|fluttermama, we are using aurum trit twice a day. So far I haven't seen any improvement really but it hasn't quite been a month so I don't know....|
Big hugs to you.
|Yes, I've considered all of that. Just the thought of the cost of all of those tests makes me cringe right now and since I've been on lots of wild goose chases already this year, I'm just trying to be careful about finding someone who can cover all bases at once, not just focus on nutrition or chemical or something else. Ugh. It really is a frustrating process.|
I am so, so sorry !
I know it is awful, but maybe in the end it will be better for your son and your family. If he really does have special needs than at least it was caught early. In that case, maybe at home with his family will be what is best, or maybe some other shool that will fit his needs.
I believe everything happens for a reason and to try to see the best in everything. I no this will turn out for the best. As for the community turning it's back on you, how obnoxious. That just really makes me angry !!
You are loved on this forum and we are all here to chat when you need to. I agree with another poster who said you should tell your sweet son something else rather than he was asked not to come back.
Have you seen this,
What a wonderful waldorf advocate you have been. I hope you continue with waldorf methods, in whatever path you choose....
(((Hugs))) to you both...
If you want to homeschool Waldorf I'd recommend the Oaksong Cirriculum (you can purchase it online) it comes with everything you need and is purely Waldorf based. Many friends of mine have had great success with it.
As far as the social stigma (not that it matters that much now) but were the other parents aware that he may have a sensory issue or a condition that causes him to act out?
I only point it out because my child came home daily with reports that another boy was hitting him (had once bitten him and left a red mark) and yelled at him. This was confirmed when I saw the child chasing DS with a stick swinging it (the teacher was intervening shortly after) until I KNEW this child had symptoms of a possible sensory disorder, I just thought he was a bully.
And I was all mamabear about my son being hurt. (Although I didn't act cold toward his mother or the boy)
I really hope that the OT can help you on your path to knowing what is going on with your child, so that he can be nurtured the way he needs to be to thrive and flourish. Maybe by the fall things will be much more straightened out for you all and he can return to the school.
Breeder Mama: = wife to an amazing man + mama to J-Bear (07/02) and E-Train (06/08), nanny to Little Bird (07/10).
Breeder, you are on to something about the parents being in the know. Unfortunately I didn't think much about this early on, probably because a part of me didn't want to single him out as a child with something wrong but in hindsight I think we definitely should have made it a priority to inform the other parents about what was going on with him.
For all interested, we had an eval on Friday and he definitely has tactile and auditory sensory. We pretty much knew this already but this just makes it a bit more official. We will be starting regular OT this summer and then hopefully see some improvement.
I also talked to the school administrator who has invited him to summer camp if we would like to try that out and has also offered us some leftover scholarship dollars for any therapy we might need outside of the school. I really appreciate that they are offering those things to accommodate us. At least I don't feel completely shut out of the school anymore. She reminded me that she would like to do whatever she can to keep the doors open for us and see that he gets to first grade.
And keep in the back of your mind that public school districts can be compelled to provide special needs services even for students who are enrolled in private schools. In the schools where I live, you're unlikely to get much help for students this young yet, and there are a lot of bureaucratic hoops to jump, including having to undergo their own assessment process. Sometimes it works out great here, providing needed services that would literally bankrupt the average family. But other times, the ordeal is just a frustrating dead end. But I thought I'd put that out there because it's possibly one option to look into.
A. My older son sees in OT - it's covered by our MEDICAL insurance, not mental health. We paid for the eval out of pocket because we were between insurance. They sent a copy of the eval to our pediatrician who wrote a prescription for OT. The OT office wouldn't see us without the Rx for actual therapy.
B. I had a longer appointment with DS's pediatrician about medical sources for behavioral conditions. It's been a pain and a half to get that actual appointment covered (he listed is as a mental health appointment because we were discussing behavior - MH won't pay because he's not a psychiatrist, MI won't cover because it was a behavioral health issue). He ordered a bunch of blood work and a CT scan (which came back fine, but the pediatrician considered the test of last resort) and said if that all came back fine, he'd refer us to a developmental pediatrician. We probably should still see the DP, but the change in Daniel in the year+ that he's seen the OT has been so impressive that we're working with just that right now.
