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Old 07-11-2013, 06:02 PM - Thread Starter
 
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Do you have any experience in helping with nutrition for children with PKU?


Amy, SAHM to 6yo Nadia and 2mo Darcy and Penelope

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Old 07-11-2013, 09:59 PM
 
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Gosh, I don't. I do know that children can still partially breastfeed, with Phe levels being monitored.

 

Since it's common for medical establishments to be behind on the newest studies, here's a link to what appears to be a good summary of current advances and knowledge:  http://www.nutritionandmetabolism.com/content/9/1/7   (let me know if you can't see the full-text here).

 

Good luck to you and your little one. The silver lining is that a PKU diet tends to be very heart-healthy (but see the fatty acid concerns in the paper I referenced).


Linda F. Palmer, DC
"The Baby Bond"
www.BabyReference.com
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Old 07-12-2013, 12:18 PM - Thread Starter
 
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Thank you for the article. 


Amy, SAHM to 6yo Nadia and 2mo Darcy and Penelope

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