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#61 of 622 Old 06-22-2009, 03:05 PM
 
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Here is where I bought my Family Grain mill and attachments. Their customer service is awesome. It might be worth a call to them to see about a coop price. http://www.pleasanthillgrain.com/

chicken3.gif   We're remote ECing, unschooling, free ranging goat dairy farmers.  

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#62 of 622 Old 06-22-2009, 03:39 PM
 
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Oooooooh, that would be so cool. I wonder how much of a discount they give?
I don't think I can run an MDC coop, and I don't want to get us in trouble here. Can anyone interested in the possibility of this PM me with an email addy?

ETA: Huh, apparently MDC coops have disappeared. In that case, definitely PM me. Once I know how many people might be interested, I will make a few phone calls.

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
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#63 of 622 Old 06-22-2009, 04:20 PM
 
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Not sure if I mentioned this here or not, but the LC gave me new phlanges for my pump because mine were apparently too small (I asked for them because I thought they were too small but wasn't certain- I have a pretty high pain tolerance so though it wasn't *painful* to pump, it wasn't exactly comfortable).
Anyway, since using the new phlanges, my right side (my "bad" side), which used to produce about half the milk that my left side did, has started producing about an ounce more per pumping than the left. As a result, I have a very well fed Marius (maybe, I'll talk about that in a second) and my freezer stash is increasing rather than decreasing. I have "over-produced" by about 12 ounces in the past 24 hours, as well as nursing/feeding Marius and nursing Raph a couple of times.
One problem comes with this: Marius had one nursing session very early this morning which was strictly "from the tap" and his poop this morning was tinged green. So I guess I need to lay off on the pumping some to decrease my supply... but I *hate* the feeling of not emptying my breasts properly. Especially now that I know that the right one hasn't ever *been* emptied properly in the last two years (before now, I mean). I don't know if any of you has ever not emptied a breast and how it feels really hard and stuff, but... try to imagine the relief of, after it being that way for two years, it finally NOT being that way.
Anyway, going to get some supper prep done while I have a minute.

Wife of Michael , SAHM to Aristotle 09/99 Raphael 06/07 and Marius 05/09 Known only in dreams but never forgotten: Euphrates Decluttering 290/2010
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#64 of 622 Old 06-22-2009, 06:11 PM
 
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Hey, everyone! Just passing through, but wanted to mention that I'm ordering some fun books today! (Brownstein's Iodine book and Gropper's Nutrition lalala--not the desk reference.) I found it for like new with info trac for 20$. (Groppers) So I ran with it, lol. :

I trialled eggs yesterday and today with DD1 and haven't noticed a difference, so I'm wondering if I just wasn't overdoing it (we were eating A LOT of eggs) and it was more a sulfur thing? Could that be possible? I'm excited to get these books!

I've got my followup with the ND on Wed--wish me luck!

JR-- YAY MARIUS!!! Eating like a man!

Chlobo, you are awesome! For me, it's tortilla chips. I hear ya on losin a snack food. I'm so on the fence on corn. I've been so stressed out this past week that I've postponed even thinking about it until I get to a better place, emotionally. (I had TWO awful days every bit as bad as my horrid Saturday last week.) Definitely be talking that over with the ND.

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#65 of 622 Old 06-22-2009, 06:32 PM
 
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One problem comes with this: Marius had one nursing session very early this morning which was strictly "from the tap" and his poop this morning was tinged green. So I guess I need to lay off on the pumping some to decrease my supply... but I *hate* the feeling of not emptying my breasts properly.
I went through this with Miriam a couple months ago. Can he fully drain one side? You could always block feed to make sure he gets the hind milk. Make sure you pump the other side though, my supply dropped passed the point of recovery by block feeding and not pumping too.

