Don't know where to go, or what to do. - Mothering Forums

Forum Jump: 
Reply
 
Thread Tools
#1 of 73 Old 11-04-2006, 02:14 AM - Thread Starter
 
starparticle's Avatar
 
Join Date: Jun 2005
Location: In the lichen and moss.
Posts: 704
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
:

I'm just feeling so overwhelmed - I'm not even sure if I'm posting in the right place.

DS is 11 months and not growing. We know something is wrong, but we don't know what. It seems like we have had every test under the sun, and I really trust our Ped. We've worked on his nutrition so much I dread mealtimes, and I'm so confused about what to do/not do.

I feel like he is different, but I'm not sure how. He is so alert, busy, and extremely social. He is meeting all his developmental milestones, and exceeding when it comes to talking/signing. He = Joy!

I think he is eating well, but he is losing weight. I can't help but think I'm not doing something right. He is now back at 15 pounds at 11 months, which (as far as I can tell) is very very small. He eats 4 meals a day, usually 1/3 to 1/2 cup of gruel, and finger foods after that. Nurses on demand (usually a few big meals a day, and twice at night). My supply is good.

Can any of you more experienced Mamas point me in the right direction? Where can I go to learn more? What docs should I be calling?

HELP!

(and thank you for listening)
starparticle is offline  
Sponsored Links
Advertisement
 
#2 of 73 Old 11-04-2006, 02:24 AM
 
alegna's Avatar
 
Join Date: Jan 2003
Posts: 42,826
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Explain what you mean by not growing. Not gaining weight? Not getting longer/taller? Head not increasing?



-Angela
alegna is offline  
#3 of 73 Old 11-04-2006, 02:32 AM - Thread Starter
 
starparticle's Avatar
 
Join Date: Jun 2005
Location: In the lichen and moss.
Posts: 704
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Explain what you mean by not growing. Not gaining weight? Not getting longer/taller? Head not increasing?
All of the above - he was born full term slightly below seven pounds. He was back to birth weight at two weeks, and has been slowing down from there.

His length is 27 inches, weight just above 15 pounds, 18 inch head. For the most part, he is pretty skinny (length for weight) but proportionate. He looks like a cruising, pointing, talking 4 month old. He is minature!

He has been nursed on demand (not that he ever asks for it...he almost never acts hungry), no paci, no bottles, co-sleep, etc. I've been to the best OT in the city, and had our latch evaluated. I make lots of milk, but he doesn't drink very much (but he acts satiated, lots of poopy/wet diapers, I don't feel he is hungry).

Anyways, this is all a conundrum to me, our doc, and everyone we talk to. I don't know where to turn, and I feel like I'm just waiting for some mysterious diagnosis. :
starparticle is offline  
#4 of 73 Old 11-04-2006, 02:39 AM
 
alegna's Avatar
 
Join Date: Jan 2003
Posts: 42,826
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Okay- just tossing ideas out here, feel free to disregard:

how big are you and dh? how big were you as babies?

I would back off the solids, esp. lower fat/calorie ones (gruel/cereal) and increase nursings. For solids I'd use high nutrition/high fat when possible. I would do this by not spoon feeding for awhile. Then only the higher nutrition foods.

When did his growth stop? You mention weight loss- how much? in what time period? on the same scale? Is he still growing in height/length/head circumfrence?

-Angela
alegna is offline  
#5 of 73 Old 11-04-2006, 02:48 AM - Thread Starter
 
starparticle's Avatar
 
Join Date: Jun 2005
Location: In the lichen and moss.
Posts: 704
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
thanks for the replies Angela, I appreciate it!

Quote:
how big are you and dh? how big were you as babies?

I would back off the solids, esp. lower fat/calorie ones (gruel/cereal) and increase nursings. For solids I'd use high nutrition/high fat when possible. I would do this by not spoon feeding for awhile. Then only the higher nutrition foods.

When did his growth stop? You mention weight loss- how much? in what time period? on the same scale? Is he still growing in height/length/head circumfrence?
We aren't big. Actually, we are teeny tiny. I'm 4'10'' and DH is 5'5''. BUT we have both of our growth charts, and DS is significantly behind us both in both length and weight. And we were both BF babies, so that isn't the issue.

The gruel he eats is ground millet or quinoa with coconut milk or flax oil. Finger foods are dense fruits, we offer them after spoon feeding since that is the only way to actually get anything in. If he just self fed, it mostly gets flung (which wouldn't be a big deal if he was gaining....).

As for nursing, I offer all the time (as in constantly), he refuses. So he eats solids with us at mealtimes.

