Steroid Creme Alternatives? - Mothering Forums
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#1 of 28 Old 03-03-2010, 05:05 PM - Thread Starter
 
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I am using a VERY strong steroid creme twice a day on my 14 month old son. I have been looking for an alternative replacement while we heal the underlying cause. I have tried a couple of dozen different product with no luck.

The best I have found so far is Wise Woman Herbals, Wild Weed Salve. The ingredients list goes like this: Olive Oil, beeswax, calendula, marshmallow, St. John's wort, English Lavender, plaintain, chickweed, stinging nettle and vitamin E.

Has anyone tried this product?
http://www.amazon.com/Black-Walnut-T.../dp/B0002JSQIM
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#2 of 28 Old 03-03-2010, 08:38 PM
 
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Haven't tried that one, but I can tell you we tried a LOT of products on DD's eczema when she was small. (I know you were asking on the other thread if anyone wanted to share pictures- I have some of DD on my blog- click my username. They don't show her at her worst, but there are a couple where her face is open and oozing.) I can tell you that absolutely none of them worked, at all, except possibly to make the dry itchies a little more bearable. The things that worked the best for us were probably evening primrose oil and emu oil.

The only thing that actually did something for the eczema was pulling allergens from our diet. We just kept pulling foods and switching foods on the ED, and pulling more foods... and eventually the eczema went away. But it took us about a year, and we were down to less than 10 foods (for over a year before we could start adding thing back in- and we still don't have many more than that now.)

Mom to DD1 (10/07) and DD2 (3/11)
geek.gif I blog about our life with food allergies and eosinophilic disorders.
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#3 of 28 Old 03-03-2010, 11:35 PM - Thread Starter
 
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I am just looking for a steroid creme alternative, but thank you for sharing your allergy/elimination diet (we are doing that too).
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#4 of 28 Old 03-04-2010, 12:02 AM - Thread Starter
 
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Here are some images of my son's rash 3 weeks into starting over on the elimination diet and 9 days after stopping steroid creme. It has been this severe without improvement for 11 months.

http://i80.photobucket.com/albums/j1...o/IMG_9054.jpg

http://i80.photobucket.com/albums/j1...o/IMG_9053.jpg

http://i80.photobucket.com/albums/j1...o/IMG_9052.jpg
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#5 of 28 Old 03-04-2010, 12:26 AM
 
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I am just looking for a steroid creme alternative, but thank you for sharing your allergy/elimination diet (we are doing that too).
I know that you don't want other suggestions, but you're going to get them in this forum anyway. I don't blame you at all for using the steroid cream- obviously you need to keep your LO comfortable with all that eczema. But I also want you to know that there are a lot of mamas here that have had just as severe of issues with their babes, and they can offer you support and advice. Like I said, the pictures I posted on my blog are by far not the worst, and if you are interesting in reading our story you'll see that we have been through quite a bit with this allergy stuff as well. So I completely understand your frustration that everyone is just giving suggestions, but nothing is working.

I noticed that one spot on his back looks round, with a clear spot in the middle. I have similar eczema on myself which I had self-diagnosed as nummular eczema after seeing pictures online.... but have since found that same rash (round, w/central clearing) can also be ringworm or Lyme disease. Have they confirmed this is atopic eczema?

Mom to DD1 (10/07) and DD2 (3/11)
geek.gif I blog about our life with food allergies and eosinophilic disorders.
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#6 of 28 Old 03-04-2010, 12:54 AM - Thread Starter
 
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You are absolutely right sweetheart, thank you.
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#7 of 28 Old 03-04-2010, 12:56 AM - Thread Starter
 
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Can someone point me to a forum that might have some information on steroid cream alternatives (topical)?
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#8 of 28 Old 03-04-2010, 01:31 AM
 
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omg- I'm not trying to tell you not to post in this forum. I'm trying to tell you that the people here are trying to HELP YOU. Everyone here feels the frustration of having a baby that is in pain, miserable, and you can't do anything about it. That is why people are giving you suggestions. You are more than welcome to ignore them, but you can't very well tell people not to give them.

