Just wondering if I am really crazy!!! My DD is now 6 1/2 and is doing well, but when she was diagnosed at 17 months, I had set in my mind that we will do whatever we needed to to make things okay. After that we tried to go home and be "normal" but I was a total mess.
It now seems like such a blur, but I really was short tempered and nasty to people. All I could think about what was and wasn't going to happen in my DD's life and how my DD was going to be so different.
I think I have finally gotten to a place where I can come to terms with it all, but occasionally I have "self pity times" that I get really down about it all. Not just for myself, but how much my DD is different and how much she has to overcome to just do regular things. It just really breaks my heart. But I do look at her and realize that her disease has really made her who she is and I am so proud that she is such a great kid. She is very respectful and caring and finds such joy in the little things.
Well, I guess this has turned into a vent for me. I am new here and have just been lurking lately, so I hope I haven't scared anyone away. I do know I have issues.
Thanks for letting me vent.