The weight loss is in the past month, could be explained by how much more active he has become, but STILL, why won't he grow???
starparticle is offline  
#6 of 73 Old 11-04-2006, 02:50 AM
 
townmouse's Avatar
 
Join Date: May 2004
Location: home with 4 sons and a husband
Posts: 874
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I looked at your blog, your baby is beautiful!

Does he have a very round potbelly? It seems he may have dark circles under his eyes.

My boys all have celiac disease, and my youngest stopped growing and started losing weight before he got diagnosed. (he's 27 months now and has totally caught up)

Did you do any bloodwork to screen for celiac?
townmouse is offline  
#7 of 73 Old 11-04-2006, 02:52 AM
 
alegna's Avatar
 
Join Date: Jan 2003
Posts: 42,826
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Well, he could just be small. It's very normal for growth in breastfed babies to slow in the second half of the first year. My dd grew like crazy, then weight gain STOPPED. She weighed the same thing from 9mo to 22 mo. Seriously. Didn't gain a pound that whole time (I don't have it in oz, we don't do WBV, just weighed her on our bathroom scale)

Another thought- is he vaccinated? I know I've read one mom here had a baby stop growing after a round of vaccines.

-Angela
alegna is offline  
#8 of 73 Old 11-04-2006, 02:54 AM
 
alegna's Avatar
 
Join Date: Jan 2003
Posts: 42,826
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Another line of thinking- I noticed in your sig. reference to your dd. Do you know the cause of her death? Have you had a metabolic work up on your ds?

good luck!

-Angela
alegna is offline  
#9 of 73 Old 11-04-2006, 03:05 AM - Thread Starter
 
starparticle's Avatar
 
Join Date: Jun 2005
Location: In the lichen and moss.
Posts: 704
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Wow, you ladies are on it!

Celiacs - we did screening for this. I was also on no wheat/dairy for the first 6 months (didn't help). I also wonder about the dark circles - he gets them alot. Allergies maybe?

Vax - No vax.

Luna - She had a form of dwarfism. This is on my mind. Leif clearly doesn't have her form, or any of the other obvious dysplasias. But we are carriers for her condition (25% reoccurance) and I worry he has a mild version (dwarfisms can be spectrum). We are going to the skeletal team around 18 months (that's when it is easier to diagnosis, if anything).

Keep the ideas coming!! Anyone have experience with food aversions or sensory issues that keep babes from eating?
starparticle is offline  
#10 of 73 Old 11-04-2006, 03:12 AM
 
townmouse's Avatar
 
Join Date: May 2004
Location: home with 4 sons and a husband
Posts: 874
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I have always heard that dark circles means allergies of some kind.

If you think he just doesn't like to eat, or has some sensory stuff going on there, ask this question on the Special Needs board. Those mamas are experts!

Celiac isn't just wheat, it is also oats, rye, barley, and things made with chemicals that are gluten-derived. If it were me, I'd give a 30 day trial of zero gluten and see if it helps. (he may be too young for accurate screening, according to what I've been taught. I'm not an expert!)

But it sounds like you might have better leads with the dwarfism thing and the reluctance to eat.

Good luck! I'll be watching out for your posts about this, and sending healing thoughts and good wishes for your precious baby Thank you for sharing about Luna
townmouse is offline  
#11 of 73 Old 11-04-2006, 12:31 PM
 
alegna's Avatar
 
Join Date: Jan 2003
Posts: 42,826
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
The dwarfisim spectrum could be in play.
also though-
What all metabolic issues has he been screened for?

-Angela
alegna is offline  
#12 of 73 Old 11-04-2006, 01:02 PM - Thread Starter
 
starparticle's Avatar
 
Join Date: Jun 2005
Location: In the lichen and moss.
Posts: 704
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
What all metabolic issues has he been screened for?
We did milk protein, wheat, thyroid screen, and liver panels. We've also had a swallowing study and chest xrays.

We've been down the silent reflux path to no avail - meds, elevation, etc. Didn't ever make a difference (and my internal mommy monitor doesn't think it is reflux).

He's had craniosacral, chiro, and seen an OT about his eating issues (or more accurately, his lack of showing hunger and refusal to eat/nurse). I should mention that he is in general fussy and had "colic".

He seems too distracted if anything, when I can get him to nurse it is in our bedroom, lights down, laying next to me. Other than that, forget it.

Thanks for all the support, I don't know where to turn.

BTW - I don't expect to get an answer here, I understand that this is a complicated issue with no or many solutions. Really, I'm hoping to hear from some others who have been down this path and to hear about what helped them the most (in terms of docs or support).

