Salicylate and/or amine intolerance ... anyone??? - Mothering Forums

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#1 of 8 Old 12-15-2008, 10:57 AM - Thread Starter
 
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For the past 18 months I've been dealing with what I now think is a food intolerance. I've reacted to several things and each time it has been frightening because it has affected my lips/tongue/cheeks or lungs. A few times I know for sure it was amine related -- either in old food (a week old leftovers) which caused asthma attacks and tongue tingling and one time hand swelling ... or in certain cheeses causing wheezing. I've also reacted to fresh apple, blueberry -- both with tongue or lip tingling. I've reacted to spaghetti sauce and almonds, tart lime yogurt with tingling/tightening in nose and sinus. I'm thinking I may be sensitive to salicylates and amines. I seem to do ok with chocolate (which has amines). Lucky charms cereal eaten 18 months ago caused my tongue to tingle as well.

I've totally changed my diet -- I'm keeping on the failsafe diet with only adding in a little bit of salicylate now (like spaghetti sauce once a week, etc.) This is very frustrating to me not to feel ok with eating fresh fruit (I only eat golden del. apple and pears and not a lot).

My very first reaction was nearly 3 yrs ago (Jan. 2006) a few weeks after I had a very bad stomach bug -- (fever, constant vomitting/dirahea for 24 hours -- seemed to have issues after that with reflux which I never had before) -- anyway my first reaction was hand swelling to a greek salad I had kept a bit too long in the refrigerator. After that I had very mild reactions until my 3rd baby was born 19 months ago and then several weeks-month later I started having these strange mouth symptoms. I've been to several allergists and haven't had much help.


I'm now going to get a complete physical this week. I'm wondering though, can this be fixed with enzymes -- am I lacking something in my body. I do have 3 closly spaced children who were extended bfed, I'm still bfing #3 -- I'm just wondering if my body has been depleted of something it needs. My asthma had been pretty flared up over the past 1.5yr too.

If anyone got this far, thank you for reading all this! Thanks for your help.
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#2 of 8 Old 12-15-2008, 11:31 AM
 
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Hi,

We started FAILSAFE in mid October. We have passed our salicylate challege (woo), but miserably, miserably failed our amines.

We are already gluten-, dairy-, soy-, legume-, tree nut-, seed-, corn-, nightshade- (including potatoes!) and egg-free, too so it sucked to loose some of our favorite foods like broccoli, olive & coconut oil and avocados. So, firstly, I sympathize.

Now that we our wading through the failsafe diet, though, we are looking at reintroducing. We have failed eggs, sunflower seeds, goat's dairy, and carob and garbanzo beans. We are hoping to get corn and potatoes back, once we recover from our amine reaction (taking forever to clear ).

Secondly, it surely is possible your body is depleted. I'd bet your HCP can order a blood or tissue or stool (or some combination thereof) test to examine your various mineral levels/nutritional stores. Other mamas here have experience with that, though.

Nessa, DD1 (5) DD2 (3) & expecting again in late February/early March!
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#3 of 8 Old 12-15-2008, 11:34 AM
 
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Also, I noticed that you said you are eating tomato sauce now and again. FYI - tomatoes are high in both amines and salicylates.

Here is a great website I found that lists the food chemical levels in tons of foods (not just a list of what is low). HTH!

Nessa, DD1 (5) DD2 (3) & expecting again in late February/early March!
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#4 of 8 Old 12-15-2008, 01:33 PM
 
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Do you have environmental allergies? It may not be an amine or salicylate reaction, it could be Oral Allergy Syndrome (OAS), where certain fruits and vegetables contain proteins very similar to those in certain pollens. When you consume the fruits/vegs (usually uncooked; a lot of people with OAS can eat them cooked or with the skin removed), your body confuses the proteins for your allergies and responds accordingly.
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#5 of 8 Old 12-15-2008, 03:23 PM - Thread Starter
 
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Originally Posted by Chinese Pistache View Post
Do you have environmental allergies? It may not be an amine or salicylate reaction, it could be Oral Allergy Syndrome (OAS), where certain fruits and vegetables contain proteins very similar to those in certain pollens. When you consume the fruits/vegs (usually uncooked; a lot of people with OAS can eat them cooked or with the skin removed), your body confuses the proteins for your allergies and responds accordingly.
Yes, I have A LOT of environmental allergies. My allergist feels that I may be having OAS, too, but the thing that doesn't make sense to me is how I can react to cereal and mustard and other spices. I've had my asthma flared up by certain smells (strong cinnamon will do it a lot also the smell of smoke makes me wheeze). He thinks because of how immediate my reactions are that it could be OAS -- I just don't know how to tell what it is.
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#6 of 8 Old 12-15-2008, 03:25 PM - Thread Starter
 
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Originally Posted by menomena View Post
Also, I noticed that you said you are eating tomato sauce now and again. FYI - tomatoes are high in both amines and salicylates.

Here is a great website I found that lists the food chemical levels in tons of foods (not just a list of what is low). HTH!
Thanks for your post. I do know that tomatoes are a no-no but I seem to tolerate tomato sauce most of the time. I've even eaten fresh tomatoes with no problem (in small quanties -- like one slice). That is what doesn't make sense. Last week I was eating apple cobbler and my cheek swelled up inside and my face on that side felt tingly all the way to my eye lid. I just don't understand why these reactions are so different.
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#7 of 8 Old 12-15-2008, 03:47 PM
 
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I was posting with two squirmy children on my lap before LOL. I was definitely going to mention OAS like Chinese Pistache said. I get OAS symptoms with certain varieties of apples, especially if I bite into them with the skin, as well as with citrus, kiwi, some melon, celery, tomatoes, strawberries, various stone fruits (again, especially if I bite through the skin), etc. I think that is separate from a salicylate reaction, at least in our experience. I used to get really sick (allergies) in the spring & the fall. Now that we've been GFCF for a year or two, this past fall I did not get sick hardly at all. I think that has to do with the "bucketfull" approach to allergies.

I think figuring all this out is a lot like putting together a jigsaw puzzle when you don't know how many pieces there are and you have no idea what it's supposed to look like when you're done.

Nessa, DD1 (5) DD2 (3) & expecting again in late February/early March!
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#8 of 8 Old 12-15-2008, 04:05 PM
 
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I'm betting there was cinnamon in that apple cobbler. Cinnamon isn't all that uncommon of an allergy, even without oas and salicylates.

Do you take probiotics, clo and other gut-healers? Twinlabs makes a vitamin C + quercetin, which is a natural antihistamine.
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