Taryn-31 Crunchy Conservative Catholic SAHM with DH-32
DS 7.5, DD 5 (vbac), DD 2.5 (vbac), and DD 12/30/13 (vbac)

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#66 of 622 Old 06-22-2009, 06:44 PM
 
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One problem comes with this: Marius had one nursing session very early this morning which was strictly "from the tap" and his poop this morning was tinged green. So I guess I need to lay off on the pumping some to decrease my supply... but I *hate* the feeling of not emptying my breasts properly. Especially now that I know that the right one hasn't ever *been* emptied properly in the last two years (before now, I mean). I don't know if any of you has ever not emptied a breast and how it feels really hard and stuff, but... try to imagine the relief of, after it being that way for two years, it finally NOT being that way.
Yup, I so know that feeling - one limp boob, one porn rock star boob. Anyhow, one way to handle it with Marius is to pump a couple ounces off the side you are going to put him on, then put him on - he'll get more hindmilk that way. I generally tossed that milk instead of freezing, or blended it with the other side to get more balanced milk in my stash. I also got pretty good at nursing on one side, pumping at the same time on the other - it seemed to stimulate things less than nursing and pumping at two different times. Give your supply a few days to adjust.

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
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#67 of 622 Old 06-22-2009, 07:00 PM
 
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So I've been trying to figure out what is causing an set of reactions for DS. Harder to get back down at night after he nurses, occasionally stuffy, but hard to relate to something we ate, more fidgety while nursing, some higher maintenance times in the day, but not consistent, and wanting to nurse more often. Not quite like his other food reactions, kind of a blend of several. Confusing. I finally decided maybe the kefir was failing after all.

Then I realized he's cutting a molar

Which is great news - it means that something diet wise is making a big difference in his pain threshold (prostaglandin breakdown is working better now with less inflamation maybe???). Teething is usually high holy hell at our house. This is MINOR by comparison. And it means the kefir is probably fine . And it means we only have 4 more teeth and this house is DONE with teething. For which I will fall down on my knees and thank every deity there is. I have lost more sleep to teething...

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
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#68 of 622 Old 06-22-2009, 07:11 PM
 
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Yay for teething (and not a food reaction)!

You guys better go put your blogs (KATHY, JR, meno?, I know I'm forgetting people..) in the Resources sticky before they axe the signatures. Mine's already up there, but I'm pretty annoyed that I'm going to have to link to it in a million posts now. :

Mom to DD1 (10/07) and DD2 (3/11)
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#69 of 622 Old 06-22-2009, 07:14 PM
 
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CS and Kathy, Please Save Your Signature! http://www.mothering.com/discussions...3#post13976663


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I have a blog.
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#70 of 622 Old 06-22-2009, 07:52 PM
 
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CS and Kathy, Please Save Your Signature! http://www.mothering.com/discussions...3#post13976663


Pat
That's funny- we totally cross posted.

Mom to DD1 (10/07) and DD2 (3/11)
geek.gif I blog about our life with food allergies and eosinophilic disorders.
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#71 of 622 Old 06-22-2009, 08:24 PM
 
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And it means we only have 4 more teeth and this house is DONE with teething. For which I will fall down on my knees and thank every deity there is. I have lost more sleep to teething...
I am just getting started...DS is cutting his second. It looks so cute though but I agree, it can be hard to tell the difference between a food reaction and teething. It makes me crazy some days!

Some news today, I had my hematocrit checked and despite my "limited" diet my iron levels are fantastic. DS too! That's a good sign isn't it? I was very happy and felt like saying...HA! See you can have a iron-healthy baby without fortified cereals. We haven't had iron-fortified foods in months. Just whole healthy foods that the body can actually process. But I just smiled politely instead.

Mom to DS(17) autismribbon.gif DS(15) autismribbon.gif DS(12) autismribbon.gif My gifted, quirky, wonderful teens!

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#72 of 622 Old 06-22-2009, 08:59 PM
 
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Kathy, the only nutrient I know for taste is zinc (I'm sure there are a bazillion others I don't know). Antibiotics are acetylation, which is most of the adrenal stuff (B5, B6, mag, etc) plus B1.

