Hi! I have monoamniotic twins. You pm'd me, I think, but for some reason, I just couldn't get the response thingy to work - sorry, not a techie-sort.
First off, know that the survival rates that you'll find on the web - the "only 50% of monoamniotic twins survive" just aren't true anymore. They used to be, but in recent years there've been a couple of studies that have found ways to prevent cord accidents (or minimize the damage) with momos. Most monoamniotic twins now survive, with a proper treatment plan.
Here's the problem though: the proper treatment plan is HARD. Totally worth it (and I"m saying this looking at my gorgeous girls who are lying on the couch in front of me as I type), but hard. Because your twins share a sac, they can (and probably will) get their cords horribly tangled. No other twins do this (well, conjoined twins share a sac, but can't really tangle their cords), so it can't be managed like other twin pregnancies. Current treatment is to stick you in the hospital at 28 weeks (or wherever you're willing to consider the line of viability), on 24/7 fetal monitoring, and deliver you (if nothing goes wrong) by 32 or 34 weeks. After 32-34 weeks, risk of a cord accident gets greater than risk of leaving them in (due to bigger, stronger babies).
The point of the 24/7 monitoring is to catch a cord accident as soon as it happens and get them out immediately.
And yes, it has to be c-section, again, due to the tangling of cords.
I know, it's probably not what you wanted to hear. When I found out about the girls' momo status, I cried so hard I gave myself contractions. But, again, it was worth it. I did the hospital stay, the c-section, the NICU stay, the whole bit and it was awful, but it's over, and I have two beautiful, healthy girls. (Who had completely knotted cords. It was amazing.)
And I'd encourage you with two things: 1) even if it's a medicalized pregnancy and birth, once that's over, it's over, and you can go completely back to your AP parenting style. 2) Misdiagnosis of monoamniotic twins is incredibly high. It's easy to miss the amniotic barrier. Make sure you get a second opinion, from a maternal-fetal specialist, on a high-resolution ultrasound machine (normal ultrasounds can miss the membrane).
And I'd recommend monoamniotic.org, because you can talk to lots of other women who've been there. They were really encouraging to me during my pregnancy. (And they even have a forum for people who've been misdiagnosed!)
As for nursing . . . well, we're still working on that one! My girls nurse every other feed, but never enough to fill them up. They're still lazy, sleepy nursers. But I keep trying, 'cause I nursed my older ones too, and I'm determined these little ones are going to learn! (Lord willing!) But I'm pumping, and aside from a bottle a day of preemie formula (for the extra calories), they're getting breastmilk with all those good immunities. And some other monoamniotic moms I talked to said that it just took a good few weeks past due date for theire babies to figure out nursing, but that they did, eventually, and then nursed for AGES. So I'd say there's hope there too.
You can find the studies I referred to at monoamniotic.org, I think.
So, yeah, it's not an easy road, at all. But it's a good one. I mean, there are beautiful babies waiting for you at the end of it! Again, congratulations. You can do it.