Last month we celebrated C's one year post-surgery date. We called it her "RE-birth Day" and had a heart-shaped cake and ice cream (and yes, little C got to stuff herself silly with it too!).
I am SO.GLAD.WE.DID.THIS!!!!!! It means more to me to recognize and remember the day we knew for sure that our daughter would live.
Re: holter monitors... I started bringing an ace-type bandage to our appointments and wrapping that around her trunk over the electrodes instead of using that awful tape! I don't ever want to have to try to remove that tape ever ever again!