Confirmed momo - Mothering Forums

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#1 of 8 Old 12-18-2009, 06:08 PM - Thread Starter
 
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well, as confirmed as they can be... the tech and the doc spent forever looking for a membrane but there does not appear to be one. we were prepared to hear this and i fully expected for them also to talk about inpatient monitoring but instead the doctor told me about daily monitoring at my local hospital (which doesn't even have a nicu). as wonderful as it sounds to be able to stay at home with my family, i'm worried that they are not careful enough and that i would be making a bad decision by not pursuing inpatient monitoring. so now i'm just confused and thinking about a second opinion at a hospital that would actually be a little closer to home however i need to get a referral from a doctor i've never even seen to go there.... the system is so complicated. anyway, that's the bad news and the good is that my boys are looking healthy and normal and measuring a little ahead!

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#2 of 8 Old 12-18-2009, 08:29 PM
 
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Oh man, I'm so sorry! YAY for healthy boys though!!! I'm really hoping you can carry them close to term safely. I know zero about momo twins so I'll let someone else chime in about ideas on what you can/should do. I've seen the momo support site online referenced before so many dig in there and see what you can find.
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#3 of 8 Old 12-18-2009, 10:11 PM
 
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Sorry to hear that! But like Intertwined, I am glad that they are looking healthy. You can do it mama!

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#4 of 8 Old 12-19-2009, 12:02 AM
 
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I'm so glad that your boys are healthy and growing strong! I really wish that I had some sort of advice on the momo but there has to be information here somewhere. Sorry to hear that though- I know you were really hoping otherwise!

Valerie, wife to Kevin, mother to Elena (4), Jonathan (2), and twins, Andrew and Benjamin (2/2010)
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#5 of 8 Old 12-19-2009, 05:26 AM
 
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Do they mean daily monitoring to a certain point and then going inpatient or daily until delivery? You do want inpatient at a predetermined point so that you can do delivery if there is distress. I believe that is standard protocol for this? Was this a maternal/fetal specialist/someone with experience with momo? You need that.

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#6 of 8 Old 12-20-2009, 05:36 PM
 
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I'm glad your boys are doing well - and I'm so sorry they didn't find a membrane.

I would really, really encourage you to get that referral, and see an actual maternal-fetal specialist. The problem with momo twins is that they're really rare, and doctors who don't know much about them aren't going to give you proper treatment. They'll be tempted to treat them like di-mo's, which are more common. The statistics really show that inpatient monitoring after viability (usually somewhere from 24-28 weeks) significantly increases the odds of a live birth for momos.

I know this is scary, and I remember the strange feeling of voluntarily signing up for a hospital stay that I really didn't want to have. You're choosing to do something really hard, but it honestly is the only way to up the odds of your boys getting here safety. It's not a guarantee, but this is a very rare condition, and there's no cure but birth, and only monitoring is going to tell you when that birth needs to happen. It is NOT a normal twin pregnancy (as far as there is such a thing).

It used to be that momo twins had a survival rate of just 50%. Now, with the intensive monitoring, it's over 90%. That's a huge difference and, in my opinion, it makes the hospital stay and early delivery totally worth it. And I'm saying that as someone who did both, and hated doing both. It sucked. But it was so worth it, because my two little girls are here safely. I will never forget how their cords looked when they were born: twisted together over and over and tied in a true knot. And it's not even like when a singleton has a true knot: in this case, each end was attached to a squirmy baby, who could pull it tight at any time, just by rolling away from her sister.

So . . . yeah. Having been there, I encourage you to fight for proper care. Your boys deserve to be treated according to the proper standard of care for momos, and that's not outpatient - - not after viability, anyways.
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#7 of 8 Old 12-21-2009, 12:21 AM - Thread Starter
 
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my last appointment was with MFM... i was told that they do have experience with momo's but compared to the treatment plans of the women at monoamniotic.org, they seem very.... laid back? i have a meeting set up with a group of different doctors including the NICU docs, the perinatologist and a few others but it's not scheduled until 23 weeks and that is early for them to schedule this meeting. the doctor i talked to last week mentioned starting daily outpatient monitoring at 28 weeks which also sounds very late to begin monitoring and infrequent.

i'm going to work on getting a referral to another MFM group at a hospital a little closer to home (still an hour away). i just want to hear what they recommend for monitoring and if i do go inpatient, i would certainly be at the hospital closest to home (all things being equal).

i'd like to develop a plan soon since everything is up in the air right now. i'm not making any plans for myself after the end of january when i hit 24 weeks because i have no idea when i'm going to be hospitalized. everything is so crazy... i just wish it were april so we could deliver these babies!!!!

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#8 of 8 Old 12-22-2009, 01:37 AM
 
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Another momo mom here. I don't have time to write a proper response, but I wanted to introduce myself as another mom of momo twins. I went inpateint at 27 weeks and delivered at 33w, 5d. My boys are 10 months and healthy and happy.

Lots of support here and on momo board. I'll post more soon.

Babywearing, breastfeeding, Mother of MoMo twins and their older brother.
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