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#1 of 11 Old 02-16-2008, 11:59 PM - Thread Starter
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I am way too busy. Look at my to do list for this week.

Appointments I need to remember:

* Feb 21st: DD ENT 8am
* Feb 25th: DD AEEG 10am

Appointments need to make:

* CHOA Cleft Clinic Genetics and neuropsych for DD
* CHOA cleft clinic for DD
* Cardiology for DD and DS

Calls I need to make next week:

* Contact Pulm and ask about status of sleep study for DS.
* Contact developmental ped and inform her of DD's test results.
* Contact CCED and find the status of the application and get a date.

Get paperwork mailed for the following:

* Tax return ammendement: get $1000 more.
* Mail order pharmacy paperwork
* Benefits verification paperwork done
* Request for copy of marriage certificate for benefits verification
* Claim paperwork and letter of necesity for neocate for insurance

Other stuff going on:

* Carpets getting cleaned on Wednesday
* DD going to my mom's next weekend.
* DH works on Sunday
* Grocery shopping on Tuesday
* Take DD to get AFO's checked on by local orthotist
* MIL and DH's grandma taking kids on Wednesday

And that is just all I can think of now. This is all so insane. Seriously insane. I feel like their medical stuff is my full time job. UGH.
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#2 of 11 Old 02-17-2008, 12:08 AM
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#3 of 11 Old 02-17-2008, 12:11 AM
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Yeah...Connor has a different appt every day this week ending with surgery on Friday...

Monday: me and DH both have dental appts, Connor sees cardiologist
Tuesday: Pre-op physical/1 yr well baby w/pediatrician
Wednesday: First appt w/ASL instructor
Thursday: Speech/physical therapy
Friday: Surgery day...again.

That's just the appts...there's still all the "other" issues, meds, keeping his records up (I get copies of everything and carry them with me), coordinating all his appts with his case workers... You're right, it alone could be a full time job. But I work more than full time already!!!

That's why I love this guys all understand!

Mommy to BigBoy Ian (3-17-05) ; LittleBoy Connor (3-3-07) (DiGeorge/VCFS):; BabyBoy Gavin (10-3-09) x3 AngelBaby (1-7-06)
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#4 of 11 Old 02-17-2008, 01:01 AM
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I can totally understand your frustration. In a given week we have at least 1 appointment every day for Dakota, usually more.
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#5 of 11 Old 02-17-2008, 01:19 AM
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I feel ya.

Wendy ~ mom to VeeGee (6/05), who has PRS, Apraxia, SPD, VPI, a G-Tube, 14q duplication, and is a delightful little pistol! I'm an English professor and a writer.
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#6 of 11 Old 02-17-2008, 04:08 AM
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I remember those times, especially when we were trying to diagnose things. Soooo overwhelming. Weekly weight checks, feeding team, feeding therapy, developmental assessment, speech therapy, VCUG, swallow test, blah blah blah. We're now down to appointments only once a month. Woo hoo! My hope for you is that your kids' medical appts will slow down eventually too, as things get figured out.

Mom to ds1 (ASD) born 2004 and ds2 born 2007
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#7 of 11 Old 02-17-2008, 08:28 PM
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It is pretty overwhelming, isn't it? It is just like a full time job, unpaid of course.
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#8 of 11 Old 02-17-2008, 08:43 PM
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Yep, I can relate. I started setting up all my appointments/to do's in Outlook. Being pregnant I can't remember anything.

Anne, Mama to Conner 2/27/04 blahblah.gif  Gabrielle 2/6/06 W/LMC-TCS, Neurogenic Bladder, AFO & KAFO wearer, Neurogenic Bowel energy.gif & Delaney 5/12/08 mischievous.gif &  Beethoven cat.gif& Gizmo cat.gif

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#9 of 11 Old 02-17-2008, 10:00 PM
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I had to get a palm and consult that. Then I had to combine the palm with the phone so I would remember to charge. We have a similarly crazy week. :
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#10 of 11 Old 02-18-2008, 01:32 PM
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kodama, that is intense. is there respite care/parent relief available where you are?

i am trying not to think of my to-do list (taxes... uh, more than just this year's... insurance claims, compile & fax paperwork to daycare for special-ed resource teacher, two therapy appointments, laundry, general housework, cooking for the week, etc.), as well as working full-time, and lo is still recovering from croup, and i seem to be getting another cold before recovering completely from bronchitis, and we're probably getting another blizzard (we haven't been able to get the car out the driveway for almost a week)
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#11 of 11 Old 02-18-2008, 01:35 PM
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This is intense and I really feel for you. Feel free to come here and vent in between when you need.
We had schedules like this for a while and it made me really sad, depressed, exhausted, defeated, hopeless and just plain maniac.

I didn't even know who I was anymore.

I really hope that some answers will be yield from all this.

Take care,


[FONT="Tahoma"][B]Mary:::, mommy to Devon girl: 3.30.2006 and Smile Miles 2.24.2009, a funky little monkey!
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