Symphsis Pubis Dysplasia - Mothering Forums

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Old 08-06-2009, 04:30 PM - Thread Starter
 
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This is an issue for me postpartum. I have SDP during my pregnancies, but I have a gap postpartum that causes me a lot of pain. At this point 15 week postpartum with #3, I cannot lay down for more than 15 minutes without significant constant pain that radiates from my pubic bone, into my vulva and buttocks. The skin in the area is fine, this is a bone or nerve pain. Shifting positions does not alleviate the pain, I have to get up and be active. My baby is sleeping through the night (!!!) and I am waking multiple times a night from the pain. I have a call into my OB and they are going to figure out who to send me to to have the issue hopefully treated, but do any of you have experience with this? I've been trying to google and there isn't a lot of info that I can find about how this would be treated. I'm having a really hard time coping with constant, every night pain. I desperately want this to be resolved and google tells me that there is a surgical option, but I wouldn't want to go that route if it would prevent me from having healthy pregnancies or vaginal births in the future. I'd like to have two more children in the next 5 years. Thanks for any info you have, I appreciate it!

I guess it might be helpful to add that I have issues with basically all of my joints. I am hyperflexible and my ligaments are too lax. My major "problem joints" are my knees and shoulders. I'll be having surgery on both knees this year to reposition my patellar tendons, create a groove and reconstruct ligaments. Maybe this is why I am having such terrible SPD problems?
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Old 08-07-2009, 10:04 AM
 
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I would find a chiropractor who can work with someone who has the hypermobility you describe. Getting adjusted (probably more than once over the coming weeks), and wearing a binding/support garment on your hips will probably help tremendously in putting your pelvic bones back where they belong and helping them stay put.

Many docs dont' know much about chiropractic, or actually have an active prejudice against it. Ask around your friends, relatives, neighbors to see if any of them can recommend a good chiropractor.

I have seen chiropractic work wonders for women with a pelvis like yours, both during and after pregnancy.

Good luck--you need some rest!
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Old 08-07-2009, 12:12 PM
 
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I have the same problem. Chiro is a huge help. Like, huge.
there's also a great book, I actually lent it to my chiro and don't remember the precise title but it's by Cecile Rost and is called something like curing chronic pelvic pain. I bought it from Amazon. It has exercises etc. that you can do to get stronger so your muscles start holding your bones in place better.
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Old 08-07-2009, 01:39 PM
 
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Yes, a chiropractor and this book should help you out. I had pelvic pain during my first pregnancy (last trimester only), then during my second it started during the second trimester and never really went away afterward, though it wasn't as severe. This time, I saw a chiropractor at the beginning who gave me many of the exercises in that book. Between doing the exercises and regular adjustments, I seem to be okay. Note that it took 6 to 8 appts initially for me to see results, but once they came, it was so nice not to be in pain all the time. Now I'm 35 weeks and going only once every other week for an adjustment and relatively pain free, though it comes and goes at times.

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Old 08-07-2009, 02:50 PM
 
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I agree that the chiro could help- and low shoes and certain exercises- I would probably say go see a physical therapist - maybe able to do an evaluation and recommend some movement alterations
additionally I have been thinking about vitamin D - how much sunlight do you get EVERY day? also what is your diet like, do you get 5 servings of veggies in a day? it may be that you need more of certain nutrients and although it would not prevent the problem completely for you it may make it less painful and closer to a medium problem rather than severe for women with milder cases it may work so that there is almost no pain
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Old 08-07-2009, 03:49 PM - Thread Starter
 
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Thank you for the suggestions, I will buy the book. I do see a chiro on a regular basis and have for years. They hyper mobility is an issue because I never really "stop" bending on the table to get a good adjustment (hand to describe) and I don't hold an adjustment very well. I dislocate my knees sleeping or even swimming where there is not pressure on me at all, my ligaments just will.not keep things where they need to be, it is quite frustrating. I've been seeing a "neurolink facilitator" who is also a PT and he claims that my hips are not balanced and are torqued which is causing the pelvic pain and knee issue, but with regular treatment from him I have not seen any improvement. I am trying to find a more traditional physical therapist who is versed in pelvic issues and it is proving to be difficult.

