tell me about your ASD kids diet - Mothering Forums

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#1 of 29 Old 08-03-2008, 01:06 AM - Thread Starter
 
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really I want to know. I have an appt this wek w/an alergist and a dietiction, (have I mentioned that I love the group thats working w/dd?) and I just want to maybe get a lil more familiar with what to maybe expect. TIA
Sarah
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#2 of 29 Old 08-03-2008, 01:13 AM
 
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My son eats a lot of carbohydrates. He didn't always but he has a metabolic condition that makes him unable to metabolize most fat. So we limit fat and use a specific form of fat for needed calories and the bulk of his food calories now are carbohydrates--fruit, rice crackers, rice bread, pasta, rice, quinoa, etc. He's not big on protein but we do make sure we get what he needs to grow--usually in smoothie type drinks. He's an eat a few bites and be done kind of kid so he does a lot of grazing/little meals. The only family meals he eats are tacos and jamabalaya and side dishes of quinoa or rice. Rarely he'll eat some vegetables. I'm working to try to find 7 meals and/or sides he will eat that the rest of us will also like that I can serve as family meals. It's a slow process..mostly because I find it discouraging! He likes food that has crunch, a strong spicey taste or strong sweet taste to it. He's a sensory seeker.

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#3 of 29 Old 08-03-2008, 04:06 PM
 
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DD is a very picky eater in terms of quantity. She has days where she eats very well. She has days where she eats very little. She doesn't avoid any food so in that respect we're lucky. If only she would take more than 3 bites of something. We have to give her a special protein supplement and other supplements to make sure she's getting adequate nutrition. She also has sensitivities to certain foods so we have to make most of her food from scratch.

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#4 of 29 Old 08-03-2008, 04:13 PM
 
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I wanted to add in terms of what to expect. It probably depends on the expertise of the dietician. We've worked with several over the years. The one common thing is that all of them had me keep a record of what and how much he ate over a few days time. They wanted to make sure we had enough protein and over-all calories especially. Most gave me information about how many calories and how much protein he needed to grow. The metabolic dietician had specific suggestions of changes to make. Some of which I did; others I didn't (so she told us to remove some fat I was adding to a smoothie-I did that; she told me to serve fruit canned in heavy syrup--I didn't do that.)

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#5 of 29 Old 08-03-2008, 06:01 PM
 
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Mark eats rocks, dirt, paper, stickers, crayons, glue, chalk, paint ---- oh wait, you meant food?

He eats darn near everything. I'm not much help to those of you with orally averse kiddos, as we have the opposite problem. It is getting harder to push veggies into him though, which I'm glad for b/c it's age appropriate, and he's also copying his older brother's veggie songs of sorrow, which is also something to be happy about. But still.
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#6 of 29 Old 08-03-2008, 07:54 PM
 
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Parker only eats cheese ,bread, yogurt, crackers, chips, sour cream, waffles, and cereal. I forgot cookies, frosting, and candy but i don't count those. He will occaisionally eat a fake hot dog or corn dog(we are vegetarian).

William eats fake hot dogs, corn dogs, chicken nuggets(all brand specific), noodles, pizza, cheese, cereal, waffles, beans, rice and occasional fruits and veggies. He has gotten a lot better about food since going to kindergarten but his teacher workd hard with the kids last year.

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#7 of 29 Old 08-03-2008, 09:40 PM
 
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Jayce's diet sucks And we've been seeing a special needs nutritionist since December and have been in feeding therapy for 9 months.

