7 Miscarriges - No answer - Mothering Forums

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#1 of 10 Old 07-11-2013, 07:59 PM - Thread Starter
 
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Hi Ladies!
My best friend just called me this morning to tell me she had her 7th miscarriage ;(  I feel so bad for her, its just not fair and I truly wish I could do something to help, I did some research, but decided to ask here since you ladies are so knowledgeable and some going through a similar situation.
Here's the story:
My best friend live in Brazil, she's 34yo have been ttc her very first child for 6-1/2 years.
all of her 7 miscarriages was under 8weeks
after the 3rd miscarriage her ob/gyn sent her to see a RE and also a immunologist did many many tests all came back normal until her 5th miscarriage she tested positive for V Leiden (FVL) had been treating since with the meds/shots...
we all thought ok now we know the problem and she can treat to hopefully a full term pregnancy and finally a baby, then she miscarry again... and now the 7th she had a missed miscarriage at 6 weeks.
It's heartbreaking, why her doctors are not finding anything?? any of you ladies had have something like that happened and found the problem? I just wish I knew the answer :(
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#2 of 10 Old 07-12-2013, 09:46 AM
 
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Well I'm living it. Honestly, it doesn't bode well that shes never had a full term birth. The answer is to keep asking the questions. She needs to keep getting a second opinion and then a third opinion and then a fourth opinion and so on. There are no easy answers and everyone's story and causes are different.

And everything's different depending on where you go. One doc will swear that such and such is bologna and the next will swear its the answer. So she has to be her own advocate and, really, her own doctor. Research a problem and find a doc to run the tests. Find another possibility and run out that diagnoses. Rinse and repeat. Hopefully she'll stumble on an answer along the way.

It's not a road for everyone. For some people alternate ways of building their family such as adoption or a surrogate are the right answer.

I'm sorry I'm not more positive, but there are no easy answers. Lots of hugs. hug.gif

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#3 of 10 Old 07-15-2013, 06:58 AM
 
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Completely agree with Xerxella. Keep asking questions and definitely get 2nd and 3rd opinions INCLUDING opinions from practitioners who are willing to look beyond western medicine and what has been clearly "proven" scientifically. For me, it took finding a new OB who thought that my long string of miscarriages could be due to gluten intolerance. My RE thought it was bunk and the scientific literature is inconclusive on the subject. However, when I tested as intolerant, I was willing to try anything. After six months of being gluten free, we tried again and I am now 36 1/2 weeks pregnant. There are answers out there. It is just a matter of finding practitioners who will keep and open mind and search with you.
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#4 of 10 Old 07-15-2013, 12:41 PM
 
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Yes to what alpha said. I'm beginning to believe that autoimmune and alloimmune issues are a significant factor in many women with severe recurrent pregnancy loss.

Married to one of the last good guys left Jim
Mom to AJ 4/07 and Genevieve 5/09

And then: I'm really, really tired of making angels.

But wait, could it really be true?


The whole story at: www.xerxella.blogspot.com
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#5 of 10 Old 07-16-2013, 12:54 PM
 
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I agree with everything Xerxella and Alpha posted.  I also have a friend with FVL and she was able to carry to term with daily heparin shots.  The fact that your friend is getting treatment during pregnancy and still miscarrying would lead me to believe that there is something else happening too. 

 

Has she had her thyroid checked?  I have been fighting this IF fight for 13 years now and gotten many misdiagnoses and been down many rabbit trails.  We are just finally starting to hit the tip of the iceberg on what may be causing my problems.  If she has any symptoms of hypo/hyperthyroid, you might suggest that she push for testing.  Although alot of doctors will say you are 'within normal ranges' and leave it at that.  But I developed thyroid cancer all the while being within normal ranges.  dizzy.gif

 

Stop the Thyroid Madness is a great resource for her to check out to see if thyroid or other adrenal issues might be part of the problem.  It also gives her guidance on tests to request and how others have pushed for a diagnosis and proper treatment. 


~T | head-strong ap mama to 2 fur-kids | TTC since 2001 | remembering 8/00, 5/04, 1/07 & fur-kids, Apollo (04/03-12/09), Bella (04/06-06/12) & Keevah (06/03-04/14)
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#6 of 10 Old 07-19-2013, 03:03 PM
 
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It's difficult to say without knowing what testing she has had done already, but provided her/her husband's karyotypes are normal, and that chromosomal issues with the babies have been ruled out, then I'd say a specialist reproductive immunologist is needed. 

Brazil is actually fairly forward in terms of treatment with IVIG, LIT, etc.  Perhaps she could find a doctor who follows the Beer protocol - even if she has to look outside Brazil.  I know I certainly can't get the help I need in Australia. 


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#7 of 10 Old 07-19-2013, 03:32 PM
 
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Quote:
Originally Posted by Xerxella View Post

Yes to what alpha said. I'm beginning to believe that autoimmune and alloimmune issues are a significant factor in many women with severe recurrent pregnancy loss.


Me too. Unlike OP I have a 5 year old, but I have also had 7 early losses (5 weeks-ish). We stopped TTC a couple years ago, and are on the waiting list for adoption. Recently we decided to give it about 6 months to TTC to see if maybe my immune system has calmed down. Most of my testing came back as normal but I do have an autoimmune disease which is why they think that the cause is autoimmune in spite of my tests. I am a little more relaxed now, because either way we get a baby, but it took a long time to get here.


Me(33), Mama to a crazy DD (6), Wife to a wonderful mountain man(32) BF my babe for 2 years.
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#8 of 10 Old 07-27-2013, 07:21 AM
 
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I had my son with no problems at 24 and have since had 3 mc. All of my testing was fine, too. Most commonly people suggest it might be gluten intolerance (though I tested negative for celiac and have no symptoms, so I doubt this), or maybe progesterone. My dr said he'll do progesterone injections next time I conceive, but the specialists said that is bogus. I am going to do it anyway. Do any of you believe the alkaline diet would have any effect? I didn't know what to ask for when I went to the specialist, either, so I just did the tests he suggested.

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#9 of 10 Old 09-14-2013, 02:07 PM
 
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I agree its probably bogus

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#10 of 10 Old 09-23-2013, 01:09 PM
 
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Quote:
Originally Posted by Xerxella View Post

Yes to what alpha said. I'm beginning to believe that autoimmune and alloimmune issues are a significant factor in many women with severe recurrent pregnancy loss.

 

I agree that seems like a good reason for it happening

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