Raynauds, tongue tie, lip stick...We got it all - Mothering Forums

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#1 of 12 Old 03-30-2003, 01:26 AM - Thread Starter
 
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okay. so I have been reading a lot! I have a 7 wk old ds. I am delighted to find out about Raynauds. I am actually woken up by the pain (usually about 20 minutes after falling asleep after nursing)and I have to do a hot washcloth compress. I was wondering about whymy nipple was white. I actually had this during my early pregnancy too.(In the past I had experienced the phenomena with some fingers, but no one could explain it)

DS is tounge tied too. I don't know if it much of a problem. he seems to be gaining, will know more at 2 mo checkup. Wish I had gotten it clipped in hospital. On my 4th day in hosp. (it was a c/sec) they FINALLY sent me an LC who took one look at my scabs in lines across my nipples and diagnosed minor tongue tie.
But I don't have pain while nursing, now. My let down is intense, bordering on painful, but this changes every day too.

the funny thing with the lip stick look is that it only happens to one nipple :

DS also seems to be lazy, that he nurses for long periods, probably not latched well. and this causes my breasts to be very full most of the time. therefore he doesn't have to try very hard. Is this going to cause bad damage even if it doesn't hurt much?
when I try to latch him better, he usually starts choking or lets a lot of milk sort of spill out of his mouth.
anyhow, I am not sure what my point or question is, but I wanted to share. I am starting to think that I may need to get myself to another LC soon. I thought we were doing great , but when I read about other people who only have to nurse 10 min on each breast, I wonder.
thanks for being here all you smart mamas.
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#2 of 12 Old 03-30-2003, 09:59 AM
 
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Hi - congratulations on your babe!

Something similar happened w/us in the hospital (ds is 12 weeks old) with the tongue tie. For whatever reason, his latch on my left breast was horrible and I scabbed up quickly - apparently one of the LCs made a note in his chart that he had tongue tie but never told me. Another LC brought it to my attention the next day (we were there 4 days as I had a c/s). Our pediatrician said there was no tongue tie - I don't think there is...but his latch on the left breast still takes a lot of work - I am always repositioning him and that nipple is sore a lot - I just go used to it.

Pay no attention to the length of time he is nursing right now - it really varies and I have learned that for us, nursing on one side only really helps him get the hindmilk - he nurses anywhere from 10 minutes (rare) to 45...I do find that gently rubbing the bottoms of his precious little feet help keep him awake...

We get the milk spilling from the mouth a lot, too - actually, for a while it was coming out of his nose!

It could not hurt to have another LC take a look at his latch...
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#3 of 12 Old 03-30-2003, 12:27 PM
 
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It sounds like you have strong letdowns, over supply of milk. Try to nurse lying down, or in a semi-reclined postition.

Does he "click" (break suction) when he swallows? this is another indicator of tongue tie.

All 3 of mine had tongue tie, the boy worse than the other 2. This was yrs ago tho, and I didn't realize what it must have been til after all 3 were weaned. I had the new lipstick nipple appearance, with the blood blister on the upper tip. Both sides, with each kid for 10 days. My son also clicked for 3 months, and I had to hold the breast in place. But he was still, an efficient vigorous sucker, and did fine.

None of mine, obviously, had their frenulums clipped, but sometimes it is neccessary and helpful.

I wouldn't call your son lazy if he nurses for 45 mins or so. Some/most bf babies cluster feed in the evening, barely letting go for 3 or 4 hours. Human milk is dilute and is meant to be fed almost continually. Is he gaining 4-8 oz/wk? Is he pooping every day, or now that he is older, when he goes is it copious and soft? does he have alert periods?

If your breasts are still overfull and letdowns are so strong, try to offer one breast only for 2 or 3 hours at a time (some moms even have to go longer), no matter how many times he nurses. This should help reduce your supply to come in line with his needs.

