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Rachelle, mommy to 8 year old boys!
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2) Pancreatic support. There are several gene mutations that can play into this, but what happens is that your pancreas is "slow" on several functions:
a) blood sugar regulation (mood swings, crashes when you don't eat, etc)
b) pancreatic enzymes (poor digestion, sometimes in non-obvious ways - DS had low amino acids on a pee test, even though he eats lots of protein - I never guessed he wasn't digesting protein well, it wasn't obvious from his poop!). Poor digestion = bad gut flora, so many people find this is a core underlying cause in the inability to permanently improve their gut
c) glutamate -> GABA conversion. This is a big one for many autistic kids, because glutamates are excitatory (wild, unfocused, non-sleeping kids), and GABA is calming (focus, language, stability, better sleep)
I talked in the main chat thread about trying Yasko's special digestive enzyme blend as a good trial for if you need pancreatic support. If you discover those are beneficial, then extra vit D & K2, ground up pancreas, reducing glutamates and possibly supping GABA/valerian root could all be helpful in addition.
Wow. That's really interesting. Thank you for sharing.
I can't afford the genetics but you wrote a lot that fits us. I strongly suspect I and Andrew (and likely Caleb too) have glutamate issues.
Caleb has allergies that I can't get under control. He also came back with poor digestive enzyme activity in his metametrix even with enzymes. Folate doesn't do anything for him that I can tell. I'm using houston enzymes with him. Do you think the Yasko is superior? Can you tell me the label information on it please?
I have her hydroxy-b12 drops that I'm using with him. I stopped methyl b12 after reading up on it and realizing not everyone could process that form well. How many drops would you work up to?
In case people want to pursue it, can you post the link to the test again?
In the a, b, c choices above, am I reading it right that you could see symptoms in, say, category a, maybe b, but not really c, and that's probably just a gene combo? DH's family is still a bit mysterious to me but they have very few mood issues (except what seems like a low-level depression-type thing that generally correlates to years of not eating great). Can I mix and match symptoms like that? I don't need to know exact genes, I don't think, I just want to decide how to experiment on him.
I'm waiting for approval to join Yasko's forum... how clearly are things laid out there? Any getting-started docs, or do you just lurk and learn the ropes? Or would it really just be better to read her book, you said it was mostly online, Pathways to Recovery?
And thanks for writing this out... so helpful to see it laid out like this.
I really want to do this test. I'm thinking of trying it for myself first but I know the kids could use it too. DD STILL has loose poops and hasn't responded to anything yet (copious amounts of supps, probiotics, enzymes of different sorts), homeopathy, etc. Maybe I"ll do us both.
Becky, partner to Teague, SAHM to Keagan (7yo), Jonah (2yo)
|From mamafish9 from the last thread....
Yasko uses three different things primarily for pancreatic support - her special enzyme blend, with lots of pancreatin. Then ground up pancreas - which I think is basically what the vitacost stuff would replace (it has pancreatic enzymes too, in the ground up pancreas, but likely lower concentrations - DS didn't have nearly the reaction to the ground up pancreas as he did to the enzymes). Then three, a list of supps to support the pancreas. Or you can cover off #2 and #3 in this compounded supp she puts together (linking to that so you can see the list of compounds she suggests - this is all related to a key mutation in the vitamin D receptor that impacts pancreatic function, and increases the need for vitamin D).
If you can take it, I'd start with an enzyme with straight up pancreatin for most direct impact on digestion - and then if that works, consider some broader pancreatic support on the theory that the pancreas does lots of things besides digesting, so general support is good if there is indicators of pancreatic weakness.
Best place to get an overview of her stuff is her Pathways to Recovery book, you can read most of it on google books.
|Okay, so #1 above is a specific blend of digestive enzymes with lots of pancreatin ($20 = 17 days of an adult taking 2/meal, 6/day... most people start lower dosages, with kids it's a whole lot lower)
#2 is just ground up pancreas (some digestive enzymes in that, generally good/supportive for the pancreas?) (a product like this Nutricology pancreas supp is about $9/mo)
#3 is to help eventually not need #1 and #2?
(haven't looked at this list or costs yet at all)
Do I have that at all right?
|Looks about right, Tanya. FWIW, I've just done the enzymes, plus lots of greens (for the K) and lots of connective tissue/gelatin (for the glycine/serene). And am making Rosemary my new favorite herb. I think most of the benefit I'm seeing has to do with dumping my old gut bacteria more than anything else. I think it must have been eating my food/vitamins.
I'm debating bringing ds in to the doctors office for this round of bloody poop I'm pretty sure they wouldn't be helpful on the allergy/die off front, but they could confirm blood and check for any major stuff. And there'd be a record that I brought him in, for better or for worse.
|Yes on #1 and #2. #3 is in addition to #1, but replaces #2.|
|Originally Posted by changingseasons View Post
Ok- what's the difference between the pancreatic enzymes and the pancreatin support?? The ones I'm ordering are enzymes, right?
|I think what you're getting is basically pancreatic extract. So lots of pancreatic enzymes, but not quite as concentrated as the straight pancreatin (which I think is just really isolated pancreatic enzymes). Since you can only do lamb, it's the best choice for you, LOL! Dr. Yasko's enzymes have pancreatin, and then a bit of other enzyme stuff, papaya, etc. But that's not where the power is, IMO, and just adds a bunch of other potential allergens.|
|Yup, Yasko is very big on supporting organs, and supporting to bypass mutations, and then lots of other symptoms tend to resolve themselves. I don't like how she handles metals, but for a lot of other things, I think it's a really good approach.
Anther small example, DS' vitamin C need has cut in half in the last month (he had to be on 2000mg a day or he got a stuffy nose). So vitamin C got the job done, but it was just a bandaid on one symptom of poor methylation - now that he is methylating better, he doesn't need the vitamin C to handle the histamines.
We'll be rerunning his pee tests this month, so I should have very clear evidence of what differences have come from her supps (we ran the tests in mid March just before starting anything from her program, and we'll do them again in mid June, 3 months later, and after him being on most of what I think he needs based on his genetics).
I wonder...I've been trying to do green smoothies lately(I stopped awhile back because they were making me sick to my stomach) and unfortunately they're still making me sick to my stomach right after the first sip. I just can't get more than a sip down!
Could this have anything to do with what we are talking about???
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