I haven't in a bit, but for a while there, I was dreaming I was meeting some of you in person... I think it was kathy in a coffee shop somewhere, and elisabeth leading a week-long hike in the mountains with a few others, but I forget who (that was one WEIRD dream). Now I've got totally wrong mental images...
I don't really frequent coffee shops.... if it was the Asian market or Whole Foods or something, it would be more believable!!

Maybe I'll have to up my zinc. Another strange thing, I had a smoothie at lunch and again after dinner. After the first couple of icky sips, it turned good. So I'm wondering if I freeze my tastebuds before every meal, if it would taste normal.... how weird is that?

So it sounds like they're just getting rid of signatures and then you have to re-create (or save)? But you can't have a link to it unless you're a business? Can we still link to other websites and such in normal text?

Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)
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#73 of 622 Old 06-22-2009, 09:11 PM
 
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hehe, that reminds me - I PASSED THE ZINC TEST!

And I wasn't supping (much) and I have absolutely no explanation, other than maybe I didn't do it right the first time (not enough quantity/time)? Or maybe I'm just lucky and healing in unexplainable ways?

For the uninitiated, it's a zinc sulfate solution and if it tastes like water, you're deficient. This time it definitely tasted slightly metallic-y

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Eating shouldn't be stressful!
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#74 of 622 Old 06-22-2009, 10:11 PM - Thread Starter
 
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whoMe, I've read different accounts of what's exactly a pass, whether the taste is really a spectrum, from "like water" to "nastiest thing on the planet" with gradations in-between. But between supplementing a bit and doing other things to reduce systemic stress, it sounds like good improvement. I really need to get some of the Solgar lozenges, it seems like such an easy way to test periodically.

earthmama--yay!

mamafish--yay!

kathy--wish I had ideas on the metallic taste, that's got to mean something, I just have no idea what.
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#75 of 622 Old 06-22-2009, 10:59 PM
 
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Oh good, I'm like, "oh crap, like I just gave her another thing to worry about" . For the vitamins, they suggest for the really, really, really sensitive child, you start with the minerals only for a while, then add the vitamins. In both cases you start with 1/8 the full dose, and work up. Here's there suggestions on how to do that. For us (we're the same weight class as you, 1/2tsp would be a full dose), so that was barely drops to start. I use a small leftover Motrin squirter put in a little bit, and squirt when I can get a chance! I started the vites and minerals at the same time, but I give them separately (to give the best chance for absorption), and I make sure to give the vitamins with food/nursing - the minerals seem fine on an empty stomach. After 3 weeks we are up to 1/4tsp each. I'm not feeling a huge need to get to the "full dose", I'm just trying to get in what he will take without too much fussing, and feeling glad for the added nutrients. I really hope they work for Ella, you so deserve something to work!
thanks for this, ill start her on the minerals very slowly and see what gives. like you said, if she doesnt tolerate it (:fingersX), ill take them myself.
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homo for A1298C? That's the one that slow in the 'backwards' direction, converting methyl folate into folinic. That reaction is where you recharge BH4, and it's the end result (folinic?) is the form of folate that's used to make purines, including the ones that make BH4 in the first place. I don't know if folinic needs B12 to absorb it or not.

BH4 (tetrahydrobiopterin) is used for dopamine and serotonin and thyroid hormones and melanin and... And low BH4 is what we're trying to fix right now for us. Are her reactions largely behavioral? Mag is making a huge difference for us - after so long of knowing I should, we finally switched to natural calm, and I can take so much more and dd will drink some directly in tea and she's in such a much better mood for it. There's a biopterin supplement you can buy. It might be worth looking into that for her? There was someone on failsafecompanions who is/was trying it for her son.

I don't know which form would be best for you. If you're looking to mostly help Ella, then the folinic might be the best bet. If you're trying to heal yourself as well, the 5-MTHF is probably more useful for you. Healing yourself is probably going to end up with more reactions for her short term, though. Hmm... (sorry, no coherent train of thought, just bubbling over with ways to help you two) You might want to try avoiding the folate a little right before the B12 shots. Since the two work together to make methyl groups and I think it's the creation of methyl groups that you're reacting to, then a shot of B12 while you have a bunch of folate in your system might cause a huge reaction. IIRC, B12 can store in your body more than the other water soluble vitamins. So if you worked on replenishing the B12, then you could slowly ramp up the folate? Ooh, ooh, and maybe if you did that, and got high B12/low folate for yourself w/o reactions, then you could give the folinic to ella, and then *she* could open up that detox pathway before you. Then she might not react as bad to you opening it up yourself?