I do get a lot of sun (we live in Arizona), but I probably do not get as much protein or vegetables as I should. I was doing really great diet wise with a nutritionist and I fell off the wagon and have been binging on sweets

I can accept the fact that SPD will make pregnancy miserable, but swallowing that I can be miserable all the time is a little much for me at this point
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Old 08-07-2009, 07:01 PM
 
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Do you sleep with a pillow between your knees? I had major problems with SPD after a difficult 2nd birth, could barely walk at all, but was fine lieing down as long as I did this, I'd have to lie down like this to get the pain to go, I did most of my breastfeeding like this. If I ever had to lie down and didn't have a pillow, I had to put a fist between my knees, or take clothes off to make a pillow. I still put a pillow between my knees to sleep or breastfeed sidelying, even though I haven't felt any symphysis pubis pain since delivering my 3rd baby via c-section 11 weeks ago.

Anne, Christian mummy to Nathanael 05/28/03, Ada 06/10/05, Grace 05/24/09
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Old 08-07-2009, 07:50 PM
 
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Originally Posted by seeing_stars View Post
I do get a lot of sun (we live in Arizona), but I probably do not get as much protein or vegetables as I should. I was doing really great diet wise with a nutritionist and I fell off the wagon and have been binging on sweets

I can accept the fact that SPD will make pregnancy miserable, but swallowing that I can be miserable all the time is a little much for me at this point
I too live in Az but most of our clients don't get 15 minutes of sun every day- especially in the summer everyone hides out because it is too hot and people with jobs are in a building most of the time too-
I don't know of a PT in paticular but several I have come across seem to know a few things about correcting walking and posture issues if there are any several deal with old ladies who have had hip surgery or stuff like that so know well enough how to help out I encourage you to call around-and get in sooner than later.
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Old 08-08-2009, 12:56 AM - Thread Starter
 
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I do lay with a pillow between my knees, that seems to help a tiny bit.

I get around 20 minutes of (morning) sun when I drop DS off at school and watch him play on the playground I've got calls into my chiro and OB for suggestions on a PT, hopefully they will have some good suggestions.

I take a probiotic, fish oils, glucosamine and condroitin (sp?) and adrenal support with B vitamins daily. I don't feel a difference, but I figure it can't hurt.
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Old 08-14-2009, 02:11 PM
 
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I'm hypermobile, so I know what you mean about the chiro, and never stopping bending.

glucosamine and chondroitin made things much worse for me.


is there maybe something more going on than just hypermobility, esp. if it runs in your family?

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Old 08-16-2009, 12:33 AM - Thread Starter
 
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I'm hypermobile, so I know what you mean about the chiro, and never stopping bending.

glucosamine and chondroitin made things much worse for me.


is there maybe something more going on than just hypermobility, esp. if it runs in your family?
The g&c seems to help my pain. Some dislocations are fine after 10 minutes, some are hurting for weeks after, it is odd.

I'm the most hypermobile in my family. My fingers bend completely backward, I can touch the top of my finger to the back of my hand, I am just like gumby and it causes problems. I'm not sure what else it could be? I've heard that prolonged use of antibiotics can cause connective tissue damage. I had TB as a child and took a heavy round of antibiotics, I don't know if that is relavent at all.

I have an ultrasound of my pubic bone scheduled for Monday, I should know more then, especially if it has changed from after baby 2 to after baby 3. I'm finding sleeping on my stomach helps a little, I am sure there is some kind of nerve pinching going on in there.
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Old 08-16-2009, 11:11 PM
 
