Fertility Challenged Graduates Thread - Spring/Summer 2014 - Page 19 - Mothering Forums

Forum Jump: 
 626Likes
Reply
 
Thread Tools
#541 of 788 Old 08-19-2014, 10:45 AM
 
Xerxella's Avatar
 
Join Date: Feb 2008
Location: Chicagoland
Posts: 2,006
Mentioned: 138 Post(s)
Tagged: 2 Thread(s)
Quoted: 43 Post(s)
Fertility Challenged Graduates Thread - Spring/Summer 2014

@tracyamber - we don't know much. The primary focus is to save baby A. I think the cerclage will be on time.

The fetal cardiologist happened to be in and did a detailed scan on B. His heart overall looks great. But, it did slow down into the 70's at one point during the scan. Very bad. But, it appears the hydrops is putting pressure on the heart, not the other way around. But, that still leaves us with the question as to why is the baby in hydrops? It comes down to 2 possibilities. Either, it's an inherent genetic problem or its caused by some sort of infection. Fifth disease, for instance, causes this. If it's a virus and he can fight it off, the hydrops may resolve on its own. If he can't fight it off....

If it's genetic, it depends what happens from here. If it gets better, he has a chance. If it gets worse or stays the same, he won't make it.

Married to one of the last good guys left Jim
Mom to AJ 4/07 and Genevieve 5/09

And then: I'm really, really tired of making angels.

But wait, could it really be true?


The whole story at: www.xerxella.blogspot.com
Xerxella is online now  
#542 of 788 Old 08-19-2014, 10:47 AM
 
alivewithyou's Avatar
 
Join Date: Nov 2013
Location: Salt Lake City, UT
Posts: 636
Mentioned: 132 Post(s)
Tagged: 0 Thread(s)
Quoted: 68 Post(s)
So sorry to hear @Xerxella .
alivewithyou is online now  
#543 of 788 Old 08-19-2014, 12:07 PM
 
tracyamber's Avatar
 
Join Date: May 2011
Posts: 3,616
Mentioned: 140 Post(s)
Tagged: 0 Thread(s)
Quoted: 51 Post(s)
@Xerxella the only way to know if it is an infection is to wait? Ugh, I'm so sorry mama.


Sent from my iPad using Tapatalk
tracyamber is offline  
#544 of 788 Old 08-19-2014, 01:29 PM
 
Xerxella's Avatar
 
Join Date: Feb 2008
Location: Chicagoland
Posts: 2,006
Mentioned: 138 Post(s)
Tagged: 2 Thread(s)
Quoted: 43 Post(s)
They'll test me tomorrow, but a lot of the tests come back negative even if it WAS an infection. My body handled it and cleared it quickly, but the baby is still managing it.

Married to one of the last good guys left Jim
Mom to AJ 4/07 and Genevieve 5/09

And then: I'm really, really tired of making angels.

But wait, could it really be true?


The whole story at: www.xerxella.blogspot.com
Xerxella is online now  
#545 of 788 Old 08-19-2014, 02:43 PM
 
chuord's Avatar
 
Join Date: Dec 2012
Location: Brisbane Australia
Posts: 1,773
Mentioned: 207 Post(s)
Tagged: 1 Thread(s)
Quoted: 28 Post(s)
Hugs Xerxella! Sending energy and prayers xxx hoping they can make all ok
adiejan likes this.
chuord is online now  
#546 of 788 Old 08-19-2014, 03:05 PM
 
Tear78's Avatar
 
Join Date: Nov 2008
Location: In Our Garden
Posts: 4,435
Mentioned: 8 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
X, I'm so sorry. Hoping with you for the very best scenario. Keep us posted when you can.

Milk8, how are you doing? Any update on the possible appendicitis?

Our little miracles are here!!joy.gif
energy.gif DD Born 7/15/11 biggrinbounce.gif DS Born 4/3/13
love.giflove.gif Keep growing healthy and strong, beautiful little fighter babies!!!

