!

I have Ehlers-Danlos syndrome and was thought to have Marfan until I had tissue testing done at 13.

Misty, mama to my nurslings William(11/4/02) and Parker(7/13/04).
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#490 of 735 Old 12-16-2007, 08:15 PM
 
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I have Ehlers-Danlos syndrome and was thought to have Marfan until I had tissue testing done at 13.
Off to Google....
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#491 of 735 Old 12-16-2007, 08:26 PM
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My 5 yo. ds has a tic disorder. We're not sure at this point if it's transient or chronic.

"Our task is not to see the future, but to enable it."
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#492 of 735 Old 12-17-2007, 03:44 PM
 
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Ds has been diagnosed with autism and DD has a seizure disorder.
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#493 of 735 Old 12-18-2007, 05:28 AM
 
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Our beautiful daughter (13.5 months) has been diagnosed with sensory integration disorder,feeding delays, cerebral palsy and hypotonia.She may possibly have Binder's Syndrome and/or skeletal dysplasia.
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#494 of 735 Old 12-19-2007, 11:12 AM
 
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My DS has PPD-NOS, generalized anxiety disorder, SPD and mild ADHD.

Jen, Mom to DS (8) , DD (5) & Alli
(1-04) (8-09)
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#495 of 735 Old 12-28-2007, 03:07 AM
 
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I realized I haven't updated since June, 2004, and so much has changed since then.

Megan (16) has Tourette's.

Adam (15) has Tourette's, Asperger's, Marfan's, auditory processing disorder, anxiety disorder, learning difficulties.

Emily (8) has Asperger's, Chiari I, tethered cord.

David (6) has Autism, Chiari I (decompressed 2/05), tethered cord (released 8/05).

Sarah (6) has Chiari I (decompressed 7/04 & 2/05), tethered cord (released 2/05).

Isaac (4) has PDD-NOS.

Joshua (21 months) has Spina Bifida (spinal surgeries 3/06 & 4/07), Chiari I (decompressed 4/07 & 10/07), is primarily gtube-fed (since 8/07), wears UCB's to walk, is cathed every 4 hours during the day & is on Prevacid, Zofran, probiotics & Miralax daily.

I had thought I wanted another baby, but since Adam was just diagnosed with Marfan's (his was a random mutation, not directly inherited from dh or me), I'm thinking that I'm done. Having a "normal" child is obviously not in the cards for me.
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#496 of 735 Old 12-28-2007, 11:05 AM
 
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Originally Posted by momto3g3b View Post
I realized I haven't updated since June, 2004, and so much has changed since then.

Megan (16) has Tourette's.

Adam (15) has Tourette's, Asperger's, Marfan's, auditory processing disorder, anxiety disorder, learning difficulties.

Emily (8) has Asperger's, Chiari I, tethered cord.

David (6) has Autism, Chiari I (decompressed 2/05), tethered cord (released 8/05).

Sarah (6) has Chiari I (decompressed 7/04 & 2/05), tethered cord (released 2/05).

Isaac (4) has PDD-NOS.

Joshua (21 months) has Spina Bifida (spinal surgeries 3/06 & 4/07), Chiari I (decompressed 4/07 & 10/07), is primarily gtube-fed (since 8/07), wears UCB's to walk, is cathed every 4 hours during the day & is on Prevacid, Zofran, probiotics & Miralax daily.

I had thought I wanted another baby, but since Adam was just diagnosed with Marfan's (his was a random mutation, not directly inherited from dh or me), I'm thinking that I'm done. Having a "normal" child is obviously not in the cards for me.
Hi!

My daughter also has a Tethered Cord (de-tethered June 2006). As well as Lipomyelomeningocele and Neurogenic bladder.

Welcome!

Anne, Mama to Conner 2/27/04 blahblah.gif  Gabrielle 2/6/06 W/LMC-TCS, Neurogenic Bladder, AFO & KAFO wearer, Neurogenic Bowel energy.gif & Delaney 5/12/08 mischievous.gif &  Beethoven cat.gif& Gizmo cat.gif

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#497 of 735 Old 12-28-2007, 11:19 PM
 
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I know you from the LMC-TCS yahoo group, too.
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#498 of 735 Old 12-28-2007, 11:55 PM
 
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Originally Posted by momto3g3b View Post
I know you from the LMC-TCS yahoo group, too.

Anne, Mama to Conner 2/27/04 blahblah.gif  Gabrielle 2/6/06 W/LMC-TCS, Neurogenic Bladder, AFO & KAFO wearer, Neurogenic Bowel energy.gif & Delaney 5/12/08 mischievous.gif &  Beethoven cat.gif& Gizmo cat.gif

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#499 of 735 Old 12-30-2007, 10:33 PM
 
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I should update...
I have a 4 yr old daughter with Classic Autism and Severe Apraxia.
I also have a 20 month old twin son with a provisional diagnosis of Autism Spectrum Disorder.
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#500 of 735 Old 12-31-2007, 08:29 PM
 
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Sweet Pea is currently diagsnosed as Schizophrenic, and with that comes sensory issues, OCD, and a whole lot of anxiety. She fits on the spectrum as well, were it not for the Schiz. And she's gifted, so teachers don't always believe me when I'm advocating. :

Snapdragon has Aspergers and ODD. Emotionally he is about four years old. But his emotional development seems to be accelerating (relatively speaking) so we'll see.
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#501 of 735 Old 01-06-2008, 10:57 PM
 
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I've been reading through this thread, and it occurs to me that I'll never post anything if I wait til I get to the end!!