:
starparticle is offline  
#13 of 73 Old 11-04-2006, 02:44 PM
 
alegna's Avatar
 
Join Date: Jan 2003
Posts: 42,826
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Okay- then it sounds like they haven't really looked for anything metabolic. It sounds like he is eating well, just not gaining a lot, which is what leads me to think metabolic (I expect tomorrow mamaverdi will find her way here and be SO happy I already suggested this )

Has he had any medications? (even tylenol and the like) Did he have any unusual reactions to them? Does anyone in your family react in an unusual manner to any medications?

good luck!

-Angela
alegna is offline  
#14 of 73 Old 11-04-2006, 07:06 PM
 
Cinder's Avatar
 
Join Date: Feb 2003
Location: Denver, Colorado
Posts: 1,526
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by starparticle View Post
All of the above - he was born full term slightly below seven pounds. He was back to birth weight at two weeks, and has been slowing down from there.

His length is 27 inches, weight just above 15 pounds, 18 inch head. For the most part, he is pretty skinny (length for weight) but proportionate. He looks like a cruising, pointing, talking 4 month old. He is minature!

He has been nursed on demand (not that he ever asks for it...he almost never acts hungry), no paci, no bottles, co-sleep, etc. I've been to the best OT in the city, and had our latch evaluated. I make lots of milk, but he doesn't drink very much (but he acts satiated, lots of poopy/wet diapers, I don't feel he is hungry).

Anyways, this is all a conundrum to me, our doc, and everyone we talk to. I don't know where to turn, and I feel like I'm just waiting for some mysterious diagnosis. :
So he is completely not growing, or just growing slowly?

We did every single test under the son to figure out why my DD is so so so tiny, she was also 15lbs at 1, 17lbs at 2, 21lbs at 3, and now at 4 is 27lbs. Nothing was wrong that we could tell till about 3 years old, then we discovered she had sleep apnea (mostly because between 2 1/2 and 3 she didn't grow at ALL) and humongous tonsils. She had her tonsils out and started growing again, but she's still tiny, about 5th percentile, if that, and this is the first time in her entire life she has been on the growth charts at all. We suspect her to be about 4'9" as an adult.

Jillian wife to Ryan and mommy to Janelle Ashlynn (9/09/2002), Kincaid Chance (3/29/2004), Travis Neil (8/13/2007) and River Anderson (5/02/2009).
Cinder is offline  
#15 of 73 Old 11-04-2006, 07:23 PM
 
Cinder's Avatar
 
Join Date: Feb 2003
Location: Denver, Colorado
Posts: 1,526
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by starparticle View Post

He's had craniosacral, chiro, and seen an OT about his eating issues (or more accurately, his lack of showing hunger and refusal to eat/nurse). I should mention that he is in general fussy and had "colic".
Sorry for two posts, but I've read more and we've been down this path as well, though not with DD, with DS.

DS has a lot of sensory issues and one of them seems to be an inability to feel/recognize pain, so he just never feels hungry. Another one seems to be that he hates the feeling of food in his mouth. So we go days and even weeks at a time of him not eating.

Anyway, the first time he ever stopped eating altogether was 11 months old. We went 2 days of nothing at all, not a single drop of anything crossed his lips when we took him to the ped who found nothing wrong...we kept trying and it got to the point of if he didn't eat/drink something, anything, soon he would need a feeding tube... And that's when I started tricking him. I'd remove his pacifier from his mouth when he got into a deep enough sleep and replace it with my breast. I'd do this at like 7:30 pm (putting him to sleep around 7pm), again at about midning, again at 3am, and again at 6am, if he chose to sleep in I'd also do it again at 9pm. Then I'd do it again around 2 (down for nap around 1). So I was getting breast milk into him.

That eating strike lasted about 5 weeks...he's went on eating strikes about 4 times since then...sadly he weaned at 23 months during another eating strike and tricking him didn't work anymore (I tried many times)... But we have figured out a good way to get calories/fat/nutrition into him without him having to eat if it comes to that. We give him orange juice with calcium, then carnation instant breakfast (cause he refuses totally toddler (from whole foods and definitely what I'd go for first), pediasure, ensure, etc), then kefir, then v8 fusion or Vruit juice, then miso soup(strained with no tofu, seaweed, green onions so it works in a sippy cup)... It works for the most part if he isn't in a complete eating/drinking strike...in that case I make him take small amounts of liquid through a syringe a few times an hour.

It's not foolproof, he lost 9lbs over the summer...but now that he is back in OT full time (school started back up)he has gained back 4 of that and is now 2 1/2 years old and 28lbs....