I'm also trying to tell you that there are NO, I will repeat- NO- topical steroid cream alternatives that are going to make the eczema go away. There just aren't. Eczema is a external manifestation of something going on inside the body, so unless you fix the root source you can't get rid of the eczema. I know that you are working on that already. But if you want the eczema to magically disappear right now, then you'll probably just have to continue using the steroid cream.

eta: Also- if you read my first post, you'll see that I did give you 2 suggestions for topical oils to use to ease discomfort.

Mom to DD1 (10/07) and DD2 (3/11)
geek.gif I blog about our life with food allergies and eosinophilic disorders.
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#9 of 28 Old 03-04-2010, 11:39 AM - Thread Starter
 
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I understand that you feel very strongly about this. Again, thank you! I will look into getting a sample of emu oil and/or epo. Typically, oils have not been good because his rash is raised and oozing with open sores. The Wild Weed Salve is working exceptionally well while we work with our team to re-establish the ecology of his gut, which is so severely damaged that it could take years to heal. We are down to steroid creme once every 7-10 days and that is progress. We have naturally reversed his reflux which is progress (it took 10 months). In the meantime, we must use *something* topically to keep him comfortable. The Wild Weed Salve is pretty magical, but you never know if there is something better out there. After all of the suggestions from this board, my son, my husband and myself had 2 hours of sleep last night. The poor baby is in such distress that his emotional and physical development has been delayed and if daddy doesn't start to get some sleep, he could very well lose his job.

Do I sound like a broken record?

With Joy,
Nicole
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#10 of 28 Old 03-04-2010, 12:04 PM
 
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Originally Posted by nicole_marie View Post
I would be very hesitant to put a nut oil on a baby based on the allergenicity of nuts. I don't have an alternative though. Sorry.

Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)
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#11 of 28 Old 03-04-2010, 12:47 PM
 
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I have great trust in susan weed, and have used her wise woman ways for myself, my patients and my family. I also believe local is best, and the wise woman knows that plants that grow near her loved ones are usually the best ones to try! Good luck, this is a long and winding road, but so worth it for our DC!!!

Mother of one DD (2) , wife to DH and newly addicted crochet-er
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#12 of 28 Old 03-04-2010, 12:48 PM - Thread Starter
 
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I would be very hesitant to put a nut oil on a baby based on the allergenicity of nuts. I don't have an alternative though. Sorry.
Great point, I totally missed that.
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#13 of 28 Old 03-04-2010, 12:50 PM - Thread Starter
 
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I have great trust in susan weed, and have used her wise woman ways for myself, my patients and my family. I also believe local is best, and the wise woman knows that plants that grow near her loved ones are usually the best ones to try! Good luck, this is a long and winding road, but so worth it for our DC!!!
Thank you for sharing your wisdom! Someone on this board mentioned the Vitamin E may be a problem?

xo
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#14 of 28 Old 03-04-2010, 01:20 PM
 
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If it's "natural" vitamin E (not synthetic), it is most likely derived from soy.

Mom to DD1 (10/07) and DD2 (3/11)
geek.gif I blog about our life with food allergies and eosinophilic disorders.
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#15 of 28 Old 03-04-2010, 01:29 PM
 
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We had success with epsom salt baths to help DD with eczema on her feet (I know that it won't help with face). Another benefit was that she slept better.
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#16 of 28 Old 03-04-2010, 02:49 PM
 
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There's another allergy board where I've heard many moms talk about a techique called "wet wrapping". I think you'll have to google it but the gist of it is basically lathering your kid up and wrapping them in wet fabric and it is supposed to help keep the moisture in and help the skin heal.

The website I read about it on is called "kids with food allergies". Unfortunately you have to pay to join it and you are not allowed to discuss anything alternative. However, I guess the wet wrapping isn't that far out there b/c there was lots of discussion on that board about it.

