Thanks for the reply!
Yes, the reason for the bi-weekly ultrasounds were to keep an eye out for TTTS markers and any similar issues. My ultrasounds in the past were done at an MFM clinic by a sonographer, with an in-house peri who would go over the results with me after each one. He's the one who sent me to hospital at the 26-week mark.
Anyway, we've never met the diagnostic criteria for TTTS, as the fluid pockets have generally been within normal ranges and we can see two bladders, etc. Of course, TTTS could begin at any time, so they are keeping an eye out for that, but at the moment it simply looks like the smaller twin got a smaller portion of the placenta and is running out.
After the initial peri sent me to the hospital, the cord flow problem was verified, I was seen by my OB (who specializes in high-risk), given the lung development steroids, and sent home on modified bedrest (after having a neonatal consult and touring the NICU, which was frightening). I now go to the ultrasound room in the antenatal ward at the hospital every two days - my OB works out of there. These are all supervised directly by a peri (in the room with us) along with the sonographer, and then the peri discusses with my OB. On days that I don't go for an ultrasound, a nurse comes to my house to do a non-stress test and they report back to the same team.
I feel very much like you're saying - every day could be "the day". The team seems to be very reluctant to deliver before 28 weeks unless something grave happens (which is great), but they have already indicated they will be much less hesitant after that point. I think we all agree though that any time before 32 weeks involves quite serious risk. I haven't heard of a cord ligation - what is this, exactly?
I don't know exactly how to get a second opinion - I'm in Canada and our system is a bit different for that. I am already being seen by the best people in the city (this hospital is the centre for MFM in the area and has the highest level NICU, etc., and all the specialists work out of it already). My OB indicated that if things looked like they were going in the direction of delivery, the whole team (her, peris, neonatologist) would get together to agree before any action is taken, so I guess that's good.
I just feel like the whole thing is such a grey area, and I want to be absolutely sure we need to intervene before we do (obviously). I am trying to determine at what point IUGR actually harms the smaller baby. Right now he's very active and showing no signs of distress - possibly he is compensating well for the issues he's dealing with. I just don't want his life, long-term, to be compromised by anything I do or don't do, and dealing with that is really difficult.
Anyway, thank you so much for providing the information you did. I'm so happy to hear your pregnancy made it so long, and your boys are so healthy!
Mama to happy, beautiful twin boys and former preemies (29w2d), L and C, born 28/10/10.