I haven't been around since Ruby June was born, and this is why:
I don't remember if I have talked very much about my older daughter Meadow, and her issues. She was born with congenital glaucoma among other issues, and has had over a dozen surgeries to try and correct her vision. She has partial vision in one eye, and is doing very well, but her first year was a whirlwind of drs, specialists tests and surgeries. her other issues are musculo-skeletal, and she has undergone extensive testing to figure out if she has agenetic syndrome that would occur in our future children. The consensus was that it was a random mutation, and would be unlikely to happen again. We went into this pregnancy knowing there was a very very slim chance of it happening again, and I was nervous, but truly believed that things would be fine.
Well...they're not. Ruby June was born with cataracts, which is a congenital eye condition related to the problems Meadow was born with. So far she doesn't appear to have any of the muscular or skeletal problems, and cataracts is much easier to deal with than Meadow's eye issues. But it still means a long road of surgeries and clinical follow ups over her lifetime, and she may never have normal eyesight.
Her first surgery is set for next Wednesday, and luckily it is at a hospital only 2 hours away (Meadow;s hospital is 9 hours away).
So, we could use your prayers and support. I don't know what this means yet, I am just enjoying each day and taking it as it comes right now. I am grateful that there is so much the doctors can do for her, but I just hate that she has to go through it at all. Thanks for listening - I'll update after the surgery.
I will keep your little one close to my heart. I'm so sorry. She's so lucky to have such a dear competent mama... Thinking of your family in warmth and light....
Blog in profile*Sea turtle mother to 5 boys, and a beautiful rainbow girl !!!! married to my best friend& enjoying my pup .Lost our little twins *Simon&Alexander* in 2009
Birdie, so sorry to hear this; wishing Ruby June a good and successful operation and a speedy recovery. I will keep you and your family in my thoughts.
Working Mom to DS1 (05/09) and DS2 (08/11).
So sorry to hear this news. Will add her to our prayer list. Praying for the Lord's guidance over the surgeon's hands as he works on Ruby's cataracts. Praying for a smooth recovery as well.
Becky, momma to Rafe 8/2/2011, wife to Sky & mom to our corgis.
Genetics are so fickle. I am sending you the hugest hug I can muster, b/c I know (somewhat) the feeling of having it all be out of your control.
I am definitely going to keep miss Ruby in my thoughts, and Meadow too, b/c her journey was a rough one, too. And you, mama, I'll send you strength, courage, and patience. Know you'll all be in my thoughts.
Is there any genetic testing they can do to figure out what is potentially causing these issues for your children?
Carrie SAHM to Nora Caitlyn ('08) and Finnley Dax ('11) homebirthing, breastfeeding, babywearing, intactivist, doula mama!
Wife to DH , mom to DS (4/09), and DD (8/11), and crafty and hardworking in my own right! In my parenting journey I've , , , , and. To each family their own!!
"There are words for people like me, but I don't think there are very many."