Fertility Challenged Graduates Thread - Spring/Summer 2014 - Page 19 - Mothering Forums
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I'm Pregnant > Fertility Challenged Graduates Thread - Spring/Summer 2014
Xerxella's Avatar Xerxella 11:45 AM 08-19-2014
@tracyamber - we don't know much. The primary focus is to save baby A. I think the cerclage will be on time.

The fetal cardiologist happened to be in and did a detailed scan on B. His heart overall looks great. But, it did slow down into the 70's at one point during the scan. Very bad. But, it appears the hydrops is putting pressure on the heart, not the other way around. But, that still leaves us with the question as to why is the baby in hydrops? It comes down to 2 possibilities. Either, it's an inherent genetic problem or its caused by some sort of infection. Fifth disease, for instance, causes this. If it's a virus and he can fight it off, the hydrops may resolve on its own. If he can't fight it off....

If it's genetic, it depends what happens from here. If it gets better, he has a chance. If it gets worse or stays the same, he won't make it.

alivewithyou's Avatar alivewithyou 11:47 AM 08-19-2014
So sorry to hear @Xerxella .
tracyamber's Avatar tracyamber 01:07 PM 08-19-2014
@Xerxella the only way to know if it is an infection is to wait? Ugh, I'm so sorry mama.

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Xerxella's Avatar Xerxella 02:29 PM 08-19-2014
They'll test me tomorrow, but a lot of the tests come back negative even if it WAS an infection. My body handled it and cleared it quickly, but the baby is still managing it.
chuord's Avatar chuord 03:43 PM 08-19-2014
Hugs Xerxella! Sending energy and prayers xxx hoping they can make all ok
Tear78's Avatar Tear78 04:05 PM 08-19-2014
X, I'm so sorry. Hoping with you for the very best scenario. Keep us posted when you can.

Milk8, how are you doing? Any update on the possible appendicitis?
Milk8shake's Avatar Milk8shake 04:20 PM 08-19-2014
Damn this bullshit! @Xerxella you don't deserve this, and I'm angry. Really angry. My quick Googling tells me they need to determine the cause of the hydrops before they can determine possible treatments. I hope that they have referred you to a maternal fetal medicine specialist?

Re: cerclage, yes -I've done enough research to be an expert in the field. I wrote a whole bunch of details for you, and now I have deleted it. I"m sure you're freaked out, and maybe you actually want to listen to a real expert on this. But if you want my take, Facebook me.

My primary advice is to ask for progesterone shots to prevent preterm labour. It's common with cerclage/incompetent cervix. VERY IMPORTANT.
Xerxella's Avatar Xerxella 06:19 PM 08-19-2014
We know it's non-immune because I'm O- and DH is B+, I've had my rhogam shots everytime and with this last bleeding episode at 12 weeks, they did it again and checked to see if I had already build up any antibodies and I had not. I would think they'd check it again tomorrow. If not I'll ask them to along with my thyroid, which I understand can be a rare cause of hydrops.

Unfortunately, there's no one to refer me to. I'm already seeing an MFM. I've made a call to the best hospital in our area for a second opinion. I'll wait for the call back.

Right now we're classified as idiopathic, ie unexplained.

I facebook messaged you about the cerclage. Any information you can give me would be welcome. I've done NO research on it.

I still have progesterone from the ivf cycle, so I'll give myself an injection tonight and then ask the doc about it tomorrow.
monkeyscience's Avatar monkeyscience 08:17 PM 08-19-2014
X - Hopefully Milk will clarify, but I think the progesterone they give for preterm labor is different than the stuff you do at the beginning of an IVF pregnancy. But I may be wrong. Here's a link about it - they say it is actually not proven to help if you are carrying multiples, but I didn't dive into the details of that. I really hope they can figure out a way to help you and your babies. I was crying at my computer earlier. I want this to work for you so much (obviously not as much as you yourself do), and I hate feeling helpless. I'm sure you feel the same way. I'm always here to listen, and if there's somehow more I can do, let me know.
Milk8shake's Avatar Milk8shake 02:11 AM 08-20-2014
I don't really know if there is any progesterone difference - I don't know enough about IVF meds. But I'm just taking normal progesterone pessaries, and will move to injections at some point in the coming weeks. Regarding multiples, I'd say just because it's not proven, doesn't mean it won't work. I'd put that down to a potentially lesser sized research pool. Not that Monkey's link isn't valid, but I'd be going with the "can't hurt, might help" theory.

