antiphospholipid syndrome - Mothering Forums
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#1 of 2 Old 06-29-2012, 08:42 PM - Thread Starter
 
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Hello,

I have a co-worker who has had multiple miscarriages and the recent doctor she saw thinks antiphospholipid syndrome may be the cause of it. Has anyone experienced this? The doctor wants to treat her as if she has it even though the test results have not confirmed it. He also advised her that due to her multiple ectopic pregnancies she has a 35% chance of death if he treats her according to his plan.

 

My questions are:

Has anyone experienced this?

If so, how did you treat it?

Do you know of any natural treatments that have success without the risk of blood thinners the doctor wants to prescribe?

 

Thank you for your input! She is hoping to hear something positive from me after posting about it here. love.gif

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#2 of 2 Old 06-30-2012, 12:05 AM
 
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Um she should get a new doctor. I have APS.

 

I am assuming the reason he says she might die is because the blood thinners could cause her to bleed out if her tube bursts. This is easily managed by monitorining her early pregnancy closley to make sure the pregnancy is not ectopic.

 

Also lovenox instead of heparin. It leaves the system much faster. I didn't start my lovenox until 7 weeks. Baby aspirin daily too.

 

If you don't mind me asking. How far along were her losses?

 

Also doctors are APS testing stupid. I tested positive for a lupus anticoagulant and then did not test positive again. Then they did two more tests which were negative for it. I finally got my reccords and saw that my cardiolipin was off the charts in all of the tests! Which shows that I have it. The doctors had not learned yet that this is also an aps antibody. It took me many specialist and many obs to find one that would help me.

 

I have my son now and miss my other babies terribly. PM me if she wants someone to talk too. Its a rough road but totally managable.

 

It sucks though finding a doctor who will whole heartedly help you and not try to cut corners.

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