We have a diagnosis (or three!) - Mothering Forums

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#1 of 7 Old 06-18-2007, 11:45 PM - Thread Starter
 
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I took DS to a developmental pediatrician last week. A SW administered a couple of diagnostic tests and we talked tonight. The dev. ped watched DS for a little while during the screening and then later on a video as well.

He agrees with DS' OT who has diagnosed DS with dyspraxia and SPD involving his tactile sense and vestibular system. And the dev. ped. is adding ASD at this time.

It was a lot to take in. I wasn't exactly not expecting it but when you hear, "It's time to take a look at autism" your heart stops a bit.

For me at least, I tend to think of the SPD as some of DS' "quirkiness." Since he's had it since I've met him : , that just seems like part of him. And I work around it. Autism? That seems so serious. It feels so serious. It feels kind of hopeless.

The upside is that DS does now qualify for the playproject.org. I'll call tomorrow and update his therapy center. And now the "a word" has been spoken, insurance will have to cover 40 sessions of OT. (They weren't going to do that for the SPD since that's not a recognized disorder yet.)

The ped said that because DS' SPD was severe in some catagories that it makes it very hard to diagnose him, especially since he still isn't quite two yet. He reminded me that the earlier DS begins therapy, the better his chances of a "normal" life.

We have a full three hour block with him at the end of October. There will be more tests and by then DS will have been in OT and ST for 4 months. So the next four months are critical for us.

I had to take DS for his post-op dental visit today. Our dentist is fantastic and even has a hygenist on staff who's had a little extra training with SN kids. When we got to the room, the receptionist asked for her because there was a SN kid there now. It took me a minute to realize they were talking about DS!!! I almost burst into tears. They told me he was perfect when he was born!

It's been a hard day for me. And I feel kind of awful for complaining when so many of you have it so much worse. I'm sorry.

secular classical-ish mama to an incredible 5 year old DS and an amazing 6 year old DD.
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#2 of 7 Old 06-19-2007, 12:17 AM
 
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I am sorry this is a hard day for you Hang in there I know it is going to get easier for all of you. It is a lot to take in right now I am sure.

Quote:
They told me he was perfect when he was born!
I am sure he is perfect!

Hugs!
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#3 of 7 Old 06-19-2007, 12:21 AM
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He IS perfect. He is just how he was meant to be. He also has a darn good mommy and family who love him and accept him for who he is. A DX is just a DX. It does not change who he is. It just gives you clearance to get him the things he needs.

And just because he has the "A-word" on a medical chart does not mean that he won't be able to lead a full, happy, productive life full of meaningful relationships, joy, and love.
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#4 of 7 Old 06-19-2007, 12:27 AM
 
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it is hard to hear it even when you do see it coming. That said, your son is still the same wonderful child he was before. Remember that. As Karen said beautifully...they were right at birth--he's perfect. Autism--not hopeless at all but I know it feels like that sometimes at first. You'll sink into it though it takes some time and for some people (me) there were stages of grief after the dx.--including denial (even after it was official) and anger and the whole bit but it did pass. Allow yourself time to process it and feel whatever you feel and know many here support you. Someday it will feel like the SPD does to you--just part of him.

Rachelle, mommy to 8 year old boys! 

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#5 of 7 Old 06-19-2007, 01:00 AM - Thread Starter
 
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Thank you all so much. That's exactly what I needed to hear. He IS perfect and I'll spend the rest of my life making sure his life is as marvelous as can be. I needed some wallowing time.

Now anyone have any favorite autism books for me to start with?

secular classical-ish mama to an incredible 5 year old DS and an amazing 6 year old DD.
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#6 of 7 Old 06-19-2007, 01:28 AM
 
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When DS1 was diagnosed the Doctor reminded me that he wasn't a different child. He was the same wonderful child he'd always been. The only thing that had changed was that we had some labels for him, labels we could use to get him the best services at school, and help him in many ways.

Kiley
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#7 of 7 Old 06-19-2007, 01:29 AM
 
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Quote:
Originally Posted by Jennifer3141 View Post

Now anyone have any favorite autism books for me to start with?
"All Cat's Have Asperger's" perfect for the newly diagnosed child and family. Anything by Tony Attwood.

Kiley
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