Global Apraxia - Mothering Forums

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#1 of 8 Old 11-09-2008, 01:19 AM - Thread Starter
 
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So, tell me about global apraxia. My son's DS says that she thinks I should mention it at my next eval with his Dr. Any thoughts, symptoms, stories, solutions, treatment options to share?
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#2 of 8 Old 11-09-2008, 07:39 PM
 
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dd2 has profound apraxia of speech and limb apraxia in her hands. She is just now starting to be able to string syllables together after nearly 3 years of speech therapy. She is, except for a few words, completely non-understandable to strangers.

I never noticed her limb apraxia because she had such a good pincher grasp and hand-eye coordination. But now it's obvious. She hates to color and when she does, she scribbles like a 2 year old. I worry about her future writing skills.

Global apraxia can cause coordination problems for bike-riding and other things of that nature. So, for instance, not being able to pedal a tricycle until the age of 4 for some kids.

I often write about it in my blog, and I have a list of resources in some posts on there. Any specific questions? I hope that helped some. How old is your son?

DD1 = 8 yrs *** DD2 = 6 yrs
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#3 of 8 Old 11-09-2008, 10:54 PM
 
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Can I ask where to start?

Ds6 is pretty soggy of limb, can't ride trikes, didn't speak till 3 etc... (Yes, I ought to have looked into it more, sooner, but keeping his BP dear older sibling from inflicting brain damage upon him has taken precedence. Sigh.)

Now that he's (sib) kind of stable, I've got to tend to the less 'squeaky wheel'- he's very bright, & I (having read only accounts of pretty severe apraxia, & gotten reassured when he began speaking in full sentences all of a sudden a la Thomas Sowell's 'Einstein' theory) was hopeful that his speech would improve... I *did* try to get him in a study at Vandy, I have read about the condition somewhat... (so no one thinks the poor kid just went unnoticed all this time!)

It's just that as an unschooler, it seems like all speech therapy seems to be dx'd through the school system (which I try to ignore as much as possible ), and once Vandy turns you down, & you turn School down , well, what is the most efficient way to get him started being evaluated for a dx, & by whom? (I didn't realize his speech was still so rough, till his bro was away & it became obvious how much I relied upon his skills as a translator .)

Better late than never (please be gentle, a BP kid is quite an extravaganza of energy drainage), & he *is* happy (other kids understand him & he is very popular socially), & brilliant besides (he'll kick your ass at chess!)

I'll be reading along & trying to keep up. Thanks for letting ultimate apraxia newbie me hang out in the thread.
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#4 of 8 Old 11-10-2008, 12:16 AM - Thread Starter
 
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My ds wil be 3 1/24/09. He was a late crawler (11 months), late walker (22 months) and didn't really roll until around 2 or so...

He would never nurse, had an aversion to biting into things (like bitting off a piece of cracker as opposed to popping it in his mouth.) He still does but does bite into softer stuff like bananas.

I have an aspie nephew, so this was my first concern. We have been to a developmental pedi, a psychologist, and had additional PT and speech testing done independent of early intervention at Children's hospital in Boston. They said that he isn't on the spectrum and only state he is delayed.

We are going to Children's on Thursday to see the Psychologist and will discuss Apraxia. I really don't know much else.

He has been in EI for gross motor delays (well that is what I called them for but found out he tested even further behind in communication -- just thought he was a quite baby ) since he was 10 months. He started with OT 2xs a month. We now FINALLY have him in a toddler group 1x per week for 2 hours, a developmental specialist weekly, a SLP weekly and OT 2x per month.

We begin testing starting tomorrow for transitioning from EI to the school district.

Any words of wisdom would be appreciated.
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#5 of 8 Old 11-10-2008, 12:42 PM
 
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DS has a dyspraxia as a feature of his autism. DS is currently 4.5 years old.

He has delays in fine motor skills, gross motor skills, and oral-motor. He had a lot of feeding issues in infancy and toddlerhood, such as being unable to nurse, problems transitioning to table foods, a lot of difficulty learning things like sucking a straw. He was delayed in sitting up, crawling, walking, etc. He never pulled his socks off as a baby. He didn't learn how to take his own socks off until he was 3.5 and he needed OT to accomplish this. He still can't dress or undress himself. It took us two years to teach him how to pedal his trike and even now he can only pedal downhill.

We've come to understand that it just takes DS a lot longer to learn motor skills than it does other kids. So we do a lot of practice, a lot of therapy, and try to have a lot of patience. He gets OT at school and privately. Also we keep him in swim class year round because we have found that this is a fun way to work on his coordination and motor planning.

Lolly
Mom to an amazing little guy, age 9 (Autism, Hyperlexia, Dyspraxia, Albinism, Chromosome Microdeletion)

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#6 of 8 Old 11-10-2008, 01:44 PM
 
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Ah, yes, milestones. Pulled to standing at 14 months, walked at 18 months, potty-trained at 4 years and change. Needs help with clothing to potty, still. I still cut her food smaller. Not crazy small, but chunks.

Apraxia is generally diagnosed by a developmental pedi or a neurologist.

I'm sure you'll have more questions after Thursday. We'll be here!

DD1 = 8 yrs *** DD2 = 6 yrs
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#7 of 8 Old 11-10-2008, 08:32 PM
 
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Brendon chokes a LOT on liquids, and of course he still isn't talking (at 26 months). The Dev Spec is pushing for OT, and we're thinking apraxia, too.
Do I sound logical or like a worry wart?
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#8 of 8 Old 11-10-2008, 08:59 PM
 
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Feeding issues are very common with global or speech apraxia.

DD1 = 8 yrs *** DD2 = 6 yrs
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