I am back with another question.
I can not tell you all how much I appreciate you. Often when I write I am overwhelmed with information and trying to figure it all out. You are so wonderful and patient and helpful! I love all of you!
Okay to my question.
Do seizures look like shivers? My DS (30 months) has several struggles
-verbal apraxia
-sensory integration disorder
-hypotonia
-? GERD
-eating difficulties
-he signs pain and then points/touches/kisses his legs and sometimes also his head - no cause for the pain can be found, but it keeps him up at night
-his toes have been progressively pointing in more and more
-he has started stiffening his fingers in strange positions while walking
-before I was taught how to brush him, he had 25-40 tantrums a day and would hit himself and throw himself on the floor
Doctors have asked me if he has seizures and I have always said no, but now I am not sure.
At speech therapy on Friday morning DS sat in front of the therapist on a mat. I noticed DS (? 1 sec) shiver about 4-6 times over about 3-5 minutes. I wasn't paying much attention and I really don't know how long or how many. I didn't think it was cold. I mentioned to the therapist that I was surprised that he was shivering. It was just weird. The last time he did it she commented about it and kinda asked what he was doing. I said shivering. I thought that was a silly question at the time. Now I want to talk to her again and ask why she asked me. I want to know what she was thinking. She also commented several times that he looked really sleepy. I then looked at his eyes and thought he did look sleepy. I thought that was strange but passed it off as nothing. Now tonight my mommy brain is worrying and I can think of times in the past that he has shivered repeatedly and it looked strange. I don't know why I thought it looked strange. I don't remember anything specific about his eyes.
He zones out often, but I never ever thought of that as a seizure.
I want to get this all straightened out for him. I am at least an hour away from any cities. We have very little resources and I am not sure what to do. Getting into specialists has been very hard and time consuming and therapies are hard to find. Our school district does not summer programs and most of my concerns have been during this summer so I have had no help. DS being in pain and my not knowing how to help him is bad. The pain does not affect his play, but it does affect his sleep. His sensory integration disorder has affected his pain response, he doesn't cry with blood draws and so I worry about how much damage he may not feel and how bad it might be and he doesn't feel it.
I am tempted to take him to Mayo or the Cleveland Clinic and just get a diagnosis so I know how to help him. I am so frustrated on not knowing what to do or where to turn. The speech therapist has never helped a child with apraxia before. We went to the Kaufman Center for a diagnosis, but that is HOURS away.
What do I do next? Is there a chance these could be seizures? What is causing all of this? Why? I just want it all to get organized and happen.
I can not tell you all how much I appreciate you. Often when I write I am overwhelmed with information and trying to figure it all out. You are so wonderful and patient and helpful! I love all of you!
Okay to my question.
Do seizures look like shivers? My DS (30 months) has several struggles
-verbal apraxia
-sensory integration disorder
-hypotonia
-? GERD
-eating difficulties
-he signs pain and then points/touches/kisses his legs and sometimes also his head - no cause for the pain can be found, but it keeps him up at night
-his toes have been progressively pointing in more and more
-he has started stiffening his fingers in strange positions while walking
-before I was taught how to brush him, he had 25-40 tantrums a day and would hit himself and throw himself on the floor
Doctors have asked me if he has seizures and I have always said no, but now I am not sure.
At speech therapy on Friday morning DS sat in front of the therapist on a mat. I noticed DS (? 1 sec) shiver about 4-6 times over about 3-5 minutes. I wasn't paying much attention and I really don't know how long or how many. I didn't think it was cold. I mentioned to the therapist that I was surprised that he was shivering. It was just weird. The last time he did it she commented about it and kinda asked what he was doing. I said shivering. I thought that was a silly question at the time. Now I want to talk to her again and ask why she asked me. I want to know what she was thinking. She also commented several times that he looked really sleepy. I then looked at his eyes and thought he did look sleepy. I thought that was strange but passed it off as nothing. Now tonight my mommy brain is worrying and I can think of times in the past that he has shivered repeatedly and it looked strange. I don't know why I thought it looked strange. I don't remember anything specific about his eyes.
He zones out often, but I never ever thought of that as a seizure.
I want to get this all straightened out for him. I am at least an hour away from any cities. We have very little resources and I am not sure what to do. Getting into specialists has been very hard and time consuming and therapies are hard to find. Our school district does not summer programs and most of my concerns have been during this summer so I have had no help. DS being in pain and my not knowing how to help him is bad. The pain does not affect his play, but it does affect his sleep. His sensory integration disorder has affected his pain response, he doesn't cry with blood draws and so I worry about how much damage he may not feel and how bad it might be and he doesn't feel it.
I am tempted to take him to Mayo or the Cleveland Clinic and just get a diagnosis so I know how to help him. I am so frustrated on not knowing what to do or where to turn. The speech therapist has never helped a child with apraxia before. We went to the Kaufman Center for a diagnosis, but that is HOURS away.
What do I do next? Is there a chance these could be seizures? What is causing all of this? Why? I just want it all to get organized and happen.