Join Date: Mar 2006
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I wanted to offer my hugs to you as well. My dd was diagnosed with a seizure disorder at birth, also with normal EEGs and MRIs. She is expected to outgrow it, but I know it is so hard to watch our LOs have a seizure. We took her to a cranialsacral therapist. I'm not sure if it will help or not, but I am willing to try everything in hopes that she will outgrow them. It is a very good thing that your dc's mris and eegs have come back normal. We had considered not putting dd on meds because I hate starting her on medications, especially so early in life, but our neurologist explained to us that it is important to control them now in order to stop the neurons from firing incorrectly. Our dd is on phenabarb, though, which has been used for a long time so they know the most about it. There is a yahoo support group for those seeking alternative ways of dealing with it: epilepsy cured.
Your post also particularly struck me because my FIL was just diagnosed with bladder cancer. It is very hard to be dealing with both issues at the same time. Hugs to you and feel free to pm me if you ever want to chat.