So the warm washcloths do the trick for the white nipples?
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#4 of 12 Old 03-30-2003, 02:12 PM
 
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dd is tounge tied. well two are actually. Lily had to get clipped because it was horrible pain every time she latch on. It took us 2 months to find someone to clip it. They just kept saying "it is not that short" Well it was short enough to cause me intense pain. I don't know why anyone would continue. I have to wonder how many people wean because of some Dr. who refuses tocall tounge tie a problem and just fix it already (it is such a simple procedure - i have caused more grief and more blood by clipping nails).

Anyway with Ava it doesn't hurt most of the time she just can't stay latched on so it takes her forever to nurse. (suck, suck, swallow, let go, latch, repeat about a hundred times) I am still thinking abouthaving her clipped. i tried to do it myself but just couldn't. It is $500 that we don't HAVE.

Ava has much more trouble with one nipple than the other. It is kinda wierd but my breast are very different (one is quite a bit larger than the other and holds twice to three times as much milk.

A for how long he nurses, it is not unnusuall for some kids to nurse that long. Since her does have a toumge tie issues though you may want to have your suck evaluated. My first was a lazy nurse (NICU, tube fed "what you mean I have to "suck? whats up with that, I have never had to do any work before : ") We just had to be persistant in making sure she was latched on right and sucking.

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#5 of 12 Old 03-30-2003, 07:14 PM - Thread Starter
 
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thanks for the replys ladies.

and now we really have it all ....thrush!! today I went to meet with some mamas at a cafe and while waiting on them I nursed and that painful letdown started and persisted as stabbing. ug. one of the mos encouraged me to treat rightaway and even gave me a bottle of gentian violet and we started already. I have been VERY paranoid about thrush as I had antibiotics in labor. But I let my guard down and had a couple beers a couple times this week and BAM! I am also going to pour boiling water over my bras and take acidophilus bifidus. And no more beer, lots less sugar. I really want to nip this in the bud, let me know if you have advice. (And I am going to proceed to read up some more)

MamaX- thanks for the reassurance. I do stick with one boob for quite awhile so he gets the rich stuff. Like in the morning when he wakes every hour and only nurses 5 min or less.

daryLLL said, "Is he pooping every day, or now that he is older, when he goes is it copious and soft? does he have alert periods?"

yeah, he poops (thankfully not at night anymore) usually right after I put a fresh diaper on him And he does have googly alert periods, he is quite an alert kid. ANd my friends all assure me he looks great. We'll find out how he's gaining in a week.

I never thought about it, but yes, lying down he doesn't choke!
ANd yes, the washcloth does the trick...just a bit annyoing at 4 am. summer is right around the corner.
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#6 of 12 Old 04-03-2003, 02:42 AM
 
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I also have Raynauds and thought I had thrush (but I'm not really sure I ever did have it.) I found taking Evening Primrose Oil (a lot--about 10 capsules a day!) helped the pain to go away, although it took about 6 weeks for it to be completely gone. It still seems to flare up once in a while (my son is 2) and when it does, I load up on the Oil again.

I am of the opinion that interductal thrush is pretty unlikely unless you had an open sore on your nipple which would let the yeast in.
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#7 of 12 Old 04-03-2003, 01:55 PM
 
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My oldest two boys were tongue tied. With my oldest my doctor insisted that he dind't need to be clipped ( that was the recommendation at the time, but it has now changed). He struggled to get enough to eat. He would nurse at least 45 minutes every 1.5 -2 hours. He did gain weight, but my goodness he nursed all the time. It's a good thing I have a wonderful supply. I think basicly my milk was just pooring into his mouth with little stimulation. His doctor stilll instisted that this was normal. Finally at 6 months my doc referred me to an ear nose and throat specialist. My baby had to be put under and the ent shaved a little off of his tongue. His nursing pattern changed immediately. Instead of a very hungry baby that nursed all the time I had a 10 or 15 min nurser ever 2 -3 hours. He no longer caused pain. I was surprised that his being clipped helped so much.

