Gina, I don't know if I have antiphospholipid syndrome or not. How did they test for this? I have been wondering about this for the last year since reading about this syndrome. Let me give you a little history.
I have had 4 previous unexplained miscarriages possibly more that I didnt know about. I did have a dd that was term no probs at all in the middle of all these miscarriages. The last time I was pregnant, at 7 weeks I developed a blood clot in my subclavian vein and my external jugular vein and was put on blood thinners for the duration of my pregnancy and while breastfeeding. They could not figure out why I got the clot in my chest and neck and had never heard of this except in people who do weights. (which I do not do) I was on heparin and had a subcutaneous pump that I had to change the site of every 2-3 days which sure beats getting stuck 3-4 times a day. Once my bloodwork was fairly stable, (they liked my ptt to be around the 40's to 50's if I remember correctly) I had to go once or twice a week to get labwork (usually Mon. and Fri.) If my ptt was not within limits I had to adjust my heparin level and go again the next day and so on until it was what it was supposed to be. (this was quite often) The heparin is safe to use while pregnant because the molecules are so big it cannot cross through the placenta.
I now take a baby aspirin a day as suggested by my dr. I am very curious if I do have the antiphospholipid syndrome though.