Auntie to Nell, Greta, Maggie, and Elsa!

Remembering our 3 losses
 

Tear78 is online now  
#547 of 788 Old 08-19-2014, 03:20 PM
 
Milk8shake's Avatar
 
Join Date: Aug 2009
Location: Australia
Posts: 1,751
Mentioned: 55 Post(s)
Tagged: 0 Thread(s)
Quoted: 9 Post(s)
Damn this bullshit! @Xerxella you don't deserve this, and I'm angry. Really angry. My quick Googling tells me they need to determine the cause of the hydrops before they can determine possible treatments. I hope that they have referred you to a maternal fetal medicine specialist?

Re: cerclage, yes -I've done enough research to be an expert in the field. I wrote a whole bunch of details for you, and now I have deleted it. I"m sure you're freaked out, and maybe you actually want to listen to a real expert on this. But if you want my take, Facebook me.

My primary advice is to ask for progesterone shots to prevent preterm labour. It's common with cerclage/incompetent cervix. VERY IMPORTANT.

          Me & him and our beautiful fur boys Duke and Chopz
Forever missing our little ones lost
 
How we survive, is what makes us who we are - Rise Against
 
***4***8***12***16**20***24*** 28***32***36***40
Milk8shake is offline  
#548 of 788 Old 08-19-2014, 05:19 PM
 
Xerxella's Avatar
 
Join Date: Feb 2008
Location: Chicagoland
Posts: 2,006
Mentioned: 138 Post(s)
Tagged: 2 Thread(s)
Quoted: 43 Post(s)
We know it's non-immune because I'm O- and DH is B+, I've had my rhogam shots everytime and with this last bleeding episode at 12 weeks, they did it again and checked to see if I had already build up any antibodies and I had not. I would think they'd check it again tomorrow. If not I'll ask them to along with my thyroid, which I understand can be a rare cause of hydrops.

Unfortunately, there's no one to refer me to. I'm already seeing an MFM. I've made a call to the best hospital in our area for a second opinion. I'll wait for the call back.

Right now we're classified as idiopathic, ie unexplained.

I facebook messaged you about the cerclage. Any information you can give me would be welcome. I've done NO research on it.

I still have progesterone from the ivf cycle, so I'll give myself an injection tonight and then ask the doc about it tomorrow.

Married to one of the last good guys left Jim
Mom to AJ 4/07 and Genevieve 5/09

And then: I'm really, really tired of making angels.

But wait, could it really be true?


The whole story at: www.xerxella.blogspot.com
Xerxella is online now  
#549 of 788 Old 08-19-2014, 07:17 PM - Thread Starter
 
monkeyscience's Avatar
 
Join Date: Feb 2008
Location: Bismarck, ND
Posts: 2,227
Mentioned: 55 Post(s)
Tagged: 0 Thread(s)
Quoted: 50 Post(s)
X - Hopefully Milk will clarify, but I think the progesterone they give for preterm labor is different than the stuff you do at the beginning of an IVF pregnancy. But I may be wrong. Here's a link about it - they say it is actually not proven to help if you are carrying multiples, but I didn't dive into the details of that. I really hope they can figure out a way to help you and your babies. I was crying at my computer earlier. I want this to work for you so much (obviously not as much as you yourself do), and I hate feeling helpless. I'm sure you feel the same way. I'm always here to listen, and if there's somehow more I can do, let me know.
tracyamber likes this.

Monkey (30) + Pirate (28) = a forever family (5/10) - Baby Bird (8/12), our long-awaited first, and one (9/13 @ 7w 6d); PCOS
*4***8***12***16***20***24***28***32***36**40** Oct 2014 - it's a
monkeyscience is online now  
#550 of 788 Old 08-20-2014, 01:11 AM
 
Milk8shake's Avatar
 
Join Date: Aug 2009
Location: Australia
Posts: 1,751
Mentioned: 55 Post(s)
Tagged: 0 Thread(s)
Quoted: 9 Post(s)
I don't really know if there is any progesterone difference - I don't know enough about IVF meds. But I'm just taking normal progesterone pessaries, and will move to injections at some point in the coming weeks. Regarding multiples, I'd say just because it's not proven, doesn't mean it won't work. I'd put that down to a potentially lesser sized research pool. Not that Monkey's link isn't valid, but I'd be going with the "can't hurt, might help" theory.