My second ds was also tongue tied. This time I noticed immediately and his doc clipped his tongue at 2 weeks. He did cause quite a bit more pain than his older brother. This was a very simple office prodedure. He simply took a pair of scissors and cut the piece of skin under the tongue. Ds cried while the nurse was holding him down, but he stopped as soon as she let him go. I wish I would have had it done this way with ds #1. It was much less stressful for me (and probably baby).

All the babies in my family that have been tongue tied have had to be clipped by the time they were 5 or 6 yrs. Most of us, including me, were clipped when we were a few weeks old. The ones left until they were older all had to have years of speech therapy and a few still have some slight problems with a few words as adults. My family may be the extreme, but for me I would not hesitate to have any future children clipped.

Do a search there were some other threads about this subject, but I'm not sure if they are still around.
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#8 of 12 Old 04-18-2003, 12:30 AM
 
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Hi, I am semi new to the boards and don't post much....

My father, myself and My 2 girls (and this littleone due soon is expected to be) were all born tongue-tied.

I was very lucky to have the girls clipped very early (1 week for my 1st and 1 day for my 2nd) and are planning on doing the same for this one if needed.

I can't believe that the doctors want to charge you so much for the procedure. IT was covered by our insurance but the bill was like only about $200 for the procedure.

It is so simple when they are little compared to older and needing to be put to sleep to have it done (like myself and my father at 4 1/2-5 years old)

Thankgoodness one my Ped is up to it and I didn't have the run around that I hear so many other Moms of tongue-tied babies do. That is why I am going almost 2 hours to his new practice since he left my girls group almost a year ago. (Apparently the older doctors are more the though of wait and see if it affects the speech and couldn't care less about Bfing.)

I still have speech problems even after years of speech classes after it was clipped so I was wanted it done ASAP.

Thankgoodness I had a Great LC at the hospital who told me that they can do it so soon or I would have let the first Ped run me off for a few years and not checked in the options!!!!
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#9 of 12 Old 04-18-2003, 04:09 PM
 
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lilyka, Wow I didn't notice how much you said that would cost with my last post. My dr charged $28 for a regular visit and $35 for the visit he clipped ds #2's tongue. I'm not sure how much it cost for ds #1 who had to go into out patient surgery, but I'm sure it wan't more than $200 or so.

Paula, all the babies on my side of the family have been tongue tied. However, my 3rd ds wasn't at all. I really breathed a sigh of relief when I looked in his mouth the first time. Good luck with your newest addition.
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#10 of 12 Old 04-18-2003, 06:29 PM
 
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For a regular visit to the ped it runs about $80 around here. $100 for a well baby check (why is this more, I have no clue) We had to see an ENT which is a sergeon so that bumped the bill and then they had to charge us extra for preforming surgery (for 30 seconds : ) We didn't have insurance. I was however quickly motivated to get my medicaid paperwork in and they covered it. This time we are not so lucky. if my ped. could do it Iam sure it owuldn't cost much more than an office visit and we would only have to pay a $15 deductable instead of a $1000 copay. Sorry I am having a hard time with blue cross blue shield right now and can't help ranting about how stupid they are.

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#11 of 12 Old 04-19-2003, 10:26 AM
 
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Just wanted to also suggest trying your local dentist. We have a dentist here that is willing to clip tongue tie, and I'm SURE it's nowhere near $200.

My business partner is a lactation consultant who specializes in tongue tie and it is amazing what a difference getting it clipped can make with ease of breastfeeding.

Good luck!

Lisa

Lisa , married to Dan, mama to IVF miracle Natalie 5/20/09 :
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#12 of 12 Old 04-21-2003, 01:55 PM
 
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I also had the scar in a line on both breasts, Raynauds (vasospasms), etc, etc. Hang in there...for me it took 8 weeks for it to get better, and the pain was gone by 10 weeks. My LC thought that her tongue was a little short, but at 4 1/2 mo, it is quite long now. It seemed that as her mouth grew, the pains went away. She was only 6 lbs 11 oz at birth but got down to 5 lbs 15 oz due to jaundice (which also caused nursing...or should I say "lack of nursing" problems ).

Hang in there!
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