Hypotonia + Cognitive delays? - Mothering Forums
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#1 of 2 Old 09-09-2004, 09:49 PM - Thread Starter
 
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My dd is 28 mos. We've done some testing for her developmental delays - no walking, talking, pointing, etc. She's had a series of tests to rule out metabolic disorders. They were negative. She has hypotonia (which we knew) but drs. can't tell us anymore. I'm a little frustrated. They'll do an MRI maybe at some point but that would just tell us the cause. I don't know what to think. We are working with ECI and seeing improvements already across the board. Where should I look for more indepth info? Where can I get my hands on some ideas for stimulating her and getting good toys to teach her? I have seen for myself that the only way to help her reach milestones is to work with her and I want more info.

Thanks,
April

Just wanted to add the I see her muscle strength growing as well as her cognitive abilities. She is on the level of about a 10 mos. old. I'm most concerned about her cognitive abilities.
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#2 of 2 Old 09-09-2004, 11:47 PM
 
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Hi April,

Before Elliott became part of my life, I was an early intervention specialist and a lekotek provider. Lekotek is a toy-lending library for special needs children and their families. It's an amazing non-profit program. I learned so much about appropriate toy usage at Lekotek. Anyway, enough qualifiers...

The first thing I would suggest is to call Lekotek and talk to someone who works on the toy resource hotline--800 366 PLAY. (If it's Anna, tell her Paige and Elliott say 'hi'). Tell the resource person about what's going on with dd and they will make excellent suggestions. You can also pm me, and I'll give you my home #--it's so much easier to brainstorm over the phone, than online for me. If you can't afford the call, you can pm me with your # and I'll call you--I have TONS of cell minutes as long as I wait until after 9 .

In thinking about toys for your dd, I tried to think about the goals you've probably set for her (in conjunction with EI). One of the things you want to do is select toys that appear age appropriate, but still cover lower-level skills. Musical toys would be excellent for this--a drum, maracas, bells on a wrist band, a large harmonica--all would deliver the cause/effect action of an infant toy (like a rattle). Assuming dd's hypotonia is general, rather than localized, I imagine that tracking is a goal, so a pull toy would be fun. Brio makes some smaller ones that are lightweight and easy to pull, or if dd can handle it, you could get a larger pull toy, like the Fisher Price school bus. Small wind-up toys also help with tracking. A 3 shape sorter is also a good idea (I'm partial to the 3d shapes in the one from TOMY). In the beginning, you can offer a singular shape, and cover the other two holes to increase dd's success. A ring stack would also be fun and useful--the wooden ones with graduated pegs and smaller rings (Plan toys makes one) offer a variety of cognitive challenges as dd progresses. To work on strength and stability, adapt smaller toys, like FP Little People--super glue magnets to the bottoms of the Little People and play with them on a cookie sheet. You can also adapt her board books by gluing popsicle sticks to each page (or magnets for use with a magnet wand) so that she can use them independently.

There are so many other things to suggest, especially if I know more about the toys you currently have, therapy goals, etc. Pm me and I'll tell you what I know.


And just as an FYI, Toys r Us publishes (in cooperation with Lekotek) a toy guide for kids with special needs. The suggestions in the book are really good, and often they provide ideas about additional suitable products--I think it's a great resource for any kid with special needs. They never seem to have them out, I always have to ask for one at customer service.

Good Luck mama!
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