I'm burning out. - Mothering Forums

 
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#1 of 26 Old 06-29-2008, 01:15 AM - Thread Starter
 
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So much is going on here, and it's non-stop. We've had more outpatient appointments than we have ever had in May and June (over 60 appointments...with testing, not counting blood draws)!!!!!!!!! And in July we have a surgery plus, yes, at LEAST 20 more appointments.

This is reaching a level that even ***I*** find dramatic.

And still, we really don't have many more answers than we started with. PLUS the epileptologist said, yeah, not so sure it's seizure activity. Which is: : but also .

So yeah, we're thinking of taking a vacation week this week. But I don't even know how much that is going to happen.

And I'm hiring a housekeeper. NOT like there is extra money, but I NEED extra help.


Is there a lesson in all of this somewhere? Cuz if there is, I'm just not getting it.
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#2 of 26 Old 06-29-2008, 01:26 AM
 
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Who's having surgery?

You should hire a housekeeper!! I'd be jealous!

Nicole, mom of 3. Mitochondrial Disease.: Epilepsy
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#3 of 26 Old 06-29-2008, 01:33 AM - Thread Starter
 
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My 4 y o is having dental work and maybe a muscle bx.
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#4 of 26 Old 06-29-2008, 01:39 AM
 
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My 4 y o is having dental work and maybe a muscle bx.
Ahhh I did know about the dental surgery although I wasn't sure if you were waiting on it or not.

Is the ped ordering the bx?

Nicole, mom of 3. Mitochondrial Disease.: Epilepsy
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#5 of 26 Old 06-29-2008, 01:47 AM - Thread Starter
 
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Not waiting anymore since certain "specialists" are offering "no more help." And with the current mouth pain, not needing that to become an issue.

Ped will order if need be. Otherwise we are seeing genetics again shortly before surgery. I mentiond we have a gazillion appointments right? :
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#6 of 26 Old 06-29-2008, 02:20 AM
 
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How about a bunch of hugs and kisses?
:::


I can't even imagine all the co-pays for all that. Then maybe your insurance isn't crap like ours is.
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#7 of 26 Old 06-29-2008, 02:35 AM - Thread Starter
 
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$25 per visit.

And you must have missed my comment that: yoUrHorrendousCoverage is my ins company.

And our copays do NOT count toward our out of pocket.::
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#8 of 26 Old 06-29-2008, 11:46 AM
 
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And our copays do NOT count toward our out of pocket.::
This is almost criminal. ugh.

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#9 of 26 Old 06-29-2008, 11:53 AM
 
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s mama

Damn those copays, they *KILL*!! My husband is on a daily medication, so we have to pay his copay every month to fill it, plus he sees two drs each month, co pay for each. That's $75 a month just for his daily stuff. If he's ever sick or has his annual physical or sees the dentist, etc etc it's jsut more out of pocket.

I'm late for my annual physical, haven't even chosen a dr for me (we got new insurance last year), to be honest I've been waiting for a month when Connor doesn't have any appts. THat was supposed to be this month, but now with he and Ian having chicken pox...

Chicken pox has so far cost us a copay for each boy to see the pediatrician ($50) and a copay for each boy's rx (Ian on antibiotic becuase of the impetigo, Connor on antiviral) (another $50) And we'll draw titers for Connor after he's over the pox so we know if he built up any immunity or if we need to keep the immunoglobulin and antivirals in mind for his next exposure.

Sigh...so yeah, I hear you. But 60 appts...WOW!!! I hope things slow down for you soon!!!

s again, because you need as many as you can get!

Mommy to BigBoy Ian (3-17-05) ; LittleBoy Connor (3-3-07) (DiGeorge/VCFS):; BabyBoy Gavin (10-3-09) x3 AngelBaby (1-7-06)
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#10 of 26 Old 06-29-2008, 12:37 PM
 
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$25 per visit.

And you must have missed my comment that: yoUrHorrendousCoverage is my ins company.

And our copays do NOT count toward our out of pocket.::
That sucks. :stupid insurance companies.

Mine won't pay for any speech and to see a specialist is $40. So we go to OT/ST every other week for a total of $80 copay. Then we get a bill from the center for the speech which is another $110 a month. All this for 2hrs of therapy. My OT and ST tag team.

Thanks for letting me vent. That's nothing compared to what you are paying! That is downright CRIMINAL!!!
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#11 of 26 Old 06-29-2008, 01:45 PM
 
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Holy moly - you spent over $1600 in copays last month?!! ($25 x 60) And it doesn't count toward your out of pocket?!! I sure hope you itemize your deductions, because I do believe you can ake that off your taxes.

After the surgery, is there any way to just say "nope, no more appointments for a week"? I'd be burned out with half of what you're doing.

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#12 of 26 Old 06-29-2008, 04:41 PM
 
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#13 of 26 Old 06-29-2008, 07:24 PM
 
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Sorry you all are going through all that. I agree that your co-pays not counting is highway robbery! Can you get medicaid or any other supplemental insurance?
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#14 of 26 Old 06-30-2008, 02:12 AM
 
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when it rains, it pours

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#15 of 26 Old 06-30-2008, 12:48 PM
 
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#16 of 26 Old 06-30-2008, 02:49 PM
 
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Of course you're burning out!
Taking a vacation sounds like good medicine! Actually, it would be preventive medicine because, if you don't take a break from all this medical care, you will need to be hospitalized!