We have Cameron, who is 6.5 yrs old. He was diagnosed at nearly age 5 with autism. He is quite high functioning. Main difficulties include relatively mild echolalia that tends to come out mostly at times of stress, SID that has gotten much better over time, attention difficulties, inappropriate social skills (getting better!), stimming behaviors and safety concerns. That all pales when I think he didn't speak at all until age 3!!

Now.. I'm frustrated with his school. I feel like they're pushing meds but I disagree (did a trial and didn't like side effects). They tend to emphasize the negative rather than the positive.. gah. I could go on. And on.

I'm expecting our second child any time now, due around Jan 15th.. I'll make a separate post of that and ask some q's in the appropriate section. Nice to find this thread though!!

Laura, Mom of Cameron 07/01, Evan 01/08, and Madeline 07/09. Busy, but very happy! :
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#502 of 735 Old 01-16-2008, 06:51 AM
 
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Hi, I adopted 3 little boys at birth, the first one is Elijah 8 years old, he is dx with Fetal Alcohol Syndrome, Alcohol Related Neurodevelopmental Disorder, ADHD, ODD, PDD, mental disorders NOS, possible bi polar, Nicholas is 5 years old and he is a little guy who had the cord wrapped around him at birth, he has some speech delays, and is small for his age but a real sweetheart, Joshuah 5(no not twins 3 months apart)is my really tough kid,, Joshuah was born a Crystal Meth baby with Fetal Alcohol Effects, We call Josh the Parrott, the PR man and a the 40 year old midget. He will most of the time repeat what you said, has no fear of strangers, will try and charm you the first time he sees you and never ever stops talking!
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#503 of 735 Old 01-19-2008, 07:46 PM
 
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Hey fellow moms. My third child and only daughter was diagnosed with Kaposiform Hemangioendothelioma at 6 weeks of age. She had dozens of blood transfusions, 20 weeks of chemo, a few months of steroids, and now she's doing really well. Soon we'll be starting with an O.T. to work with her on crawling and stuff since her leg muscles are kind of weak from all the darned prednisone.
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#504 of 735 Old 01-21-2008, 02:49 PM
 
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PDD-NOS and possible seizure disorder for Caleb (3)
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#505 of 735 Old 01-22-2008, 03:28 AM
 
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been reading the SN threads because I count our family in that category now - my almost 8 month old daughter has a malignant brain tumor - Atypical Teratoid/Rhabdoid Tumor... nasty business, this cancer stuff. No cognitive or developmental delays so far - just lots of special needs on account of the surgery, and chemo, and eventually (hopefully!) radiation and recovery...

Mama to my talkaholic DS (Oct 2003) and my climbaholic DD (May 2007).
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#506 of 735 Old 01-27-2008, 07:59 PM
 
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Hi, My daughter is 3 months old today however was born 7 weeks early. She was born with Port wine stain that covers her entire face and part of her scalp on the left side. 3 days ago she started having seizures which landed her in a Children's hospital. She was also diagnosed with Sturge Weber Syndrome. I was wondering if there are any other parents dealing with the same issues. Thank you!
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#507 of 735 Old 01-29-2008, 03:37 AM
 
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My friend Phoebe recommended this to me, and I joined some time back. Just haven't had the chance to introduce myself. Plus, it just seems like a circus when I start explaining all our differences. And all our children. Anyway, here goes:

Josh, nearly 13yo, aspergers, nonverbal learning disorder, sensory integration
Breanna, 10, autism, apraxia, sensory integration
Emily, 9, social anxiety disorder, sensory integration
Rachel, nearly 8yo, and NT
Sam, 6yo, adhd, dermatitus herpetiformus
Dan, 4yo, aspergers, celiac sprue
Avari, 2, and thankful NT, just basically ticked that the world doesn't revolve around her. lol!

Nine kids run.gif and four angel.gif, living and learning all the time

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#508 of 735 Old 02-02-2008, 04:52 AM
 
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I have a 14yo son with childhood onset schizophrenia, he was dx'd at age 6. They are now looking at the 'adult dx' of paranoid schizophrenia. Schizo kids are also on the spectrum, he was originally diagnosed with severe autism at 3. He also has Tourettes, was failure to thrive (he's adopted), OCD, massive sensory issues, communication difficulties etc. as well as attachment disorder. My 17yo, also adopted, has severe attachment disorder, dyslexia, and bipolar. So far my 6yo is neurotypical, and we're due in April with number four.

I saw one other mom with a schizophrenic teen, anyone else? I'm looking for anyone who understands this life!!!!

Talk to you soon
Bellevuemama

GOOD moms let their kids lick the beaters. GREAT moms turn off the mixer first!
Humanist Woman Wife , & Friend Plus Mama to 6 (3 mos, 2, 9, 13, 17, 20)
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#509 of 735 Old 02-08-2008, 05:42 PM
 
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My 17 mo old son (13 mo's corrected) was a micro-preemie. He's doing wonderfully considering where he started. We're dealing mild/moderate delays in his gross and fine motor skills as well as chronic lung disease.
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#510 of 735 Old 02-09-2008, 10:20 AM
 
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Hi everyone,

My 2 1/2 year old son (never vaccinated) was recently diagnosed with classic autism. He is mostly nonverbal, demanding but very cuddly. He definitely has sensory issues. We haven't started any therapy yet, our choices are severely limited here. We have decided to follow a Son-Rise/Floortime type of approach in the home, but not nearly as intensive. I bought the Bounce DVD's I saw recommended here while lurking. We bought 35 different books we are plowing our way through. We bought the PEC's system, Boardmaker, Greenspan Floortime training dvd's, a series of ABA dvd's (though we decided against that method), and a bunch of other stuff. I am looking for speech therapist, and I would love a music therapist, but I don't think it's likely here. I found a Cranial Sacrial therapist but haven't taken my son there yet. Is anyone else living in latin america with a child on the spectum?
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