I took DS to a developmental pediatrician last week. A SW administered a couple of diagnostic tests and we talked tonight. The dev. ped watched DS for a little while during the screening and then later on a video as well.
He agrees with DS' OT who has diagnosed DS with dyspraxia and SPD involving his tactile sense and vestibular system. And the dev. ped. is adding ASD at this time.
It was a lot to take in. I wasn't exactly not expecting it but when you hear, "It's time to take a look at autism" your heart stops a bit.
For me at least, I tend to think of the SPD as some of DS' "quirkiness." Since he's had it since I've met him
: , that just seems like part of him. And I work around it. Autism? That seems so serious. It feels so serious. It feels kind of hopeless.
The upside is that DS does now qualify for the playproject.org. I'll call tomorrow and update his therapy center. And now the "a word" has been spoken, insurance will have to cover 40 sessions of OT. (They weren't going to do that for the SPD since that's not a recognized disorder yet.)
The ped said that because DS' SPD was severe in some catagories that it makes it very hard to diagnose him, especially since he still isn't quite two yet. He reminded me that the earlier DS begins therapy, the better his chances of a "normal" life.
We have a full three hour block with him at the end of October. There will be more tests and by then DS will have been in OT and ST for 4 months. So the next four months are critical for us.
I had to take DS for his post-op dental visit today. Our dentist is fantastic and even has a hygenist on staff who's had a little extra training with SN kids. When we got to the room, the receptionist asked for her because there was a SN kid there now. It took me a minute to realize they were talking about DS!!! I almost burst into tears. They told me he was perfect when he was born!
It's been a hard day for me. And I feel kind of awful for complaining when so many of you have it so much worse. I'm sorry.