I fought for breast feeding to work and it was very hard. Now it is firmly established at four months and I just found out that I need to have chemo therapy. My oncologist said that ideally I would be starting in two weeks, however, if my blood test comes back stable in two weeks I might have 1-6 months at the most but most likely on the 1 month side.
Needless to say I am completely devastated. My son won't take a bottle. Since we heard this news we are trying every day to get him to take one and to try to get him to take a cup.
I could use any and ALL advice regarding how to get him to take a bottle and also PLEASE tell me how to make weaning the least traumatizing possible for both baby and mom. What should I be trying to do? For instance when he wakes up at night he SCREAMS until he nurses then he is out like a light. Sometimes he eats every 1-2 hours. Last night I fed him at four and he woke up screaming at five. I tried to sooth him without nursing him for 45 minutes while he screamed (under the theory that I won't have the breast for long and will need to sooth him without the breast so trying to get him used to being soothed without the breast.) Finally after 45 minutes I gave up and let him nurse and he was out within five minutes.
I am trying to do this while not translating to him the depression and anxiety and failure I feel at not being able to breast feed him for AT MINIMUM a year. Or the fear of chemo, etc.
Any advice about what steps to take and when and what would help make this easier would be so great.
There are some amazing women here on MDC, but I'd also recommend checking out the forums on kellymom.com. You may be more likely to get some help there. I just did a quick search and there are definitely moms there talking about breastfeeding and chemo.
Knowing that you have at least two weeks, I think I would concentrate on weaning during the day first.
So, this first week you could work on bottle or cup feeding during the day, but let your son nurse at night.
Once he has gotten used to the bottle you could start to offer it at night.
Have you tried leaving the room and letting dp or someone else give the bottle? Different types of nipples?
I hope someone will have some more advice for you.
Right now she tries to give him one oz which usually takes 1/2 hour with bottle then 1/2 cup to get down. After that we pause so that he doesn't think that if he waits it out he gets the breast. Then after 10 minutes or so I give him the breast b/c I don't want him to starve. I have no idea if this is a good plan...
Thanks for the hugs and support.
It sounds like you're doing everything right, gradually and lovingly. I know it's really hard, but he'll be ok soon.
I'm sure you've thought of this... but how long will your chemo be? Would it be possible to wean temporarily, and start up again? Sorry if it's an ignorant question.
I'm so sorry you are going through this After your last post I had a thought. Would you and your partner be open to the idea of inducing her to lactate? I know it would take awhile for her to establish her supply but she could supplement with an sns(which would feed your son formula from a thin tube taped to her breast while he is nursing). It may not be for you, but I thought I'd put the idea out there. Will be thinking about you.
Even if bottles don't work right now, you do have options. You could have your partner use an SNS. http://www.medelabreastfeedingus.com...ing-system-sns (If she has had a baby before maybe she could even produce milk.) The sns should also work on your finger Or maybe try a finger feeder? A local lactation consultant may have some more ideas for what to try and timing. They should know all about infant feeding, different bottle types, and especially how to get an infant to try something new.
When chemo is over, you could even use the sns on your breast(s) and have a chance to re-induce lactation.
If you ask around in your area, I bet you can find donor milk
Our son never would take a bottle, but we found ways to sneak mama's milk (from a generous mama who pumped for him!) into his food. Firstly, it is unlikely that your son will take a bottle from you at first. He might not even take the bottle if you are in the house! Someone else has to do it for him. If he won't take a bottle, what about a cup? (kellymom talks about this a lot). Your local LLL might be a great source for help with this. Perhaps someone local can give you pumped milk. My son, at 10 months, was able to go without formula. It will be different for your son. I hope you can be proud for the gift of breast milk you have already given him! He has already nursed longer than many babies in this country.
You can consider pumping to preserve lactation and then reintroduce nursing on the other side, which is what bitsofmyself did...but for me, it would have been only another heart break because I was full of toxic drugs for a very long time and would never have been able to reintroduce nursing. Plus, producing milk does require resources, and at a time when your body needs all its resources, perhaps it is not such a great idea...but each to her own! You can figure out what is the best decision for you!
At the moment I'd work on weaning your son but pump and freeze so if you have another month before starting chemo at least you can bank a bunch of mama's milk for him!
Chemo is hard but you can do it and come out whole on the other side. For example, I've done 4 rounds of 4-6 cycle chemo. 3 different types. I've also taken a drug that was considered chemo but was not intravenous. I've had 2 thoracic surgeries! This cancer fight has not been easy, but here I am, hoping to be able to offer help to you. My 3 year old son sits beside me, waiting for his promised bike ride as I type this.