Mom to DMI & Silly Apple
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#17 of 28 Old 03-04-2010, 06:22 PM
 
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There's another allergy board where I've heard many moms talk about a techique called "wet wrapping". I think you'll have to google it but the gist of it is basically lathering your kid up and wrapping them in wet fabric and it is supposed to help keep the moisture in and help the skin heal.

The website I read about it on is called "kids with food allergies". Unfortunately you have to pay to join it and you are not allowed to discuss anything alternative. However, I guess the wet wrapping isn't that far out there b/c there was lots of discussion on that board about it.
You can join that board without paying, but you can only see the main forum. There is info about wet wrapping in the main forum.

http://www.kidswithfoodallergies.org/community.html

-Kathy First time Mom to Son F, born April 30, 2009.
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#18 of 28 Old 03-04-2010, 06:56 PM
 
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Nicole, my son is also dealing with itchy painful eczema even with a limited diet free of all major and most minor allergens. It's frustrating to see him suffering. We used a steroid cream once a day for 2 weeks, and it was so nice to see him be able to relax. We are having some additional blood testing done, so we can't do steroids again right now. I have also been seeking something topical in the meantime.

I just ordered two new products. They were recommended by Edgar Cayce for psoriasis (back in the 1930's).

They both got good reviews on the sales sites, including some users saying they worked as well as steroids for them. Of course, the product labels say check with your doctor for children under 2.

http://www.drugstore.com/products/pr...02&catid=13140

I am trying this out today on the back of my son's knees.

http://www.amazon.com/Resinol-Medica...pr_product_top

I have not tried this one yet.

Please keep me posted on your progress with any products that help.

-Kathy First time Mom to Son F, born April 30, 2009.
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#19 of 28 Old 03-04-2010, 08:05 PM - Thread Starter
 
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There's another allergy board where I've heard many moms talk about a techique called "wet wrapping".
Great suggestion on the wet wraps! We were doing those three times a day in the beginning before we realized that our son's eczema was not "typical" [dry skin] eczema. It's more like sebbhorrea and it thrives on moisture which is why none of the eczema creams or treatments work on his rash. We put epsom salt in all of his baths now which is keeping the yeast and bacteria under control (for the most part). As much work as they were three times a day, taking two of us to keep him wrapped for the entire 15 minutes, I WISH they would have worked. It's another one of those things that we put a lot of time into and it ended up making his rash worse. I wish it were summer so that he could run around naked again...that seems to be the best treatment for him. Today he has pants, socks, robeez boots, no shirt and leg warmers on his arms. I'm letting the rash on his tummy and back breathe and it is working well. It flares up with heat, too much moisture or stress. Once his leaky gut is healed, we may find that he doesn't have many true allergies at all.
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#20 of 28 Old 03-04-2010, 08:12 PM - Thread Starter
 
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I just ordered two new products. They were recommended by Edgar Cayce for psoriasis (back in the 1930's).

Please keep me posted on your progress with any products that help.
Thank you! These are so affordable too...I am going to check with our naturopath on the safety of these two products vs the steroids (which I am sure is a no brainer). If we can keep steroid use down to an absolute minimum, I would be a very happy mama!

I will keep you posted on his progress.
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#21 of 28 Old 03-04-2010, 09:49 PM
 
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Here are a few alternatives. I'll try to find links to confirm ingredients.

An old timey solution we used was Burow's Solution. It is Aluminum Acetate resulting from the reaction of Calcium acetate and Aluminum Sulfate. It is buffered. I imagine it is the sulfate which helps, similar to Epsom salts which is magnesium sulfate.
http://allnurses.com/nursing-student...on-180652.html
http://allnurses.com/nursing-student-assistance/burrows-solution-180652.html
http://www.merck.com/pubs/mmanual_ha...h35/ch35f.html
http://www.merck.com/mmhe/sec18/ch203/ch203c.html
http://merck-ut.merck.com/mmhe/sec18/ch202/ch202c.html