Hope you got my garbled FB message re cerclage. Sorry, but I was typing from work on my phone, so I hope it wasn't too hard to follow. The basic premise is that there are definite risks with a cerclage, but that the potential benefit is likely to outweigh the risk. Regardless, it's good to know what to expect.

I think it's great you got to see the cardiology specialist, but I also think a second opinion is the right move, even if you are in the hands of an MFM already. I'm definitely thinking of you - Google tells me it's 3am there, but I wouldn't be surprised if you are awake. I'll check in on my several nightly pee breaks tonight to see how you go tomorrow.

          Me & him and our beautiful fur boys Duke and Chopz
Forever missing our little ones lost
 
How we survive, is what makes us who we are - Rise Against
 
***4***8***12***16**20***24*** 28***32***36***40
Milk8shake is offline  
#551 of 788 Old 08-20-2014, 06:30 AM - Thread Starter
 
monkeyscience's Avatar
 
Join Date: Feb 2008
Location: Bismarck, ND
Posts: 2,227
Mentioned: 55 Post(s)
Tagged: 0 Thread(s)
Quoted: 50 Post(s)
Thanks for clarifying, Milk. I thought you were talking about the progesterone shot that you only get a couple of times (I think). Anyway, I clearly don't know what I am talking about.
monkeyscience is online now  
#552 of 788 Old 08-20-2014, 07:26 AM
 
hope4light's Avatar
 
Join Date: Feb 2008
Location: OH
Posts: 596
Mentioned: 25 Post(s)
Tagged: 0 Thread(s)
Quoted: 3 Post(s)
Ohhh X, I'm so so sorry. I'm hurting so bad for you right now. I'm keeping my fingers crossed that B is a fighter and will make it through. Please update us whenever you feel up to it. Big big big big group hugs are coming your way.
tracyamber likes this.


Me: 34, DH: 36, DD born 7/25/10 After 4 years of trying and failed IVF treatments (missing my angels).  IVF/ICSI worked this time! DS born 1/8/13!



www.3hearts2hold1love-emms.blogspot.com

hope4light is offline  
#553 of 788 Old 08-20-2014, 08:06 AM
 
Xerxella's Avatar
 
Join Date: Feb 2008
Location: Chicagoland
Posts: 2,006
Mentioned: 138 Post(s)
Tagged: 2 Thread(s)
Quoted: 43 Post(s)
Fertility Challenged Graduates Thread - Spring/Summer 2014

I think it's the regular progesterone. But, I'll find out more. I've read the studies on twins and progesterone and think that it's not proven prophylactically for twins. But, PTL is PTL. If B dies would it work then? Clearly, it's not that simple. I definitely think it's in the "couldn't hurt" category.

Right now I just hope A is a fighter and can survive through B's troubles.

Married to one of the last good guys left Jim
Mom to AJ 4/07 and Genevieve 5/09

And then: I'm really, really tired of making angels.

But wait, could it really be true?


The whole story at: www.xerxella.blogspot.com
Xerxella is online now  
#554 of 788 Old 08-20-2014, 08:36 AM - Thread Starter
 
monkeyscience's Avatar
 
Join Date: Feb 2008
Location: Bismarck, ND
Posts: 2,227
Mentioned: 55 Post(s)
Tagged: 0 Thread(s)
Quoted: 50 Post(s)
Well, Tracy's son is living proof that survival is possible, which I think is pretty incredible. You tell your babies they have a big cheering section rooting for them!
monkeyscience is online now  
#555 of 788 Old 08-20-2014, 08:44 AM
 
Tear78's Avatar
 
Join Date: Nov 2008
Location: In Our Garden
Posts: 4,435
Mentioned: 8 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
X, DD was a twin and her twin didn't make it. I know how scary it is to wait and hope that at least one pulls through, because we were told we would just have to wait and see if my body would hold in to DD. I'm rooting for Baby A to hold on tight, and for Baby B to push through and be your second precious snugly. Huge, huge hugs during this scary time!