Hope you got my garbled FB message re cerclage. Sorry, but I was typing from work on my phone, so I hope it wasn't too hard to follow. The basic premise is that there are definite risks with a cerclage, but that the potential benefit is likely to outweigh the risk. Regardless, it's good to know what to expect.

I think it's great you got to see the cardiology specialist, but I also think a second opinion is the right move, even if you are in the hands of an MFM already. I'm definitely thinking of you - Google tells me it's 3am there, but I wouldn't be surprised if you are awake. I'll check in on my several nightly pee breaks tonight to see how you go tomorrow.
monkeyscience's Avatar monkeyscience 07:30 AM 08-20-2014
Thanks for clarifying, Milk. I thought you were talking about the progesterone shot that you only get a couple of times (I think). Anyway, I clearly don't know what I am talking about.
hope4light's Avatar hope4light 08:26 AM 08-20-2014
Ohhh X, I'm so so sorry. I'm hurting so bad for you right now. I'm keeping my fingers crossed that B is a fighter and will make it through. Please update us whenever you feel up to it. Big big big big group hugs are coming your way.
Xerxella's Avatar Xerxella 09:06 AM 08-20-2014
I think it's the regular progesterone. But, I'll find out more. I've read the studies on twins and progesterone and think that it's not proven prophylactically for twins. But, PTL is PTL. If B dies would it work then? Clearly, it's not that simple. I definitely think it's in the "couldn't hurt" category.

Right now I just hope A is a fighter and can survive through B's troubles.
monkeyscience's Avatar monkeyscience 09:36 AM 08-20-2014
Well, Tracy's son is living proof that survival is possible, which I think is pretty incredible. You tell your babies they have a big cheering section rooting for them!
Tear78's Avatar Tear78 09:44 AM 08-20-2014
X, DD was a twin and her twin didn't make it. I know how scary it is to wait and hope that at least one pulls through, because we were told we would just have to wait and see if my body would hold in to DD. I'm rooting for Baby A to hold on tight, and for Baby B to push through and be your second precious snugly. Huge, huge hugs during this scary time!

Ps - I hope that comes across as being empathetic and not a "story of hope" that just doesn't help. Sending you love!
tracyamber's Avatar tracyamber 01:34 PM 08-20-2014
When is the cerclage? Will you be staying overnight? Hugs

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tenzinsmama's Avatar tenzinsmama 02:39 PM 08-20-2014
Xerxella, just wanted to tell you that I have you and the babies in my thoughts... I hope you receive some answers soon.
Xerxella's Avatar Xerxella 07:03 PM 08-20-2014
Thank you all for your thoughts. I'm out of surgery. The doc was happy with one stitch and not so happy with the other. She was concerned about how short the cervix is. Now we just wait and see.
Sourire's Avatar Sourire 07:33 PM 08-20-2014
Hi guys, it's been a while since I logged in here. My baby girl has been keeping me busy! Being a mom is tough but I'm so happy

Silverbird - I'm so happy to hear about your BFP! Congrats!

Milkshake - I'm over the moon to hear that this pregnancy has made it further than any other! This baby sounds like a winner!

Xerxella - sorry you're in a stressful situation right now. I'm thinking of you and you babies, and I'm hoping so hard that everything works out.

Monkeyscience, tracyamber, everyone else... Hi!
iixivboots's Avatar iixivboots 07:43 PM 08-20-2014
Xerxella, I am so so sorry to read about all the complications with your twins. I hope you have a great care team. I know nothing can really comfort you or ease your worries except time. Really really hoping that you hear good news soon.
tracyamber's Avatar tracyamber 09:54 PM 08-20-2014

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Tear78's Avatar Tear78 10:58 PM 08-20-2014
Thinking of you, X!
tinytina's Avatar tinytina 06:36 AM 08-21-2014
Hi to everyone,

I am so sorry you are dealing with all this @Xerxella , hugs hun. And prayers
Silverbird's Avatar Silverbird 12:36 PM 08-22-2014
Xeralla: Thinking of you and both babies I hope they make it.