Jillian wife to Ryan and mommy to Janelle Ashlynn (9/09/2002), Kincaid Chance (3/29/2004), Travis Neil (8/13/2007) and River Anderson (5/02/2009).
Cinder is offline  
#16 of 73 Old 11-05-2006, 02:55 AM
 
mamaverdi's Avatar
 
Join Date: Apr 2005
Location: Texas
Posts: 12,572
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
You need to have these tests run on your baby and quick:

Plasma Amino Acids
Urine Organic Acids (Quantitative)
Acylcarnitine/Carnitine Profile
Creatine Kinase (you need the one where it is an absolute number as well as broken down)
Ammonia
Betahydroxybutyrate
Liver Function Tests
Basic Metabolic Panel

Stop giving the flax oil....Have you noticed a decrease in weight since adding this? Start giving Olive oil and avocados.

I'm going to sub to this thread. Tell me a complete history of your child's health. Everything. Anything weird at all.

I will google.

This sounds just like my sons. Honestly, exactly.

Sleep apnea could be it for sure, especially central apnea....it's not fun to do a sleep study for a little, but possible.
mamaverdi is offline  
#17 of 73 Old 11-05-2006, 02:57 AM
 
alegna's Avatar
 
Join Date: Jan 2003
Posts: 42,826
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
See? I told you she'd find her way here....

-Angela
alegna is offline  
#18 of 73 Old 11-05-2006, 02:59 AM
 
mamaverdi's Avatar
 
Join Date: Apr 2005
Location: Texas
Posts: 12,572
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Want to say this too. Get the results of the tests yourself. Get the xray reads yourself. What does his heart look like? Liver?

Don't trust the "it's within normal" statements because with metabolic disease, slight issues of "normal" are not "normal."


Cinder, did your dd have central events or only obstructive? Did you use a pedi sleep study place that was board certified?
mamaverdi is offline  
#19 of 73 Old 11-05-2006, 02:59 AM
 
mamaverdi's Avatar
 
Join Date: Apr 2005
Location: Texas
Posts: 12,572
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Angela.
mamaverdi is offline  
#20 of 73 Old 11-05-2006, 03:03 AM
 
bri276's Avatar
 
Join Date: Mar 2005
Posts: 5,848
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
have you seen an endocrinologist or geneticist? I think you might be onto something with the dwarfism possibility. at least, it should be investigated knowing your genetics and the issues he's having now.

my dd was on the 25th percentile, going steady until 6 months where she abruptly stopped and her length plateaued. she has a rare chromosome disorder so short stature is to be expected, but growth failure *lengthwise* is not normal. we now have her on growth hormone. I doubt that has anything to do with your son because most GH deficient kids will be disproportionately chubby for their size. but- I do know how it feels to worry when you don't see them growing.

DD1 7/13/05 DD2 9/20/10
bri276 is offline  
#21 of 73 Old 11-05-2006, 03:05 AM
 
mamaverdi's Avatar
 
Join Date: Apr 2005
Location: Texas
Posts: 12,572
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I didn't recommend going to a geneticist .... well because the ones in my area are completely incompetent. Maybe the ones in yours aren't? But bri276 did find a good one I think!

Eta: having a microarray done is not a bad idea.
mamaverdi is offline  
#22 of 73 Old 11-05-2006, 03:07 AM
 
bri276's Avatar
 
Join Date: Mar 2005
Posts: 5,848
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
yeah. but at least sometimes if they know specifically what they're testing for- like dwarfism- it's better than when you're going in and saying "here are symptoms xyz, please test accordingly." b/c most of them just aren't experienced or don't care enough to find the right things to test for. but in this case I think it couldn't hurt because we already know that both parents are carriers.

DD1 7/13/05 DD2 9/20/10
bri276 is offline  
#23 of 73 Old 11-05-2006, 03:08 AM
 
mamaverdi's Avatar
 
Join Date: Apr 2005
Location: Texas
Posts: 12,572
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
True. But they can be so incompetent.
mamaverdi is offline  
#24 of 73 Old 11-05-2006, 03:19 AM - Thread Starter
 
starparticle's Avatar
 
Join Date: Jun 2005
Location: In the lichen and moss.
Posts: 704
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
You women are amazing - I'm just so happy to get these leads. I felt totally lost and frustrated...I feel like time is passing us up, and he is just getting further and further behind.

Mamaverdi - thank you for those panels, I'm printing out and taking to the ped.

Here is a more detailed history:

Birth: quick, uncomplicated waterbirth. poor latch, didn't really know how to suck. we worked with him on his latch, and finally by day 3 he figured it out.

Day Four: He had some apnea episodes where he turned blue, and went limp. We went to the hospital and did an overnight study that revealed nothing. He continued to have some choking/gagging issues while nursing that I chalk up to oversupply issues.