Ps - I hope that comes across as being empathetic and not a "story of hope" that just doesn't help. Sending you love!
tracyamber likes this.

Our little miracles are here!!joy.gif
energy.gif DD Born 7/15/11 biggrinbounce.gif DS Born 4/3/13
love.giflove.gif Keep growing healthy and strong, beautiful little fighter babies!!!

Auntie to Nell, Greta, Maggie, and Elsa!

Remembering our 3 losses
 

Tear78 is online now  
#556 of 788 Old 08-20-2014, 12:34 PM
 
tracyamber's Avatar
 
Join Date: May 2011
Posts: 3,616
Mentioned: 140 Post(s)
Tagged: 0 Thread(s)
Quoted: 51 Post(s)
@Xerxella
When is the cerclage? Will you be staying overnight? Hugs


Sent from my iPad using Tapatalk
tracyamber is offline  
#557 of 788 Old 08-20-2014, 01:39 PM
 
tenzinsmama's Avatar
 
Join Date: Apr 2011
Location: Canada
Posts: 729
Mentioned: 3 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Xerxella, just wanted to tell you that I have you and the babies in my thoughts... I hope you receive some answers soon.

Me & DH ; DS (Aug 2010) ; DD1 (May 2012) ; DD2 (Nov 2013)
tenzinsmama is offline  
#558 of 788 Old 08-20-2014, 06:03 PM
 
Xerxella's Avatar
 
Join Date: Feb 2008
Location: Chicagoland
Posts: 2,006
Mentioned: 138 Post(s)
Tagged: 2 Thread(s)
Quoted: 43 Post(s)
Thank you all for your thoughts. I'm out of surgery. The doc was happy with one stitch and not so happy with the other. She was concerned about how short the cervix is. Now we just wait and see.

Married to one of the last good guys left Jim
Mom to AJ 4/07 and Genevieve 5/09

And then: I'm really, really tired of making angels.

But wait, could it really be true?


The whole story at: www.xerxella.blogspot.com
Xerxella is online now  
#559 of 788 Old 08-20-2014, 06:33 PM
 
Sourire's Avatar
 
Join Date: May 2009
Location: Canada
Posts: 1,491
Mentioned: 21 Post(s)
Tagged: 0 Thread(s)
Quoted: 3 Post(s)
Hi guys, it's been a while since I logged in here. My baby girl has been keeping me busy! Being a mom is tough but I'm so happy

Silverbird - I'm so happy to hear about your BFP! Congrats!

Milkshake - I'm over the moon to hear that this pregnancy has made it further than any other! This baby sounds like a winner!

Xerxella - sorry you're in a stressful situation right now. I'm thinking of you and you babies, and I'm hoping so hard that everything works out.

Monkeyscience, tracyamber, everyone else... Hi!
tracyamber likes this.

Me (32), married to DH (35)

3 years of TTC #1, M/C @ 6wks in May 2013 angel1.gif
Mom to Liliana born May 8 2014 bfinfant.gif
mdcblog5.gif www.babythehardway.com

Sourire is online now  
#560 of 788 Old 08-20-2014, 06:43 PM
 
iixivboots's Avatar
 
Join Date: Apr 2008
Location: AZ
Posts: 1,232
Mentioned: 41 Post(s)
Tagged: 0 Thread(s)
Quoted: 23 Post(s)
Xerxella, I am so so sorry to read about all the complications with your twins. I hope you have a great care team. I know nothing can really comfort you or ease your worries except time. Really really hoping that you hear good news soon.