Sourie: Thanks

Hope everyone else is OK. I'm up and down. emotional then fine. tired then fine etc.
NaturallyMo's Avatar NaturallyMo 01:04 PM 08-22-2014
Thinking of you @Xerxella
thecoffeebean's Avatar thecoffeebean 01:15 PM 08-22-2014
Lots of love and prayers sent out for my friend @Xerxella <3
alivewithyou's Avatar alivewithyou 01:50 PM 08-22-2014
Also here praying for you @Xerxella . Hope you and both babies are doing well.
Xerxella's Avatar Xerxella 02:15 PM 08-22-2014
You guys are sweet coming here! Everything seems stable for now. It's just a waiting game. I'm excited to have found an article that supports progesterone use in twin pregnancies with a shortened cervix.

Here it is: http://www.dmc.org/prb

It links to the official AJOG article.

At least it supports my decision to do progesterone regardless of their "no studies on twins ruling".

But I feel like a thread-killer. What's going on with everyone else?
Milk8shake's Avatar Milk8shake 05:19 PM 08-22-2014
I have to say I'm thrilled you found and article that agrees with me! Of course at this stage in the game, I feel like I know much more than most doctors anyway. What did your doc have to say about it? Did you end up with shots?

I'm also pleased to see some old faces showing you the love X! You deserve it.

Hope everyone is doing okay. I haven't felt much like updating because of course my problems feel pretty insignificant in comparison. I'm probably not the only one!

AFM: a couple of 'milstones'. I got a doppler, and can confirm that 'Parasite' is still kicking. I was definitely worried that the heartbeat might have stopped after last scan and I actually didn't make it to the second trimester. My dad actually went big time out of his way to organize the doppler for me, which was really sweet. Given that I'm gonna be three weeks betweens scans this time, I'm grateful.

I am also officially out of the pregnancy closet at work. It's earlier than I intended, but I have had so much time off for illness and the cerclage, I think they were a bit worried. I've felt really bad being dishonest, especially when they have been concerned about me. Also, we have a reasonably social culture (read: drinks after work) and after staying sober for the last 4 or 5 work nights out, I was copping a lot of interest in my lack of alcohol consumption.

Considering that I work in IT, in a 98% male office, they were a LOT more enthusiastic and excited than I expected. None of them know my history, so the reaction was very different to most people's. They actually think that pregnancy=baby, and I was really overwhelmed at how happy everyone was for me! I got lots of hugs and kisses, which is highly unusual. It was nice...

I'm still very nervous and wonder if it was the right move, but it's kind of a weight of my shoulders too.
tracyamber's Avatar tracyamber 05:58 PM 08-22-2014
I like you story. Thanks for sharing. I got a doppler too and sometimes I can't find the heartbeat but when I wait a few minutes or come back later I find it. I'm happy all is going for you. @Xerxella
I love that everyone came out to give you support!!!!!!! Please keep us posted on the wait.
I have not been posting here much mainly because I don't have much to say and it's a bit quieter in here than I am use to being on the fertility challenged thread. I'm 15 weeks and my next appointment is on the 4 th . I still have not had a scan can you believe it. They are treating me like every other pregnant woman and though I understand, waiting for when I'm 21 weeks for my scan seems tortuous. On the 4 th I feel like I'm going to be twittling my thumbs because I won't be getting a scan then. My OB is and hour away and I'm considering calling them and telling them I will pee in the cup at our local hospital
and just schedule me for my 21 week scan. Err, ! Other than that our appraisal on our house was today and we will be contracting a worker next week to make repairs and hopefully we close on the 12th!!
Pretty much that's it . I'm like @Silverbird , one minute I'm fine and the next I'm not, emotionally and physically.

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