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Originally Posted by seeing_stars View Post
This is an issue for me postpartum. I have SDP during my pregnancies, but I have a gap postpartum that causes me a lot of pain. At this point 15 week postpartum with #3, I cannot lay down for more than 15 minutes without significant constant pain that radiates from my pubic bone, into my vulva and buttocks. The skin in the area is fine, this is a bone or nerve pain. Shifting positions does not alleviate the pain, I have to get up and be active. My baby is sleeping through the night (!!!) and I am waking multiple times a night from the pain. I have a call into my OB and they are going to figure out who to send me to to have the issue hopefully treated, but do any of you have experience with this? I've been trying to google and there isn't a lot of info that I can find about how this would be treated. I'm having a really hard time coping with constant, every night pain. I desperately want this to be resolved and google tells me that there is a surgical option, but I wouldn't want to go that route if it would prevent me from having healthy pregnancies or vaginal births in the future. I'd like to have two more children in the next 5 years. Thanks for any info you have, I appreciate it!

I guess it might be helpful to add that I have issues with basically all of my joints. I am hyperflexible and my ligaments are too lax. My major "problem joints" are my knees and shoulders. I'll be having surgery on both knees this year to reposition my patellar tendons, create a groove and reconstruct ligaments. Maybe this is why I am having such terrible SPD problems?
I too had SPD with dd and couldn't figure out what it was, I actually only found out a few weeks ago that there was a name for what I was suffering from.

I'm pg again and not having that problem anymore, which I attribute to the new vitamin/mineral regimen I've been on since dd was 2 months. My sister has also suffered from knees that pop out constantly as has my husband, they've both been on the same regimen and no longer suffer from it either.

The thing is, you body produces a hormone called relaxin, if your hormones are off you can be affected by this. So correct your hormone problem and you wont need any surgery.

FYI, you thyroid creates hormones for your body, it needs food to function properly, food for your thyroid is iodine.

I've been taking 32.5mg since dd was a couple months old while bfing and still take it now the I'm pg. We require a higher dose that docs are aware of because of fluoride, bromide, chlorine, mercury and lead taking the iodines place in the body, all are poisons to your body. Soy also causes problems with the thyroid as well as other goitrogenic foods when your thyroid is already having problems. Don't waste your time getting tested as the tests are not accurate at diagnosing a thyroid problem. Instead look up symptoms of iodine defciency, I have a website but cannot post it so pm if you'd like, it has all the info about how it affects us in many different ways.

Nichole, wife to Kris SAHM to Timothy : :10-11-03, Hosanna , Seraphim 8-17-08 : caught by Grandma! Faith 1-4-10 : Caught by Daddy!
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Old 08-18-2009, 01:02 AM
 
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On another forum someone posted abuot Ehler-Dahnlos syndrome. Extreme hypermoblity like yours can be a symptom.

Like you,. some of my 'dislocations' are fine after five minutes, some not. I turned over my ankle when I was 8 mos pregnant with ds2, and it's only now not hurting so bad, anymore. It's been almost a year, and it's finally healing. With ds1, I had also turned over an ankle, but had no lasting pain or swelling with that one.

hope something turns up for you.

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Old 08-18-2009, 02:55 PM - Thread Starter
 
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Interesting. I'm reading up on iodine deficiency and Ehler-Dahnlos. I had an ultrasound of my pubis symphsis yesterday. They did it both TV and over the gelly, hopefully I'll know what the separation is and if there is any more degeneration of the joint from 2 years ago when I had it checked last. I'm not sure what my ob will recommend, but I am anxious to find out and get this resolved.
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Old 08-26-2009, 02:10 AM - Thread Starter
 
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I talked to my OB's assistant today and my ultrasound did NOT show a change since I had one last, after the birth of my daughter 2.5 years ago. I was sure the cause of my pain was going to be a continuation of the SPD that I suffer from when I am pregnant.

My US did show a lot of ovarian follicles indicating PCOS, but I don't fit the usual profile- could the numerous follicles be because of lactational amenorrhea? I am really upset at the thought of possible having PCOS.

She suggested that maybe the pain is arthritic and I might see a rheumatologist, she is also going to talk to a women's health pain management specialist to see what she thinks.

I am still losing lots of sleep because of the pain and side lying nursing is painful during the day. Sleeping flat on my stomach sometimes helps, but that becomes painful as I become engorged at night.

Feeling pretty discouraged.
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