It is so hard when you are first diagnosed and it seems bad news comes tumbling from the sky to bury you. Please PM me. I'd love to help you navigate and to share my stories if you want to hear them. If I can do it, you can do it.
Cristeen ~ Always remembering our warrior ~ Our is 3, how'd that happen?!?!
We welcomed another warrior in May 2012!!
2012 Decluttering challenge - 575/2012
(1) Starting around 4.5 months. We bought a pump and bottles and the most premium brand of formula we could find. I had read the Avent nipples were the closest to the breast, so those were the ones we chose, and he liked them. There is a lot of variation in nipples, so experiment to find which works best for your baby.
(2) I started by feeding my son on the breast, followed by 100 ml of formula as a followup (doctor's instructions). He usually ate every 2 hours during the day. I also started with the slow-flow nipples (1 or 2), then moved up to faster ones. My son was always impatient with feeding, and liked when the milk came fast, once he got used to it.
(3) I also pumped when he was asleep, so he could get used to drinking from the new delivery system without also the shock in taste. This was especially helpful in the first few days, when he pushed the bottle of formula away. He would take the bottle with breast milk, however. Eventually, he got used to the bottle, and even liked it with formula.
(4) Once he got used to the formula, he slowly began drinking more and more of it. Eventually, he did not want the breast anymore, and would only drink a couple minutes before screaming for a bottle. This might be different for you. I had almost no milk starting around 4.5 months, so he was starving, and as soon as he realized he could get fed faster from the bottle, he never looked back. It broke my heart, sure, but that's just how it was. I wasn't about to let my baby starve.
(5) I always started with the breast, to try to get at least a few drops of the wonderful breast milk into him for as long as possible. By 6 months, he was only on bottles. It will be very emotional when your baby stops completely. I'm tearing up just writing this now, though I supposedly made peace with it months ago (my son is 10 months old now).
Back story, if anyone's interested:
I had pretty much the best start into breastfeeding possible. During my after birth stay in the hospital, the nurses helped me many times a day, day or night, whenever my son had trouble latching on. Once home, a lactation specialist visited us daily, then every couple days, until we had everything right. My son gained weight marvelously.
In short, I had everything anyone could ever have needed to breastfeed successfully. But sometimes, sadly, it's not enough.
Then, at 4.5 months, at my son's doctor visit, they discovered he had lost 500 grams (that's ~1 lb) in 2 weeks. The pediatrician weighed him again because he could not believe it. So, our little one had gone from the 25 percentile (his curve since birth) to, well, is there something below 0? The doctor advised 100 ml of formula after every feeding.
I fought my husband on this one. I was going to have a breastfed baby! No stupid formula, only the good stuff! Sure, I had painful cuts all around my nipples (I suddenly realized he had been biting me b/c he was hungry) and it was agony every single time my son ate, but I would suffer for him. It was only when I realized my baby was suffering so much more than I was that I gave in.
I have tried to make peace with the situation by focusing on what I did give him rather than what I could not. Sure, it was only 6 months (4.5 exclusive), but that's more than many other babies get. And then I look forward to getting another chance with baby #2 someday, and probably stuffing into me every breast milk stimulating supplement under the sun.
Mama to our little boy (3) , the amazing super squirmer, almost born in the taxi...
and our new baby girl , caught by her daddy in our bathtub!
Another technique I'm trying is to sooth him to sleep without nursing and then nurse when he wakes up. My hope is that he will learn to respond to soothing and not have the only thing that works be breastfeeding. But this is so fucked up b/c I just spend 4 months teaching him that breastfeeding IS the soothing thing and best thing.
Another thing I'd like feedback on - we were planning not to introduce solids until 6 mos. But does it make sense to introduce them sooner so that he has alternate means of getting nutrition? Will this risk his health later?
Thanks for sharing your stories. Thinking about doing the night weaning with my partner in there and me in the other room and him up all night crying is breaking my heart.
Where can I go to find donated breast milk besides the milk bank? It would make me feel better to know that he was at least getting bm until a year.
I'll check out those blog links - thank you!
Sorry I am all over the place. But yeah I am all over the place.
Yes, sweet lady, weaning your darling child, especially after fighting so hard to make breast feeding happen, will be hard. It will. (I am not going to dwell ont hat and please, don't you dwell either since that will only make it all more difficult and horrible.) However, you must choose your longevity and health over breast feeding. Breastfeeding is important and amazing but having a living mother is more important. Choose the road that is easiest on you. Cancer treatment is very difficult. Choose the one that is most likely to keep you around and in your child's life for years to come. Breast feeding is important but having his mother is much more important! Give yourself credit for the excellent job you've already done! Don't discount the fabulous head start your breast milk has already given him!