ecstatic about BFP #2 after another round of Clomid,
TWINS!
EDD 2/15/2015
thrilled to welcome #1 after 17 months of ttc, 1 round of Clomid

DS LG  08/03/12
iixivboots is online now  
#561 of 788 Old 08-20-2014, 08:54 PM
 
tracyamber's Avatar
 
Join Date: May 2011
Posts: 3,616
Mentioned: 140 Post(s)
Tagged: 0 Thread(s)
Quoted: 51 Post(s)
@Xerxella
Hugs(())


Sent from my iPad using Tapatalk
Xerxella likes this.
tracyamber is offline  
#562 of 788 Old 08-20-2014, 09:58 PM
 
Tear78's Avatar
 
Join Date: Nov 2008
Location: In Our Garden
Posts: 4,435
Mentioned: 8 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Thinking of you, X!
Xerxella likes this.

Our little miracles are here!!joy.gif
energy.gif DD Born 7/15/11 biggrinbounce.gif DS Born 4/3/13
love.giflove.gif Keep growing healthy and strong, beautiful little fighter babies!!!

Auntie to Nell, Greta, Maggie, and Elsa!

Remembering our 3 losses
 

Tear78 is online now  
#563 of 788 Old 08-21-2014, 05:36 AM
 
tinytina's Avatar
 
Join Date: Dec 2006
Location: Canada
Posts: 534
Mentioned: 213 Post(s)
Tagged: 0 Thread(s)
Quoted: 15 Post(s)
Hi to everyone,

I am so sorry you are dealing with all this @Xerxella , hugs hun. And prayers
Xerxella likes this.

Me 28, DH 30 , 2 Kitties and working towards having Baby #1. 
“The past has no power over the present moment.” Eckhart Tolle
tinytina is offline  
#564 of 788 Old 08-22-2014, 11:36 AM
 
Silverbird's Avatar
 
Join Date: Dec 2008
Posts: 401
Mentioned: 7 Post(s)
Tagged: 0 Thread(s)
Quoted: 2 Post(s)
Xeralla: Thinking of you and both babies I hope they make it.


Sourie: Thanks


Hope everyone else is OK. I'm up and down. emotional then fine. tired then fine etc.
Xerxella and tracyamber like this.

Missing my dh everyday candle.gif and hoping there is a brighter future for me out there

Silverbird is offline  
#565 of 788 Old 08-22-2014, 12:04 PM
 
NaturallyMo's Avatar
 
Join Date: Mar 2013
Location: Atlanta, Georgia
Posts: 521
Mentioned: 33 Post(s)
Tagged: 0 Thread(s)
Quoted: 23 Post(s)
Thinking of you @Xerxella
Xerxella likes this.

Me (32) - DH (38) - DS (6) - Atlanta, GA
Expecting #2 in Dec 2014


I blog: allthingsandlife.blogspot.com
NaturallyMo is offline  
#566 of 788 Old 08-22-2014, 12:15 PM
 
thecoffeebean's Avatar
 
Join Date: Apr 2011
Posts: 1,403
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Lots of love and prayers sent out for my friend @Xerxella <3
Xerxella likes this.

Mama to Iris (01/10) and Gus (08/13)

Hoping for another miracle May '15
thecoffeebean is offline  
#567 of 788 Old 08-22-2014, 12:50 PM
 
alivewithyou's Avatar
 
Join Date: Nov 2013
Location: Salt Lake City, UT
Posts: 636
Mentioned: 132 Post(s)
Tagged: 0 Thread(s)
Quoted: 68 Post(s)
Also here praying for you @Xerxella . Hope you and both babies are doing well.
Xerxella likes this.
alivewithyou is online now  
#568 of 788 Old 08-22-2014, 01:15 PM
 
Xerxella's Avatar
 
Join Date: Feb 2008
Location: Chicagoland
Posts: 2,006
Mentioned: 138 Post(s)
Tagged: 2 Thread(s)
Quoted: 43 Post(s)
Fertility Challenged Graduates Thread - Spring/Summer 2014

You guys are sweet coming here! Everything seems stable for now. It's just a waiting game. I'm excited to have found an article that supports progesterone use in twin pregnancies with a shortened cervix.