We have so many pieces of the puzzle for you two. I'm actually really excited. I have a feeling you're going to be the next big success story here. :
i keep thinking that one big piece will come along and solve the whole puzzle!
the biopterin is really interesting, ive def never even heard of it. id really like to ask my ped what he thinks about that. i think i teach him some things too during my appointments (well, i regurgitate stuff that i learned here). i wonder if you can just take it as a supp and bam, more bh4. i wonder if there are any other negative consequences? doesnt seem like there should be.
her reactions are largely behavioral, sleep and poop related. i've looked at the natural calm so many times and thought " i dont know if there's corn in it" and it says " contains no starch, sugar, yeast, coloring or preservatives" so what about all the others? gluten, casein, soy, etc? i should just suck it up and contact them, i'm so lazy sometimes!
i like your thinking about opening hers and then mine, you're so friggin smart, shannon. i wasnt even thinking along those lines, but that really makes the most sense (fyi, i started holding the folapro when i read this a few days ago since my b12 shots should be here tomorrow- im sorry i didnt respond sooner though). happily, i have been swallowing 400mcg of b12 without any weirdness ( i know its not really absorbing much, but its still better than instant hives and rage).

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Margo, for antifungals I'm using caprylic acid and citrus seed extract and Candibactin. My doc also recommended Pau d-Arco. Oh, and then calcium d-glucarate to help mop up the toxins caused by the bad bacteria.

Cheers and hugs for you both...
its funny because i was interested in pau d arco, but couldnt really remember all the yeast info. i was considering threelac, but ella's the one who really needs it and i know that stuff is crazy strong. i mean seriously, she doesnt tolerate food, threelac might be a nightmare. i was going to try to skim through some of calm's css thread again. i def didnt remember the calcium d-glucarate even though i know thats more recent info relating to all the detox stuff. thanks for sharing your regime
congrats on the egg/goat milk business! that is so awesome!!! im sorry T hasnt been eating as well as before. the way you described her sounded just like ella lately! ella was so disinterested in bf for a long time and lately is totally connected to me all the time, but for us its a good thing because of the lack of safe solids situation. i hope you get some rest soon!

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Ellasmama: Do you have a thread that has everything in it? I feel like we're missing key information, like a timeline.
kathy, im sorry about the 3 months of abx and the taste issues . are u still having pain in your kidney?
i dont have a thread because i always feel like im being given so much already and not contributing nearly enough. i know i probably would conserve more of everyone's time if i did make my own thread, but i just felt badly asking anything more of everyone.
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My prediction is molybdenum-responsive sals/sulfite issues

Seriously, though - I've been seeing molybdenum deficiency in EVERYONE. It's one of those minerals that depends on soil quality. I wonder if we just have an epidemic of low molybdenum? (because cs and j are hogging it all ) I don't think I was deficient until I started supping folate - at which point I could suddenly start using it like I was supposed to, and so my requirement increased to normal, and BAM, dd and I were deficient. I was giving dh a little folate here and there, and he developed asthma-like symptoms that went away when I gave him a little Mo here and there... I think I might be on to something here!
i just started supping mo 300mg per day last week. i feel so in the loop .

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Also, insect bites. The kids all use the same shampoo, but DD2 keeps getting bug bites in her hair, and gets huge reactions to them, including enormous lymph nodes in the back of her neck. I've tried putting the natural bug spray on her and it didn't help. They're not biting me or DS, though DD1 got a couple bites today. But she doesn't blow up like DD2 does. I don't know why they're getting in her hair....

