My thoughts and prayers go out to Owen, Owen's mama and even Owen's difficult daddy (I don't whether he deserves them, but I know he needs them right now).
Congratulations on the pumping! Will the NICU let you give your "spare" milk to their other preemies? Not that that's your responsibility, but I hear that some NICU mamas with a high supply get a lot of comfort from it.
There's one not-happy thing I feel like I need to share: I think it's really important that you push the doctors for a specific dx on the growth disorder/dwarfism thing. Sadly, there are some that are incompatible with life, and knowing for sure about that will help you make the best choices about things like weaning from the vent and pain medication for Owen. These conditions are VERY VERY rare, though, I am not saying that Owen has one.