Here it is: http://www.dmc.org/prb

It links to the official AJOG article.

At least it supports my decision to do progesterone regardless of their "no studies on twins ruling".

But I feel like a thread-killer. What's going on with everyone else?
adiejan likes this.

Married to one of the last good guys left Jim
Mom to AJ 4/07 and Genevieve 5/09

And then: I'm really, really tired of making angels.

But wait, could it really be true?


The whole story at: www.xerxella.blogspot.com
Xerxella is online now  
#569 of 788 Old 08-22-2014, 04:19 PM
 
Milk8shake's Avatar
 
Join Date: Aug 2009
Location: Australia
Posts: 1,751
Mentioned: 55 Post(s)
Tagged: 0 Thread(s)
Quoted: 9 Post(s)
I have to say I'm thrilled you found and article that agrees with me! Of course at this stage in the game, I feel like I know much more than most doctors anyway. What did your doc have to say about it? Did you end up with shots?

I'm also pleased to see some old faces showing you the love X! You deserve it.

Hope everyone is doing okay. I haven't felt much like updating because of course my problems feel pretty insignificant in comparison. I'm probably not the only one!

AFM: a couple of 'milstones'. I got a doppler, and can confirm that 'Parasite' is still kicking. I was definitely worried that the heartbeat might have stopped after last scan and I actually didn't make it to the second trimester. My dad actually went big time out of his way to organize the doppler for me, which was really sweet. Given that I'm gonna be three weeks betweens scans this time, I'm grateful.

I am also officially out of the pregnancy closet at work. It's earlier than I intended, but I have had so much time off for illness and the cerclage, I think they were a bit worried. I've felt really bad being dishonest, especially when they have been concerned about me. Also, we have a reasonably social culture (read: drinks after work) and after staying sober for the last 4 or 5 work nights out, I was copping a lot of interest in my lack of alcohol consumption.

Considering that I work in IT, in a 98% male office, they were a LOT more enthusiastic and excited than I expected. None of them know my history, so the reaction was very different to most people's. They actually think that pregnancy=baby, and I was really overwhelmed at how happy everyone was for me! I got lots of hugs and kisses, which is highly unusual. It was nice...

I'm still very nervous and wonder if it was the right move, but it's kind of a weight of my shoulders too.
Milk8shake is offline  
#570 of 788 Old 08-22-2014, 04:58 PM
 
tracyamber's Avatar
 
Join Date: May 2011
Posts: 3,616
Mentioned: 140 Post(s)
Tagged: 0 Thread(s)
Quoted: 51 Post(s)
Fertility Challenged Graduates Thread - Spring/Summer 2014

@Milk8shake
I like you story. Thanks for sharing. I got a doppler too and sometimes I can't find the heartbeat but when I wait a few minutes or come back later I find it. I'm happy all is going for you. @Xerxella
I love that everyone came out to give you support!!!!!!! Please keep us posted on the wait.
I have not been posting here much mainly because I don't have much to say and it's a bit quieter in here than I am use to being on the fertility challenged thread. I'm 15 weeks and my next appointment is on the 4 th . I still have not had a scan can you believe it. They are treating me like every other pregnant woman and though I understand, waiting for when I'm 21 weeks for my scan seems tortuous. On the 4 th I feel like I'm going to be twittling my thumbs because I won't be getting a scan then. My OB is and hour away and I'm considering calling them and telling them I will pee in the cup at our local hospital
and just schedule me for my 21 week scan. Err, ! Other than that our appraisal on our house was today and we will be contracting a worker next week to make repairs and hopefully we close on the 12th!!
Pretty much that's it . I'm like @Silverbird , one minute I'm fine and the next I'm not, emotionally and physically.


Sent from my iPad using Tapatalk
Xerxella, chuord and adiejan like this.
tracyamber is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off