We'd make a solution with water and the Burow's Solution powder. Then make moist wraps of gauze and wrap the open skin area to keep it moist and to allow the sulfate topical absorption. Sulfate is critical to opening the sulfoxidation process- detox pathway. http://www.detoxpuzzle.com/sulfate.php

Other conventional treatments are Silvadene Cream, which we used for burns and other large areas of open skin. Silvadene is a sulfa derivative.
http://www.healthsquare.com/newrx/sil1404.htm
http://www.merck.com/mmpe/sec10/ch11...lvadene&alt=sh

I assume you've tried Calamine Lotion and Benedryl topically.

Homeopathic Apis Mellifera in pellets and cream will help with itching.
http://www.herbs2000.com/disorders/shingles.htm
http://www.altmd.com/Articles/Homeop...kin-Conditions
http://www.worldwideshoppingmall.co....thy-eczema.asp
http://www.homeopathic.com/store/product=1011

Eczema:
- -support lymph system's ability to detox Lymphomyosot
- -dry, itchy Sulphur 30C
- -topical Calendula ointment 3.5oz
- -topical Calendula ointment 13.5oz
- -itch, burn, swell Arsenicum Album 30C
- -scalp Kali Mur 6X

Udder Balm is another ole timey salve for open skin. "Bag Balm" is another version. Again the active ingredient appears to be sulfate!

Flanders Buttocks Ointment saved my son's butt. No joke. Dairy-caused excoriated skin beyond open and weeping. It was raw, hamburger looking skin in contact with green, mucous stool.

The ingredients are Zinc Oxide and Peruvian Balsam (these are the only ingredients listed on the tube!) It is the balsam which apparently has some healing properties. It would heal in 24 hours, until the next allergen exposure. Zinc Oxide alone didn't have the same effect. Flanders WILL STAIN anything it touches or rubs off on. His cloth diapers were permanently brown, forever and ever. (I assume you are not using any alcohol or antimicrobial based diaper wipes.) I don't think it is safe for baby to ingest this though.

Oatmeal baths help for soothing, unless a severe gluten allergy.

There is a "Miranda Castro 7-cream" which is legendary in Europe. Although, it has coconut oil.

Manuka honey is an amazing healer.
http://www.naturalnews.com/027170_ho..._bacteria.html
http://www.ncbi.nlm.nih.gov/pubmed/15979745

Shea butter is another holistic alternative. Source: http://www.agbangakarite.com/
http://www.pioneerthinking.com/cd_sheabutter.html
Quality grades: http://sheainstitute.com/index.php/t...a-grading.html

Topical probiotics (dairy-free). Water kefir could help, from my understanding of the microbial benefits.

Other researched alternatives are: licorice gel, chamomile cream, witch hazel extract, evening primrose oil and borage oil. These are diluted applications, it appeared from quick glance.

Additionally, Soaking in kelp and/or bentonite clay infused water helps.
http://www.shirleys-wellness-cafe.com/eczema.htm


Pat

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#22 of 28 Old 03-04-2010, 10:27 PM
 
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Caution, both of those have many allergens as active and inactive ingredients.


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#23 of 28 Old 03-05-2010, 02:27 PM
 
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First of all, big hugs. It is really hard to see your little one so uncomfortable and to top it off have to restrict your diet. My little one was 4 months when eczema became a problem so I focused on my diet mainly. I went back and forth thinking that she was allergic to everything or nothing, soooo frustrating. Here's what finally worked for us. Her skin has been clear for a couple weeks now.

- I tried to balance my body ph ( lots of info on the net for this)
- I tried to get my gut ecology bacK in balance ( I used nutri biotic to kill candida and probiotics to build up the healthy stuff
- eliminated ( with the occasional slip) dairy, nuts, corn, eggs, soy
- hypo allergenic clothes soap ( some of the "natural" ones have enzymes in them that can be irritating)

-no soap at all on the baby. On days when we are working on the cradle cap issue I just use olive oil on her head and rinse it off with water. babies hair is so fine that it doesn't actually feel greasy after this. Sometimes will add olive or coconut oil to bath to super moisturize her skin.