He eats:

pancakes
mac n cheese (only shape kind from a box)
goldfish
pretzels
cocoa pebbles cereal
apple juice
chocolate ice cream

If he eats a bite of anything else, its usually just a fluke and not a "new accepted food" like we always hope for
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#8 of 29 Old 08-03-2008, 11:26 PM
 
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Sid likes:

all fruits except melons
Annie's mac and cheese--microwave variety, no other type or brand will do
cottage cheese, especially with apple sauce
fake chicken patties and veggie burgers
p-nut butter and agave nectar sandwiches
any sandwich that I am eating
green beans, corn on the cob, lima beans, mashed potatoes
cheese quesadillas and grilled cheese sandwiches
uncooked pasta
bean burittos
grits, oatmeal, multi-grain hot cereal, fried polenta
eggs, on occasion
beans and cornbread
the first bite off of french fries and tater tots
hashbrowns
shredded wheat, Go Lean, and Honey Bunches of Oats cereals
pancakes and frozen waffles
Krystal burgers

foods Sid does not like:
english peas
anything (other than a hamburger) made with ground beef

I know that there are other things he doesn't care for, but they are escaping me at this time. He's never been a picky eater

Most of Sid's food issues (to the extent that he really has any) is in the way he eats, not what he eats. For example, he likes to eat apples, but only until there is no more peal. Likewise, he will eat a hamburger around the perimeter (unless I am holding the burger.) These aren't things that are a big deal to me.
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#9 of 29 Old 08-04-2008, 01:03 AM
 
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What do you do (is it even possible) to radically change an ASD kid's diet when they are picky?

Ds is VERY picky about what he eats. So if I wanted to see if cutting out gluten (for example) would help, how could I do it if he constantly wants to eat only wheat based products...yk?

Anyone else have this problem?

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#10 of 29 Old 08-04-2008, 01:13 AM - Thread Starter
 
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Ok so Sierra loves pool noodles, plastic drinking straws, baby teething toys-esp vibrating ones, foam rubber...really most objects will get at least a nibble from her.

AS far as food she will eat a decent variety,but often only if I feed it to her or hold it for her to bite. She doesnt seem to want to touch food. She obsesses over milk even after we switched to soy milk. A GFCF diet may be in our future. How does one manage that sort of thing when there are other children to feed? My baby eats anything and everything. We did the BLW thing with her. She loves all sorts of foods and really seems to lok foreward to mealtimes. Do I make a seperate meal? Do we all change our diet? Do I worry too much lol....

Sarah
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#11 of 29 Old 08-04-2008, 02:14 AM
 
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Originally Posted by mountainsunshine View Post
Ok so Sierra loves pool noodles, plastic drinking straws, baby teething toys-esp vibrating ones, foam rubber...really most objects will get at least a nibble from her.

AS far as food she will eat a decent variety,but often only if I feed it to her or hold it for her to bite. She doesnt seem to want to touch food. She obsesses over milk even after we switched to soy milk. A GFCF diet may be in our future. How does one manage that sort of thing when there are other children to feed? My baby eats anything and everything. We did the BLW thing with her. She loves all sorts of foods and really seems to lok foreward to mealtimes. Do I make a seperate meal? Do we all change our diet? Do I worry too much lol....

Sarah
I switched both my kids to gfcf. Similarly, my typically developing kiddo had allergies and I never fed his allergic foods to his brother either. It just seemed like that would make things harder for the kids. We did still eat the gluten/casein stuff after they went to bed or for lunch for hubby. As my boys got older it was easier for us to just convert the whole family over. Gluten is hard for anyone to digest so better health wise to cut out anyway.

That said, I'm all for trying digestive enzymes first and see how things go (unless celiac is involved). There is a site called enzymestuff which is really informative. We use houston enzymes. Not all kids respond to gfcf.

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#12 of 29 Old 08-04-2008, 09:03 AM
 
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Oh Josh eats the same things he has been eatings since he was 18 months old:

pizza
spaghetti
pancakes
all meat
french fried potatoes of any kind
bananas
plain ham only sandwiches



and of course cookies/candy/ice cream/CRAP
he has in the recent months added
poptarts
popcorn
cereal straws
and..................................grapes!


so thats it. yes, its boring. but what can ya do?

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#13 of 29 Old 08-04-2008, 01:40 PM
 
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Originally Posted by bdavis337 View Post
Mark eats rocks, dirt, paper, stickers, crayons, glue, chalk, paint ---- oh wait, you meant food?