Yes, the idea of the crying child in another room with your partner is awful. Perhaps that is not the right path for you. Perhaps you can figure out another method. It is what worked for me and my family, which is why I share it with you.
Do as you were planning and wait to introduce solids till 6 months. Formula, while not as wonderful as breast milk, is designed for exactly situations like this: a mother's health prevents her from nursing her baby. It will nourish your son an provide the nutrients he needs till his gut is ready for solids. I think that your post will see a lot of views in the next few days and perhaps someone will quietly contact you to offer pumped milk. I think it is not allowed to actively solicit or arrange for it on this board. It might help if we knew your location.
Cristeen ~ Always remembering our warrior ~ Our is 3, how'd that happen?!?!
We welcomed another warrior in May 2012!!
2012 Decluttering challenge - 575/2012
i wanted to reiterate what sugarlumpkin said:
living mama trumps breastfeeding EVERYTIME. make the choice that will give you the longest best chance at life. your son needs YOU so much more than he needs to breastfeed. you will get through it, and it may be a hard fight, but you will get through it. but he needs you to be there for him more than he needs to breastfeed.
i would definatly contact milkshare.com. i know a lot of people who have been feeding their babies human milk since they were newborns (and past a year) using this website and the generous mamas who help. i think that especially n your case you would find at least one mama who would be willing to help you.
in terms of soothing at night- have you tried a pacifier? it may take a while to get him to take it, but, like formula, it is an alternative when the real thing is unavailable. and babies need to suck. pacis let them suck when they need too. also, maybe having your partner wear him in a moby wrap or a didymos while he has the paci? it would be hard, but it may help him sooth back to sleep.
good luck mama.
my kid won't take a bottle either. the cup was what worked including a sippy.
get well mama!
formula still has more cal/oz than most foods so i'd still wait until 6 mos.
Jen-loving Bill, mama to Teryn 18, Kalyn 16, Ricky 13, Natalie 5, Angel Zoe '07 and Amelia Rae 22 mos bonus kids (dss) W 14, W 13 NEW grandbaby due 10/10/11
If you want to try a 'fake' SNS just to see if he will take the tube, you can easily make on for about $5. You need a 5-French feeding tube from an LC or a medical supply store, and some sort of container for the milk tht won't spill if it tips - honestly the best I have seen is a baby bottle with the nipple turned upside down (sticking into the bottle rahter than out like normal) and the feeding tube pushed up through the nipple (it destroys the nipple).
Then you have a temporary SNS like device - a reservoir for the milk, a tube to take the milk to the finger or breast.
www.drjacknewman.com has a video or 2 of this being used that may help:
I am sending you, your partner, and your son lots of strength and courage to get through this, & lots of calm, healing energy.
We’ve been able to get my son to take 1-1.5 oz from a bottle - YAY! He doesn’t love it and needs lots of distraction but he takes it! (what finally worked was rubbing the bottle nipples on my body, letting him play with them off the bottle, and draping my partner in my clothes, along with distraction and changing positions.) The lactation consultant I talked to said that is great b/c at least now he has the skill of taking a bottle. Our goal is to have him taking 1-2 full feedings (3-4oz) a day by the time we go for my next appointment with the doctor in 1.5 weeks. At that appointment we will find out whether chemo needs to start in two weeks (I’m praying that it isn’t 2 days but the doctor Thought we’d have two weeks warning) or whether we can “watch and wait” for another two weeks. It is possible that if we watch and wait that this might go on for up to a month or more if my labs stay stable. But we won’t be able to say in advance ‘you have two months’ it would always be every two weeks we’d have to find out if we could delay another two weeks. So …
I want to know if anyone has opinions on whether it is better to gradually get him to take more bottles a day so that ultimate weaning is more gradual IF we end up with slightly more time or whether it is better for him to have say a full extra month or so of primary breastfeeding (minus the two bottles) with all the bonding and comfort that brings but then have to wean more abruptly? Does this make sense? Or if anyone knows an infant development resource/expert who I could ask?
Also I’m pumping and only getting enough to keep up with current feedings vs store any and the less I breastfeed the less my supply might go. I’m taking fenugreek to try to up the supply so that he gets breastmilk until the last possible minute but does it make sense to give him one bottle of formula a day so that he is used to it and doesn’t have to also abruptly transition to formula? (I am going to try to get donated milk but I suspect that we will be using formula in addition even if I can get the milk.)
Even if you aren’t an expert I’d love to hear your opinion since we are making our way in unknown territory…
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