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DS has been recently dx with mild cp - high tone in legs and spasticity in arms. He is a little over 10 months old, can only sit up when put in that position, but he's getting stronger at it, falls over less and sometimes catches himself. does the commando creep thing, but not crawling.
First OT to evaluate him said he probably burns alot with all his movement. great, thanks. :
anyway ... with a child so young, who appears to meet milestones, but you have to adjust for the preemie thing, how do you know what's "normal" and what to expect. I go from the extreme of thinking everything is fine and he'll be fine by age two and these people are just overly concerned or expecting too much or my husband is doing his "worry thing" -- then I think, what if he does need braces to walk, and what if we have to revamp the house, and what if he needs a special school, what if his delays are verbal too and we can't tell cause he's not talking yet. The whole eval process is unnerving because you never know what they can't do until they don't do it ... and you wait for the next shoe to drop all the time.
I am trying to find a local support group, but am kind of stuck as to how to do that. anyone have any links for cp kids?? I want to take him to gymboree and get out of the house more, but he's not that mobile yet and I don't like sitting there comparing him to other babies. I already have a little Mommy and me, and the other kids are a bit older and its pretty comfortable.
This is my first SAHM experience too, so everything seems magnified. With the other two (who are 9 and 14) I worked and they seemed to reach milestones without much effort, both walked by 13 months, I didn't even pay attention to when they were able to sit up, so it never occured to me that this little boy was late, even for a preemie.
any similar experiences?
any cp parents?
thanks a million!!!
Rachelle, mommy to 8 year old boys!
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