BTDT! My son started having seizures right after he turned 2. They were weird in that they were very quick, he just fell down and his legs shaked and he never lost consciousness and was fine as soon as they were over. If you didnt know what you were looking for, you would just think he fell down. So it took us a year to catch them on an EEG to confirm that they were seizures. We had 2 regular EEGs, one 24-hr ambulatory EEG and finally a 3-day in patient video monitoring EEG, which caught them!
DS has been on Lamictal for over a year and does fine. Every now and then we have had to increase the dosage (as he grows) but for the most part, his seizures are 100% controlled.
We have had a couple MRIs as well. At least with those, they are knocked out, so the worst part is the IV insertion.
The EEGs can be OK or terrible, depending on how they do it. I would call ahead and find out EXACTLY how they do the EEG. The first one we had, when DS was 2, they literally strapped him down to the bed (hands and legs and everything taped down) and then attached the electrodes and then made us put him to sleep - strapped on the bed like that! Of course, he was a mess and so were we.
Subsequent EEGs (different place, that specializes in children) attached the electrodes while he was awake (required some creativity on my part to keep him still, but 1000 times better than him being strapped down) and then they allowed me to walk him to sleep. After he was asleep, they attached the wires, etc.
The ambulatory was hard, because he had this huge pack that had to be carried around, so I was literally stuck to being 3 feet from him the whole 24 hours. Exhausting!
So anyway, if you want to PM me, feel free. Good luck. I hope they can control her seizures. Its a scary thing to watch and not be able to stop then!