He eats darn near everything. I'm not much help to those of you with orally averse kiddos, as we have the opposite problem. It is getting harder to push veggies into him though, which I'm glad for b/c it's age appropriate, and he's also copying his older brother's veggie songs of sorrow, which is also something to be happy about. But still.
Same here except when DS turned 4 he finally stopped eating non food items. : He used to be a voracious sand eater. :

He eats a really varied diet with an emphasis on fruit and meat.
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#14 of 29 Old 08-04-2008, 05:50 PM
 
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My son gets Feeding Therapy because he doesn't want to try new foods. And the list of foods that he will eat was dwindling.

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#15 of 29 Old 08-05-2008, 01:18 AM - Thread Starter
 
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ok so we had RAST testing today and nothing came up. well except for a major meltdown after we got home..grrr.... they ordered bloodwork for celiac becuase sil has celiacs. I am intereste din trying the enzymes again. I had gotten some for her a while ago. poppe dopen the caps and they tasetd horrible. Anyone have any expierence with this?

Sarah
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#16 of 29 Old 08-05-2008, 08:23 AM
 
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We use houston enzymes.
I do pop open the capsules, put in a bit of apple sauce or pear sauce, and give it like that. But my boys have never minded the taste of them. Houston's makes chewables too I know; I imagine they taste good (if ASD kids are chewing them up) though we've never tried them. They sent us samples of their capsules to try; I'm thinking they do the same with chewables.

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#17 of 29 Old 08-05-2008, 09:23 AM
 
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Originally Posted by mykdsmomy View Post
What do you do (is it even possible) to radically change an ASD kid's diet when they are picky?

Ds is VERY picky about what he eats. So if I wanted to see if cutting out gluten (for example) would help, how could I do it if he constantly wants to eat only wheat based products...yk?

Anyone else have this problem?
I had this exact same problem. When I took Jayce off of gluten, he refused to eat any of the GF substitutes of his approved foods. He instead ate only dairy products (pudding, cereal with milk, ice cream, cheese) and popcorn and chips. I wanted to take him off dairy, too, but then he would only eat popcorn and chips. Not a healthy diet at all We did this for 3 months. I saw a huge improvement in his sensory issues and speech, but he was losing weight. We had to stop the GFCF diet so he would eat again.
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#18 of 29 Old 08-05-2008, 11:10 AM
 
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We tried a GFCF diet but after a while realized that dairy was the real culprit. Even traces will give her diarrhea and sleeplessness and cause her eczema to flare.

Also we saw that if we got rid of wheat she would either starve or nurse 43 times a day. She doesn't have the ideal diet, but we find ways of compensating so that we don't get into battles over food. Smoothies help us get her supplements in (cod liver oil, flax oil, cal-mag, probiotics) and fruit.

She loves fries and chicken nuggets and cries if we drive past McDonald's without stopping so I try to make her healthier versions of what she likes. She can eat an entire box of triscuits in a day and is happy as a clam roaming around the house with a bag of corn chips. She loves popcorn and pasta with olive oil and salt. Frozen waffles (the whole grain kind only) and apples. She used to love bananas but is taking a break from eating them plain right now but still gets them in her smoothies.

I thought my older (possibly Aspie) dd was picky before my ASD daughter came along! Now there is a long list of foods my older daughter will eat that my younger dd won't and vice versa.

So we try to just put various foods out and if she eats them great, if not, we don't worry. We try to fill in the nutritional gaps with breastmilk, special high antioxidant juices, and smoothies with supplements. She is very healthy. They both are.

But my older daughter is so into the computer lately that she forgets to eat! Last night she was complaining of a tummy ache and ate a bowl of cereal and two hot dogs! Considering the fact that she is only 33lbs that was impressive.

-Vijay
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#19 of 29 Old 08-05-2008, 02:35 PM
 
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Adam eats:

almost any carb: pasta, bread, most crackers, (especially cheez-it or goldfish), cheerios, pretzels

almost any dairy: smooth yogurts, milk, cheese

pizza, ravioli, boiled eggs, scrambled eggs, sometimes tyson chicken nuggets, almond butter sandwhich, orange juice, apple juice, apple sauce, canned/jarred fruit cup (peach only), oranges, sometimes banana, sometimes apple, sometimes watermelon (other times he gags on these and spits them out), LOVEs berries -- any kind, ketchup, maple syrup, hotdog buns (not hotdogs) dipped in ketchup, pancakes, waffles, potato chips (loves these), raisins...