There was an interesting part about eczema though. It says that kids who have eczema do not regulate body temperature well. It says they often perceive how hot or cold it feels differently from other people in their family, so let your kid dictate how many layers to have on, etc. It was something I don't remember hearing before.
its interesting because the noseeums here always go for dds hair too. i thought it was something related to yeast on the scalp. you know how some people get itchy head at night when they have yeast issues. i thought the bugs go for the yeastiness that forms on the scalp that we dont detect.

what a shame, that really is frustrating.

JR, im so happy to hear about marius eating and gaining (and your icky boob).
cs, i dont know how you are working, juggling everything at home, dealing with the house inspection stuff and dealing with flood damage/ floor sleeping.:

WELCOME BACK PB!!!!
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#76 of 622 Old 06-22-2009, 11:10 PM
 
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I haven't tried any homeopathy because I'm waiting for someone to start her business. Of course now I'm out-of-state for the summer, so it'll have to wait until fall unless she does email consults....
Okay....we can certainly figure that out. In the meantime this may help.
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#77 of 622 Old 06-22-2009, 11:16 PM
 
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its interesting because the noseeums here always go for dds hair too. i thought it was something related to yeast on the scalp. you know how some people get itchy head at night when they have yeast issues. i thought the bugs go for the yeastiness that forms on the scalp that we dont detect.



WELCOME BACK PB!!!!
Well, there seems to be a correlation between those that are susceptible and react strongly to the bites and certain nutrients that are depleted. I do think that it's related to yeast...not as a causative factor necessarily as a deeper indication of an imbalance. Anyway....thanks! I missed you, mama!
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#78 of 622 Old 06-22-2009, 11:22 PM
 
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thank you, ive definitely missed you too .
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#79 of 622 Old 06-23-2009, 12:57 AM
 
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Some of your posts have the quoted piece removed as it was a UAV.
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Our copyright guidelines are not new. Quoted text needs to be kept to a 100 word minimum which, with a link to accompany is enough to share ideas and information.

If you have permission from the author of said text, you can post more than 100 words.

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Please feel free to PM me with questions.
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#80 of 622 Old 06-23-2009, 01:03 AM
 
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: Feeling too frustrated to hang out at MDC anymore tonight.

Mom to DD1 (10/07) and DD2 (3/11)
geek.gif I blog about our life with food allergies and eosinophilic disorders.
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#81 of 622 Old 06-23-2009, 01:11 AM
 
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#82 of 622 Old 06-23-2009, 09:02 AM
 
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Just started my three week vacation with the inlaws (the hair cutting, poor quality vitamin taking, mostly wonderful with the grandkids inlaws).
It is gorgeous and peaceful here..
I will mostly just be using my itouch, please forive weird typos.
I'm going through some odd emotions due to the mercury rx. I sometimes feel so frustrated and helpless and unsure of how to tackle it. Othertimes I figure I should just keep plugging away and will figure it out. I need to update my thread and discuss it there. I'm getting bladder pangs again. I think I should up my cantharis remedy to 200.

Tanya - it's a real comfort knowing you are around. I am feeling lost sometimes but knowing I can your support and knowledge helps.

Chlobo - cape cod potato chips use canola oil.
Kathy - I'm sorry about the longterm abx. I wish I could help.
CS so close to moving woohoo!!
Margo - there is so much knowlege here- use it. Make a thread for yourself. Never question your giving. You are a source of love and light here.
PB - it is wonderful to see you here. I hope that means life responsibilties have eased up a bit. (not an entirely unselfish thought since this Boston mama hope to take trip to southern new england to hep with our next stage of healing.)

JR love and peace being sent your way

Mtn mama - congrats on the goats. It does sound like more FEs will help T. On the trip down here, I decided I need to get one (from PB)for my oldest.
Peace, love, health and happiness everyone

Off to study my fe book - hoping to get some emotional relief and then some kayaking around the bayt

Children deserve the respect of puzzling it out.
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#83 of 622 Old 06-23-2009, 11:07 AM
 
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A couple of questions:

Does anyone know if Bob's Red Mill Xanthan Gum is corn derived? Wasn't there a good corn free brand?

