alopecia areata - Mothering Forums

Forum Jump: 
 
Thread Tools
#1 of 15 Old 02-18-2014, 08:26 AM - Thread Starter
 
Inesteoynoel's Avatar
 
Join Date: Feb 2014
Posts: 28
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

Hi

 

I'm a mother  of two with  number  3  on  the  way. My  DD  (aged  7) has  ad  alopecia areata  since she  was  4. It  is  a  mild-moderate form... she  is  often  fine  and   sometimes  has  bald patches, particularly  in  spring.... then  it  all grows  back in summer...  then  in  winter  maybe  she  gers  one patch...  and  it becomes worse  in  spring  with  maybe 4-5  patches.

 

I  recently  had her  tested for  allergies (none) and  food  intolerance (we  are  supposed to remove chicken,tomato and  cow milk  from  her  diet, starting now). 

 

Her  blood  tests  are otherwise totally  fine and  she  is a  very  healthy child,  except from very moderate atopic reactions on  face/arms from time t time.

 

Anyone  dealing  with  this out  there? 

 

She  is  currently  taking  biotin  and  zinc  phosphate  following  orders from doc

 

Thank  you

Inesteoynoel is offline  
Sponsored Links
Advertisement
 
#2 of 15 Old 02-19-2014, 08:55 PM
 
tracyamber's Avatar
 
Join Date: May 2011
Posts: 3,741
Mentioned: 192 Post(s)
Tagged: 0 Thread(s)
Quoted: 69 Post(s)
Anyone else have any experience to share?
tracyamber is offline  
#3 of 15 Old 02-21-2014, 01:19 AM - Thread Starter
 
Inesteoynoel's Avatar
 
Join Date: Feb 2014
Posts: 28
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thank u Tracey my girl seems to be the only one out here dealing with this...
Inesteoynoel is offline  
#4 of 15 Old 02-21-2014, 05:06 AM
 
fisherfamily's Avatar
 
Join Date: Dec 2013
Posts: 365
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My niece went through about a year of loosing patches, but it stopped.for.her after that. It turned out that she waa very stressed about going to kindergarden.

And one of mine.had really thin hair for a while when she was 2-3 after it having been much thicker. We had been pretty sick, and apparently a virus can cause that. After about a year it started getting thick again.

So, I don't really have much to offer, other than does it coincide with stressful times? And did it come on the first time after an illness? It's a long shot, but I wonder if something like Lyme disease can lie dormat and cause periodic hair loss.

One other thought. Women can loose tons.of hair because of hormonal shifts. Maybe checking those, and her thyroid would help.

Good luck!
fisherfamily is offline  
#5 of 15 Old 02-21-2014, 06:01 AM - Thread Starter
 
Inesteoynoel's Avatar
 
Join Date: Feb 2014
Posts: 28
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thank u! The thing is that with her it comes and goes ...
We have checked her thyroid..it is fine ... I don't think Lyme disease is a concern where we live... South of Spain...
I can't associate it with stress... Or illness..
Thank you so much for your input!!!
Inesteoynoel is offline  
#6 of 15 Old 02-21-2014, 06:03 AM - Thread Starter
 
Inesteoynoel's Avatar
 
Join Date: Feb 2014
Posts: 28
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
The first time it did come after an ear infection, I just remembered... Luckily for us she is the healthiest girl on earth! Virtually never gets sick!
Inesteoynoel is offline  
#7 of 15 Old 04-16-2014, 12:13 PM
 
jplace82's Avatar
 
Join Date: Apr 2014
Posts: 3
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
I posted this on another thread yesterday:
I'm at a loss right now....My soon to be three year old was recently diagnosed with Alopecia. It seems to be affecting her entire scalp and now her eyebrows. Her hair was sort of thin and never grew very fast. I also noticed that the first 1/8" of her hair from her scalp was nearly colorless about 6 months ago. On March 31 (yes this March) she developed a fever blister. Three days later her hair began shedding ...a lot. It continued to shed and on April 8th I took her to see her pediatrician. He diagnosed her with Alopecia and said it may grow back ...or it may not. So, needless to say I was very confused and upset! The following morning I took her to see the dermatologist. She also diagnosed her with Alopecia. She asked if anyone in our family had Alopecia. I told her no, but we do have family members with autoimmune disorders (addisons disease, Thyroid disease, diabetes type 1, and celiac.) The dermatologist did some blood work (TSH, CBC) and all came back normal. She prescribed us a prescription steroid oil (to use on her scalp 1x/day) and told us to follow up in a month. I'm just devastated! This all happened so fast! I just wish her hair would stop falling out. She's nearly bald now.
jplace82 is offline  
#8 of 15 Old 04-16-2014, 12:48 PM - Thread Starter
 
Inesteoynoel's Avatar
 
Join Date: Feb 2014
Posts: 28
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Just wanted to say I so know how you feel. In my daughter's case this has been going on and off for three years now... And she also started some heavy shedding yesterday...
Be positive... It can grow back!
Be strong for her... You must be the rock for her to lean on. That is what I tell myself
Big hug
Inesteoynoel is offline  
#9 of 15 Old 06-16-2014, 05:51 AM
 
MamaOutThere's Avatar
 
Join Date: Apr 2007
Posts: 291
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Hi,

My daughter was diagnosed at 6. At that time, she had a large bald spot in the back of head. Now, at 8 1/2, she has a growing bald patch on the side of head, above the ear. It doesn't show much except at ballet where she puts her hair up in a chignon. There is also a general all-over thinning.

I was actually coming here to ask if anyone knows of a connection between this and skin problems. She developed molluscum contagiosium last summer -- still trying to get rid of it -- and very recently developed a particularly ugly case of eczema on her elbows, knees and feet. I'm sort of wondering it all isn't to do with an immunity (or auto-immune) issue.