Just a thought for those of us who are suffering from copay-itis.
Our health care system ain't perfect. But, where would we be without it?
We'd either have to pay full-price for everything, or be at the mercy of a totally government-run system. We'd probably still be waiting for them to "discover" most of the disorders we're dealing with.

My drug copays just went from $15 to $35. That was not fun. But it's still saving us a ton of money.

Blessings on you!
Marilyn
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#17 of 26 Old 06-30-2008, 09:34 PM
 
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Originally Posted by MamaLuvsYa View Post
Just a thought for those of us who are suffering from copay-itis.
Our health care system ain't perfect. But, where would we be without it?
We'd either have to pay full-price for everything, or be at the mercy of a totally government-run system. We'd probably still be waiting for them to "discover" most of the disorders we're dealing with.
So not relevant or helpful to the OP.

To the OP, big hugs and all of those co-pays are a pain, I hope your vacation is wonderful!
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#18 of 26 Old 07-01-2008, 02:31 AM - Thread Starter
 
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Just a thought for those of us who are suffering from copay-itis.
Our health care system ain't perfect. But, where would we be without it?
We'd either have to pay full-price for everything, or be at the mercy of a totally government-run system. We'd probably still be waiting for them to "discover" most of the disorders we're dealing with.
I think if you knew my whole situation, there is no way in h e double hockey sticks you would have posted this.

That's first.

Second, if I start telling you about my family's situation and experience with "health care" in this country, plus health "insurance" in this country, you will probably need therapy or hospitalization.

<snip cuz I have seriously reconsidered putting that much info out there>

And do NOT get me started on how many doctors we have seen and yet still NO ONE KNOWS WHAT IS WRONG WITH MY INCREASINGLY, PROGRESSIVELY DETERIORATING CHILDREN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!



:





And yes, our out of pocket was even more than the copays b/c we have coinsurance for all meds, plus all tests, plus all labwork.

And we are only HALF WAY to our out of pocket for the boys.

And that dental work, WON'T COUNT EITHER.
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#19 of 26 Old 07-01-2008, 02:43 AM
 
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I think I'd be in heaven with a government run system about now. I am praying that Wa state will vote in a new law to require INS companies to pay for autistic treatments.

Anyway....

My dear one!
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#20 of 26 Old 07-01-2008, 02:46 AM - Thread Starter
 
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to you to.
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#21 of 26 Old 07-01-2008, 04:34 AM
 
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mamaverdi, i hear ya. i was so very, very glad to be able to take a break from the 4-7 appts per week schedule we were doing during the school year. i wish ds#3 was allowed to continue his therapies thru the summer, but at the same time, it's nice to not practically live in my car for a few weeks.

i am so grateful that we do not have co-pays for the kids stuff (appts, meds, etc), but for me and dh, it's $10 co-pay for visits, and $3 per medication (he's on 5, i'm on 2). which i will complain about a lot less after hearing how much your co-pays are!


"give me life, give me pain, give me myself again" - tori amos
30yo SAHM of 4 DS's: 10/98, 6/01, 2/03 and 11/04, wife to DH, 33
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#22 of 26 Old 07-01-2008, 05:54 AM
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whew! that is alot. i think it's great that you've decided to invest in your own sanity with the housekeeper. i know it sounds dramatic but that's kind of a big life affirming decision.
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#23 of 26 Old 07-01-2008, 10:01 AM
 
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Originally Posted by mamaverdi View Post
$25 per visit.

And you must have missed my comment that: yoUrHorrendousCoverage is my ins company.

And our copays do NOT count toward our out of pocket.::
Do you not qualify for medicare/schip? Or not have it in your state? Some states have a waiver for special needs kids so you can make more money than the minimum.

In California we didn't qualify, but here in Vermont we do. Damn, it helps. DS is having heart surgery next week. All covered.

Sleepy mom of two (DS-11, DD-8). 5 lost: 9/2004, 3/2005, 4/2013, 8/2014, ectopic- rupture @7w, lost right tube 11/14
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#24 of 26 Old 07-02-2008, 01:27 AM
 
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Does your coverage at least cap at a certain point for co-pays?
I'm so sorry that you still don't know what is wrong. That must be very frustrating.

To my husband I am wife, to my kids I am mother, but for myself I am just me.
we're : with and : and
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#25 of 26 Old 07-02-2008, 02:08 AM - Thread Starter
 
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No cap. And w/o a diagnosis concerning what actually is happening for either of them, then we can't qualify for special needs waiver.

For instance, my younger son has a urinary tract issue he was born w/, but ATM it is not causing him say kidney failure, so....no dx to get the coverage.



Hence, all the appts.

It IS affirming to TRY to hire a housekeeper. I just wish I could get a call back. I wonder if she'll do my laundry. :
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#26 of 26 Old 07-02-2008, 10:53 AM
 
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That has to be frustrating, knowing that you can't get the help you need, just b/c you don't have the appropriate "label" yet. I am so sorry that things are so difficult right now.

I hope a housekeeper helps take some of the load off, you deserve it.

If I lived closer I would come do your laundry (but only if you load my dishwasher!)
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