Join Date: Jun 2005
Location: In the lichen and moss.
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|Explain what you mean by not growing. Not gaining weight? Not getting longer/taller? Head not increasing?|
|how big are you and dh? how big were you as babies?
I would back off the solids, esp. lower fat/calorie ones (gruel/cereal) and increase nursings. For solids I'd use high nutrition/high fat when possible. I would do this by not spoon feeding for awhile. Then only the higher nutrition foods.
When did his growth stop? You mention weight loss- how much? in what time period? on the same scale? Is he still growing in height/length/head circumfrence?
|What all metabolic issues has he been screened for?|
All of the above - he was born full term slightly below seven pounds. He was back to birth weight at two weeks, and has been slowing down from there.
His length is 27 inches, weight just above 15 pounds, 18 inch head. For the most part, he is pretty skinny (length for weight) but proportionate. He looks like a cruising, pointing, talking 4 month old. He is minature!
He has been nursed on demand (not that he ever asks for it...he almost never acts hungry), no paci, no bottles, co-sleep, etc. I've been to the best OT in the city, and had our latch evaluated. I make lots of milk, but he doesn't drink very much (but he acts satiated, lots of poopy/wet diapers, I don't feel he is hungry).
Anyways, this is all a conundrum to me, our doc, and everyone we talk to. I don't know where to turn, and I feel like I'm just waiting for some mysterious diagnosis. :
He's had craniosacral, chiro, and seen an OT about his eating issues (or more accurately, his lack of showing hunger and refusal to eat/nurse). I should mention that he is in general fussy and had "colic".
|What was the overnight study?|
|Did they run blood on your baby on Day Four?|
|Did you do the newborn panel? What state are you in? What tests did they run? I mean the PKU, etc metabolic testing panel.|
|Did you take anything at all during or to start labor? I see it was an HBAC?|
|Was there anything strange about his bowel movements?|
|Are his tonsils big?|
|Fatty Acid Oxidation disorders is what I would start with.|
Can you tell me what type of metabolic disorders there are? Any specific syndromes?
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