Really dislikes veggies and most meats -- on occasion has eaten a meatball (which he used to love), his protein comes from almond butter & eggs mostly -- and the dairy products, too, that he will eat. He likes lollipops and popsicles and extra dark chocolate but really doesn't like most other sweets -- doesn't like cupcakes/cake w/frosting. Will eat oatmeal cookies, though.

I hate that he doesn't eat more variety but I'm thankful for what he does eat.
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#20 of 29 Old 08-11-2008, 02:04 AM
 
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I found this book fairly helpful (if exhausting) for my resistant eater

"Just take a bite" http://www.amazon.com/Just-Take-Bite.../dp/1932565124

My ds goes through major food jags. Usually he will eat 1-2 breads, 1-2 fruits, and 1-2 proteins. Then a food will "go out of favor" as we say and we'll have a rough few weeks before he finds a similar food to latch onto. It's been this way since he started eating (late, he has an oral aversion).

Right now he eats:
croissants
tortilla chips
Dried mangos
"Flat mangos" (mango fruit leather)
"Jupiter salami" (genoa salami--he says it looks like Jupiter, his favorite planet. we got him to try the salami by telling him it looked like jupiter. recently we tricked him into eating a soy version of "jupiter salami" because we said it looked like one of jupiter's moons--he's obsessed with the planets & space right now)
chicken nuggets with ketchup
french fries, but only from The "M pass-by" (ie drive thru!)

he will also eat chocolate chip cookies if they "look like the kind he likes". Has never been big on sweets either.

He has never eaten anything you have to eat with a spoon--no yogurt, ice cream, applesauce, soup, nada.

He used to be a dairy fiend--cheese, cheese, and more cheese. Then it fell out of favor and he won't touch cheese. Too bad since it was a decent source of protein & fats. He has also generally been good about carbs. He will eat sugar snap peas from the garden but only out in the garden

Protein has always been tricky. We have struggled with his weight as he also has a cardiac condition.

We saw a nutritionist who also recommended that book--it's a kind of "food chaining" where you transition from known favored foods to similar foods. It sometimes works for us, but we usually have to trick him into it.

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#21 of 29 Old 08-11-2008, 11:43 AM
 
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Forgot to mention that Sid also takes Nordic Naturals DHA Jr., NN's multivitamin, Kid Cal, B-12 chewable, BerryDolphilus and a digestive enzyme, all from Now.
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#22 of 29 Old 08-12-2008, 12:36 AM
 
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caleb eats:
ketchup, chicken nuggets, chips, pizza (sometimes), hot dogs (just the dog), icecream, waffles (no butter, just syrup), french fries, and bread.

he drinks:
water, juice, V8 fusion

the V8 is the way we make sure that he gets his veggie and fruits for the day.
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#23 of 29 Old 08-12-2008, 12:50 AM
 
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His list has gotten longer! Go Caleb!
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#24 of 29 Old 08-12-2008, 12:54 AM
 
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All my kids are on a mostly gluten, egg, dairy free diet. Celiac runs rempant in my dh's family, and ds1 tested postive to all of the above. We put them all on the diet just in case, although we cheat occasionally. But we've found that ds3 ends up wth diarhea when he has glutens. So, no more cheating for us. Luckily my kids will eat just about anything that doesn't eat them first. .

 
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#25 of 29 Old 08-12-2008, 12:59 AM - Thread Starter
 