Also, where do folks get their gluten free vanilla? Would that have corn in it as well?

Mom to DMI & Silly Apple
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#84 of 622 Old 06-23-2009, 11:11 AM
 
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I just saw this posted elsewhere.

http://www.whatsonmyfood.org/index.jsp


Pat

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#85 of 622 Old 06-23-2009, 11:18 AM
 
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Well I sort of deleted the whole quote because I was talking to my mother at the same time and got confused.... yes, make your own thread so we can figure it out better.

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Does anyone know if Bob's Red Mill Xanthan Gum is corn derived? Wasn't there a good corn free brand?
I don't know. I've been using karaya gum (Wilton's Gum-Tex).

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Also, where do folks get their gluten free vanilla? Would that have corn in it as well?
Vanilla from tahiti (vanillafromtahiti.com, I think, but not sure) is corn free, and gluten free too, I think. It's expensive. I'm making my own. I used Luksusowa potato vodka and vanilla beans. It's been sitting for 3 weeks now and smells pretty good. It's supposed to take 2 months.

Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)
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#86 of 622 Old 06-23-2009, 11:57 AM
 
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I just saw this posted elsewhere.

http://www.whatsonmyfood.org/index.jsp


Pat
WOW- yikes. Good link!!

Mom to DD1 (10/07) and DD2 (3/11)
geek.gif I blog about our life with food allergies and eosinophilic disorders.
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#87 of 622 Old 06-23-2009, 12:52 PM
 
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DS is out of ketchup and I looked on my blog and it wasn't on there (only last summer's recipe that he didn't particularly like). So I looked on the recipes sticky and it linked it to a chat thread where there were a bunch of recipes. Holy cow, we used to be chatty -- way more posts than we do now in a given week!! But of course my recipe said stuff like "some garlic" and "some onion" then it said I added some more water and some olive oil. Hello? Amounts? What was I thinking? I guess this is experiment #2. Right after I move some rock and hurt my back some more.

Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)
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#88 of 622 Old 06-23-2009, 12:58 PM
 
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Also, where do folks get their gluten free vanilla? Would that have corn in it as well?
No idea. Right now in my pantry is TJ's alcohol free vanilla. It has glycerin? What is glycerin made from? I spent a few minutes googling with no answer. I know someone here must know. I plan on making my own too. Its a lot cheaper. I bought a kit once, you use the same vanilla beans for up to 7 years and just keep topping off the alcohol.

Taryn-31 Crunchy Conservative Catholic SAHM with DH-32
DS 7.5, DD 5 (vbac), DD 2.5 (vbac), and DD 12/30/13 (vbac)

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#89 of 622 Old 06-23-2009, 01:00 PM
 
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Catching up after several days:

-----------

Thanks to those who dug up the "ricotta" thread for me!

-----------

I read on the previous chat thread something about a link between cavities and low Mo?

At this point, I am keeping an eye out for anything related to cavities, because I went from being very resistant to cavities, to getting a bunch of them since March.

I was super sick in March with a horrible stomach virus, the likes of which I have never before seen. Afterwards, I commented to DH that I felt like I had billions of tiny holes in me where there used to be a stored nutrient.

That was the beginning of my big decline. I guess I have always had some minor detox pathway issues, but after March my digestive symptoms became a really big deal. Now I am battling yeast.

I never had before any of the other things I see you ladies talk about as going with Mo deficiency. So, perhaps I wasn't deficient until recently.

Leigh, mama to Rostislav homeborn Aug 9 2007, and Oksana homeborn Feb 24 2011.
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#90 of 622 Old 06-23-2009, 01:03 PM
 
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No idea. Right now in my pantry is TJ's alcohol free vanilla. It has glycerin? What is glycerin made from? I spent a few minutes googling with no answer. I know someone here must know. I plan on making my own too. Its a lot cheaper. I bought a kit once, you use the same vanilla beans for up to 7 years and just keep topping off the alcohol.
I'm not sure about glycerin but I know most of TJs stuff is processed in facilities contaminated by wheat.

Mom to DMI & Silly Apple
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