I have found now that my digestion is working better that I can be a little less strict on my diet. Dairy is still a big trigger but I found a small amount once a week is ok now. I hope this helps.
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#24 of 28 Old 03-05-2010, 07:28 PM
 
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Sorry I got rambling and forgot you had asked about topical treatments. I haven't tried it but I would assume you could try grapefruit seed extract extremely diluted in the tub. I had the most dramatic results when I started taking it orally to kill yeast. Babies skin cleared up in a couple days. From what I've read (please get a second opinion) babies can be given solution orally as well. Good Luck!
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#25 of 28 Old 04-16-2010, 09:22 PM - Thread Starter
 
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My son's eczema was non responsive to treatments (and actually got worse) because it was INFECTED WITH STAPH. I'm wondering if a simple course of antibiotics would have really been any worse than using steroid cream twice a day for a year...hmmmmmmmmmmm...not to mention the STRESS of trying to use alternative therapies.
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#26 of 28 Old 04-17-2010, 04:25 AM
 
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My son's eczema was non responsive to treatments (and actually got worse) because it was INFECTED WITH STAPH. I'm wondering if a simple course of antibiotics would have really been any worse than using steroid cream twice a day for a year...hmmmmmmmmmmm...not to mention the STRESS of trying to use alternative therapies.
Yes, it would have been better. I think your doctors failed you honestly. This finding isn't at all uncommon/unknown in eczema. http://pediatrics.about.com/od/eczem...zema_staph.htm http://www.webmd.com/skin-problems-a...ds-with-ezcema

I'd look heavily into staph control measures for the whole family.
I hope he's better very soon. I know this has been a long journey and, in your shoes, many would feel angry about it I'd think.

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#27 of 28 Old 04-18-2010, 11:40 AM - Thread Starter
 
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Thanks Rachelle, I think the most difficult thing for the alternative community should embrace is that eczema is often an inherited autosomal trait, much like hairline, freckles and the ability to roll the tongue. If you are doing *everything* and your child goes from growing well in the 90th percentile to FTT, you might consider the genetic factor.

I am a huge proponent of natural medicine and it cured my oldest son's eczema when he was a baby within 3 days and without an ounce of medication. He was allergic to dairy and sensitive to soy. We also added a probiotic and fish oil.
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#28 of 28 Old 04-18-2010, 01:32 PM
 
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Thanks Rachelle, I think the most difficult thing for the alternative community should embrace is that eczema is often an inherited autosomal trait, much like hairline, freckles and the ability to roll the tongue. If you are doing *everything* and your child goes from growing well in the 90th percentile to FTT, you might consider the genetic factor.

I am a huge proponent of natural medicine and it cured my oldest son's eczema when he was a baby within 3 days and without an ounce of medication. He was allergic to dairy and sensitive to soy. We also added a probiotic and fish oil.
I get your frustration. I feel similarly about reflux. I get frustrated because, in my son's case, it had nothing to do w/allergies or intolerances or my milk. Chiropractic and cranial sacral did nothing for his reflux. GI tested for their pet causes and shrugged their shoulders when the cause wasn't what they expected. In our case it had everything to do with internal muscle tone for him and I don't think he's terribly unusual in that though his severity was and the duration. At any rate, we wasted time and he suffered and lots of doctors (alternative and otherwise) failed him. When I sought advice online in various places people would tell me their pet whatever. Nothing helped. He was failure to thrive from 3 to 18 months and then things actually got worse.

I think we do need to look broadly. It's a human condition to put on glasses of our experiences that color or views of all similar things we encounter. That's true in all areas of course. We're better served and better able to serve others if we can at least be aware of what glasses we're wearing. You and I are, because of our experiences, now wearing new lenses. We too have to be aware that our thoughts in these areas are still heavily influenced by our experiences.

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