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i shoul update this i see. lol thought it got buried. We have been able to get dd to eat her dinner for several days now. I hope this keeps up. Aparently she was/is having a problem handeling the food on top of being too hyper to sit to eat. So we found her weak spot-juice boxes. We open a juice box and let her havea sip every couple of bites. If she gets up to run round we say the box is going back in the fridge and then follow through if she doesnt sit down. We have only had to do this 1x so far. Her oT pointed out she is having controll issues. She can't get controll of h rbody so she wants to controll everything else. EX: if playing playdough with her baby sister she will snatch the dough from lil sis if she isnt making "worms" and lining them up perfectly and scold her. Obviously my 17mo cant roll worms up nor line em up. She is actually interested in pounding the dough flat (cue irritated face from dd at that noise) and using the cookie cutters to the best of her ability. DD can't stand if we dont all do the same as her. Dh and I can't talk in the same room as her ect ect....
So we started to take the controll back.She is not allowed to controll the play or noise level ect. I think she really needed this becuase the big people not being in controll must have been a scarey thing to her. We tell her how a situation is going to be, we dont take no for an answer. If she sas "no brushing" we say I am going to brush 1X then just so controll is in our favor. this is all foregien to me. I am used to kinda working things out with her. Ya know a lets comprimise tactic-not a I have controll tactic. It is helping though. It goes to show me that not all kids have the same needs reguarding parenting.

So yeah after these changes she is eating again somewhat. Now if she doesnt wanna touch a food she has to say it or ask for help. A simple help please is cued when it seems she is avoiding something on her plate. Tonight she ate her chicken after i asked if she needed help and directed her to say help please. She (gasp) tried something new tonight too. :

sarah
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#26 of 29 Old 08-12-2008, 02:48 AM
 
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Well, good that you're making progress.

We are gluten, dairy, corn and soy free. Forget the tests, they're not always right. Our best immunologist/allergist told us that the best test in the world was to remove the suspected irritant and look for a reaction--because really, the body is complex and the only thing that matters is the reaction. I so respected that he didn't take the insurance companies money and prick my son's body when he didn't truly need it.

My son is picky in weird ways like a pp. He eats a good variety of food, though. We are ALL on the diet. Period. There is nothing in the house that he can't eat. Of course, dh and I occasionally sneak a snack he can't have--but in reality, it's stuff WE shouldn't have either (like Ring Dings Holy corn syrup, Batman!). When we have older foster children that miss their "normal" food (which is extremely rare, btw) then they are rewarded for doing their weekly chores with Sunday lunch out at the pizza place.

Truly, there's not much we can't replace with something very close to what we had. The exceptions are bread, pizza, cheese and pudding. That's it. We have better brownies than we ever had (family agrees), pasta that even my MIL born and raised in Rome will eat--al dente (Tinkyada if anyone's looking) and fruit roll-up type things that don't taste any different (Fruitabu). We found hotdogs with no corn syrup or gluten (or preservatives--a local store brand's organic version).

Gluten was easier to remove than trying to go dairy and soy simultaneously because often they replace one with the other. Unfortunately, there's an 85% chance that if they react to one, they'll react to the other.

So how do you do it with a picky eater? Wait it out. Obviously, if they start losing weight in a serious way, you have a problem. But if your kids are young--change their eating habits now while you can. My son doesn't care if he can't have pizza 'cause he doesn't know what it is or what it tastes like... kwim? He can be picky all he wants. Pick whatever's in the house. It's all good food that is on his "okay" list.

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#27 of 29 Old 08-12-2008, 04:46 AM
 
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His list has gotten longer! Go Caleb!
I know! Im so proud. Hes passed the 30lb mark! Hes added 5 new foods to his list. Gah, enough bragging. :P

Thats good that you found something that works during meal times I hope that the progress continues!
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#28 of 29 Old 08-12-2008, 12:00 PM
 
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Her OT pointed out she is having controll issues. She can't get controll of her body so she wants to controll everything else.
That is an interesting observation.
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#29 of 29 Old 08-12-2008, 11:41 PM - Thread Starter
 
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Originally Posted by sidshappymamma View Post
That is an interesting observation.
We thought so too, questioned it even, but went along with the advise. Today at OT the therepist was sooo impressed! It's true she is happier now. Not saying we don't struggle with tantrums,but I get them under controll easier now that I know how to react. There is still a long way to go aprently. I don't even understand it all. lol I don't even understand it all well eneugh to form a question to post here. lol
I will keep learning.

Went to look for this DariFree milk the dietiction reccomended and still cant find it. Anyone ordering food items off the net?

Sarah
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