C. OT is fun for most kids - I offer that as an FYI so that you can let your child know. For kids with SID there are lots of chances for jumping/climbing/sensory input. DS, who's always been VERY anxious was willing to go back alone with the OT after 4 visits (which was wonderful for me in that I no longer had to get childcare for my other child).
Amey, we have an appt with the ped this week to get a referral to the OT as you described. She is super thorough, almost to the point of it being an annoyance so I'm a bit worried that she might make us jump through some expensive and superfluous hoops to get this OT. Since we have zero mental health benefits, the OT route is definitely more feasible for us.
I'm really glad to hear it is working out for your child as well.
Glad to hear your eval went well and you're getting some answers- finally!
I do hope that your DS will be in first in the fall, he really is a smart and sweet kid.
Hugs to you, and I'm sending good vibes your way that Xenu doesn't jinx your ped appt.
Are you still up for Wednesday?
I could write a novel - I have been in the exact same position as you are with a 5yo DD in a Waldorf school. I ended up pulling her out after 6 weeks.
You are not a bad parent. Your son is not a horrible kid.
My DD ended up being diagnosed with Asperger's Syndrome and sensory issues. Yes, we had to pay out-of-pocket for this - first went to our family doctor for a referral to a children's psychologist. I have to say - I'm not big on alternative evaluations/methods when there is a serious issue going on. I say get the official diagnosis from a doctor, and then try the alternative methods afterwards.
You say you had an IEP going on - well, that may be the only way to get back to free help - public school.
I know how it feels to be in love with a Waldorf school, and then have to leave it. It's really heart-breaking. But it's more important for your son to be in the right educational environment.
I understand your emotions. I pulled my daughter out 7 months ago, and I'm still angry and bitter about it all. Not as much as I was 7 months ago, but the hurt feeling is still there. But it too shall pass...
I have so many issues with public school that I really don't think I will be going that route, even if it does mean free services. Here in Florida at least, all of the curriculum goes toward standardized testing and it is an education the absolute antithesis of what waldorf stands for. We would probably homeschool instead.
I really, really, really, really, really understand what you are going through.
also, on a completely different note, homeopathy of houston has been a huge help in healing these issues, so we can reduce the amount of interventions.. www.homeopathyhouston.com we do phone consults, it has been so helpful!
Best of luck with everything.
FWIW, we had our son's sensory stuff evaluated by the public school system, then formally diagnosed by a pediatric neurologist. We proceeded with OT (which we did have to pay for out of pocket.)
I didn't do anything remotely "waldorfy" (chiro, homeopath, anthro dr) to treat his sensitivities, but OT did wonders and he is now able to fit in quite well in his Waldorf class (and, ironically, is considered one of the "easier" kids in his class). Oh, and our home life is SO much better.
The time it takes to get a proper diagnosis and go through with treatment seems like forever, but once you begin to address things they start to get so much better.
Good luck to you!
Finding answers is never easy, and the real answers may not be what you expected. Have you ever thought about finding someone else in your town that has gone through this?? and kinda picked their brain for ideas? My step sister is severly handicapped- and her mom was the one that "wrote" the rules at the school dist. to get the help she needed and still Home schooled. Maybe something like a charter (at a later date) might help you help your son.
I also wanted to gently remind you to take GOOD care of YOU! You are fighting a big battle, and you don't want to get burned out. Even something as simple as a bath with "smell pretty's" (as my kids say) can be the turning point for stress. If you don't take care of Mommy, who will? Hugs, and Love!
Married to Michael and Mother of Jake 9, Jillianne 7, Jensen 5, Jacen 4. I've got severe osteoporosis, a fractured hip and chronic pain-so please be patient with me! Pagan,Crocheter,Reader,Homeschooler- that's me in a nutshell.
Royaloakmi, I am thrilled to hear that OT has worked wonders for your child. I must admit being a bit skeptical that crashing on the floor and sitting on swings is going to do a lot of help but at this point I'm open to anything. Out of curiosity, how long did it take for you to see real results? We just got started last week and school starts in a few months so I'm just wondering.
So hang in there, you are doing such a great job advocating for your son. Huge hugs to you.
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