Do you worry about her losing all her hair? I do. She has beautiful, long, curly hair. Of course, it doesn't define her (I myself had short, short hair -- besides losing it all for cancer and not giving a hoot, except that I would be able to start all over! -- and so does my elder daughter) but it is a part of who she is, you know?

By the way, yes, my daughter is also very healthy and has very rarely been ill in her life.
MamaOutThere is offline  
#10 of 15 Old 06-16-2014, 06:03 AM
 
MamaOutThere's Avatar
 
Join Date: Apr 2007
Posts: 291
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Interesting: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2763714/

It's all there: AA, molluscum, eczema...

Looks like I need to get her iron levels and a thyroid screen.

Does your daughter have any other symptoms?
MamaOutThere is offline  
#11 of 15 Old 06-16-2014, 06:31 AM
 
waywornwanderer's Avatar
 
Join Date: Jun 2012
Location: Central Pennsylvania
Posts: 324
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 3 Post(s)
Quote:
Originally Posted by jplace82 View Post
I posted this on another thread yesterday:
I'm at a loss right now....My soon to be three year old was recently diagnosed with Alopecia. It seems to be affecting her entire scalp and now her eyebrows. Her hair was sort of thin and never grew very fast. I also noticed that the first 1/8" of her hair from her scalp was nearly colorless about 6 months ago. On March 31 (yes this March) she developed a fever blister. Three days later her hair began shedding ...a lot. It continued to shed and on April 8th I took her to see her pediatrician. He diagnosed her with Alopecia and said it may grow back ...or it may not. So, needless to say I was very confused and upset! The following morning I took her to see the dermatologist. She also diagnosed her with Alopecia. She asked if anyone in our family had Alopecia. I told her no, but we do have family members with autoimmune disorders (addisons disease, Thyroid disease, diabetes type 1, and celiac.) The dermatologist did some blood work (TSH, CBC) and all came back normal. She prescribed us a prescription steroid oil (to use on her scalp 1x/day) and told us to follow up in a month. I'm just devastated! This all happened so fast! I just wish her hair would stop falling out. She's nearly bald now.
Don't despair! I have AA- around that age, I was almost completely bald. My treatment plan was similar to your daughter's, with coal tar shampoo as well as iron and zinc supplements.

Nothing worked with tremendous efficacy, and I had off/on bald patches until early puberty. (Note: stress was a big trigger for me, as well as dairy.) When puberty hit, I struggled less with hair loss.

Now, I'm 25 years old and I do experience more hair loss than most, but no visible bald patches. I don't do anything in particular other than try to eat a healthy diet and manage my stress levels.

Good luck to all! Auto immune disorders are so poorly understood, and I know how frustrating/maddening it probably is to see your kiddos struggle with hair loss.

24 years old. Central PA. Married to a medical student. DD1 - Valentine's Day 2013. treehugger.giflactivist.gifcaffix.gifdelayedvax.giffamilybed1.gifwhale.gif
waywornwanderer is offline  
#12 of 15 Old 06-16-2014, 07:29 AM - Thread Starter
 
Inesteoynoel's Avatar
 
Join Date: Feb 2014
Posts: 28
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
hI to all!
Yes hair loss in children is really devastating...
My daughter currently has one patch above her ear like yours and one on the back...the ear one is already covering up but I am more concerned about the other...

Of course I worry about her losing it all! I worry about that almost every day... She has amazing hair...really thick and wavy..and a beautiful golden shade of blonde.
My daughter also has skin issues...she has very mild atopic eczema. I do too though and I hardly
ever lose hair...
She is taking iron and biotin supplements.doesn't eat dairy tomatoes and chicken as blood test results showed she was intolerant.

No thyroid issues or any others really.

Thank you all for sharing your experience
Big hug
Inesteoynoel is offline  
#13 of 15 Old 06-17-2014, 05:49 AM
 
MamaOutThere's Avatar
 
Join Date: Apr 2007
Posts: 291
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My daughter's hair is getting really thin. When I look at her head I can see not bald spots but, you know, her scalp, as if she had several part lines, kwim? It's not straight or delineated, just visible scalp.

She's starting at a new school in a new country next Autumn, and I'm worried.

I'll be in home in the States in two weeks. I think I'll show her to my mom's nurse.
MamaOutThere is offline  
#14 of 15 Old 06-17-2014, 08:08 AM - Thread Starter
 
Inesteoynoel's Avatar
 
Join Date: Feb 2014
Posts: 28
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Maybe it is seasonal shedding... Is it thin everywhere or just the hairline??? Mine had a big loss all over her hairline last year and it got better with minoxidil and clobetasol.
Does she lose a lot of hair when you brush her hair? Is she taking biotin and zinc supplements?
I can also recommend doing the alcat blood tests... Removing things from her diet may also be good for her skin
Inesteoynoel is offline  
#15 of 15 Old 06-17-2014, 10:28 AM
 
Miss Muffet's Avatar
 
Join Date: Jan 2014
Posts: 14
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Btdt

My daughter had a bout of it after a tick bite. The dermatologist said it was a form of alopecia but had never heard of a tick causing it.

He prescribed a cream that we had to apply twice a day. It took about 4 months for the hair to start to re- grow.

The way it was described to me, the immune system (white cells) freaked out over the tick bite, the intruder. The army of white blood cells couldn't find the intruder and over reacted in their search and was clearing out the hair in its search. The cream was to tell the white cells to chill out - the intruder is gone- stop over reacting. Clobetasol - I think was the cream name, or something similar.

I know that description is completely unscientific, but I hope there is something in there to help. It took about 6 months for everything to be completely 'normal' again.

Last edited by Miss Muffet; 06-17-2014 at 10:29 AM. Reason: Add info
Miss Muffet is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off