Month three: First nursing strike. We too did the feed while sleeping thing, that was the only way to get him to eat. It lasted a couple of days. He has always refused a bottle. He started being REALLY picky about how/where he would eat.

His growth really slowed down around month three, just seemed to plateau. I think he gained like 1 oz in a month, it was frightening. Since then he is gaining, but very very slowly. A month ago (around month 10) he gained 12 ozs in one week when we went onto a "schedule" of three solid meals a day, but then he stopped gaining after those two weeks. I don't know what is up with that.

Sleep: terrible. Up sometimes every hour crying. He snores. Loudly. It actually keeps me awake. Sometimes he has great nights, but I can't put it together as to why it is so unpredictable. He is often tired & cranky, he just seems subdued. Not all the time, but fairly often.

I'm trying to remember if there is anything else.
starparticle is offline  
#25 of 73 Old 11-05-2006, 03:22 AM - Thread Starter
 
starparticle's Avatar
 
Join Date: Jun 2005
Location: In the lichen and moss.
Posts: 704
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Oh...one more question:

Can you tell me what type of metabolic disorders there are? Any specific syndromes?

BTW - my husbands family has lots of strange thyroid issues, so Ped eliminated that one pretty fast...



thank you thank you thank!
starparticle is offline  
#26 of 73 Old 11-05-2006, 03:26 AM
 
mamaverdi's Avatar
 
Join Date: Apr 2005
Location: Texas
Posts: 12,572
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I could almost without a doubt say your baby has a metabolic issue.

Look at DAY FOUR.

Okay, breathe. (This is a reminder to me and to you.)

Did they run blood on your baby on Day Four?

Did you do the newborn panel? What state are you in? What tests did they run? I mean the PKU, etc metabolic testing panel.

Did you take anything at all during or to start labor? I see it was an HBAC?

Was there anything strange about his bowel movements?

Are his tonsils big?

Fatty Acid Oxidation disorders is what I would start with.

From there I might consider others...

You want a cholesterol panel too.
mamaverdi is offline  
#27 of 73 Old 11-05-2006, 03:27 AM
 
mamaverdi's Avatar
 
Join Date: Apr 2005
Location: Texas
Posts: 12,572
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
What was the overnight study?
mamaverdi is offline  
#28 of 73 Old 11-05-2006, 03:33 AM
 
mamaverdi's Avatar
 
Join Date: Apr 2005
Location: Texas
Posts: 12,572
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Here are two screening panels:

http://www.pediatrix.com/body_screening.cfm?id=1681
http://www.baylorhealth.com/medicals...ing/packet.htm

Call the Baylor number and ask if they screen for CPTII which is not on the pediatrix test.

Also, what are the thyroid issues in your husband's family?

What were the liver panel results from your baby?

What is the gene that is "carried" affected in your child?

Most children with metabolic disease have a metabolic crisis around the time they are born.
mamaverdi is offline  
#29 of 73 Old 11-05-2006, 03:36 AM - Thread Starter
 
starparticle's Avatar
 
Join Date: Jun 2005
Location: In the lichen and moss.
Posts: 704
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
What was the overnight study?
Basically just hooking him up to a monitor to watch respiration + heartrate to track any more stop breathing episodes.


Quote:
Did they run blood on your baby on Day Four?
Nope.

Quote:
Did you do the newborn panel? What state are you in? What tests did they run? I mean the PKU, etc metabolic testing panel.
We did the PKU, that's it. We are in Wa, so it is required.

Quote:
Did you take anything at all during or to start labor? I see it was an HBAC?
Nothing.

Quote:
Was there anything strange about his bowel movements?
Never curdy, always greenish. Not greasy or stinky (or at least, abnormally stinky!)

Quote:
Are his tonsils big?
I've never noticed, but he DOES have a chronic cough.

Quote:
Fatty Acid Oxidation disorders is what I would start with.
We are on it - thank you!

And I forgot about Angela's question about medications: I tend to react strangly to opiates, antihistamines, they amp me up. And uppers calm me down...
starparticle is offline  
#30 of 73 Old 11-05-2006, 03:38 AM
 
mamaverdi's Avatar
 
Join Date: Apr 2005
Location: Texas
Posts: 12,572
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by starparticle View Post
Can you tell me what type of metabolic disorders there are? Any specific syndromes?
Well, there are over 1500 identified metabolic diseases. They are divided up in to 6 or 7 basic groups....so ...lemme see if I can find a good link.

I think you are look at one that includes apnea, FTT, and fasting intolerance.

Has he ever appeared to have blood in his diaper?

BTW, you can PM me anything you don't want to post on the board.
mamaverdi is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off