Guess your genetics (Yasko related...) - Mothering Forums

Forum Jump: 
Reply
 
Thread Tools
#1 of 307 Old 06-03-2010, 02:28 PM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
As most of you know, we've recently run Dr. Amy Yasko's genetics test for DS, and are following a lot of her protocol. It involves targeted supplements to support each of his genetic mutations (she tests for a bunch of different gene mutations related to the methylation cycle).

We have discovered a couple of really important things for DS that I hadn't figured out from all the work I did last year. One, he needs a ton of pancreatic support (which addresses digestion, vitamin D use, blood sugar regulation, general gut environment). Two, he needs ridiculous amounts of B12 compared to the normal person, and he needs it in non-methyl B12 form (mostly hydroxy, some adenosyl). Three, he had a lot of neurotransmitters out of balance, which can be a result of poor methylation due to mutations. He has some classic risk factors for ADHD, aggression, and anxiety, although at the moment we only see those if he is under severe stress (however, it's a good window on what he might have grown into). We are already starting to see the neurotransmitters balancing as we implement her protocol.

For anyone who has confusing health issues that don't seem to be addressed by a single answer (allergies, intolerances, metals, etc), I'd think it might be an interesting route to explore. I know it's expensive though, so I thought I'd lay out a few basic things that might be interesting to consider:

1) MTHFR & MTRR mutations. We've talked here quite a bit about the MTHFR mutations, which mean you can't use folic acid very well, and need folate and/or folinic acid. To me, if you aren't doing the genetics testing, it's pretty easy to just assume you could benefit from folate. I think most of us around here are doing that part. Ironically, this wasn't a mutation DS has. MTRR is the other big player in the methylation cycle, and it messes up your ability to recycle B12. Which means you need LOTS of B12, because you can't reuse it very well. There are some gentler MTRR mutations, and some tougher ones. DS has two of the tougher ones. Yasko says he'll need B12 via multiple routes (oral, sublingual, nasal, patch, injection). Right now we're just ramping up the sublingual drops/spray, we'll see where that gets us. But just as an indicator, he is currently on 8mg/day of hydroxy B12, 4mg/day of adenosyl B12, and that is probably not as high as she'll want him to be.

Guessing at diagnostics - for those of you with signs of poor methylation function (seasonal allergies, histamine reactions, get sick a lot), where folate doesn't have a big bang impact (or not enough), try a significant increase in your B12. It often causes detox initially, so go slow, and see how you feel after the few days of detox are over. DS detoxed each time we added a drop for the first 3-4, then I've been able to add without problem. Best evidence i have it's working is that he kicked his whooping cough in the butt - this is my kid who got the extreme version of every kind of sick.

2) Pancreatic support. There are several gene mutations that can play into this, but what happens is that your pancreas is "slow" on several functions:

a) blood sugar regulation (mood swings, crashes when you don't eat, etc)
b) pancreatic enzymes (poor digestion, sometimes in non-obvious ways - DS had low amino acids on a pee test, even though he eats lots of protein - I never guessed he wasn't digesting protein well, it wasn't obvious from his poop!). Poor digestion = bad gut flora, so many people find this is a core underlying cause in the inability to permanently improve their gut
c) glutamate -> GABA conversion. This is a big one for many autistic kids, because glutamates are excitatory (wild, unfocused, non-sleeping kids), and GABA is calming (focus, language, stability, better sleep)

I talked in the main chat thread about trying Yasko's special digestive enzyme blend as a good trial for if you need pancreatic support. If you discover those are beneficial, then extra vit D & K2, ground up pancreas, reducing glutamates and possibly supping GABA/valerian root could all be helpful in addition.

OK, got to stop for now, I'll add more as I have a chance/think of it!

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#2 of 307 Old 06-03-2010, 04:02 PM
 
sbgrace's Avatar
 
Join Date: Sep 2004
Posts: 9,213
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Wow. That's really interesting. Thank you for sharing.

I can't afford the genetics but you wrote a lot that fits us. I strongly suspect I and Andrew (and likely Caleb too) have glutamate issues.

Caleb has allergies that I can't get under control. He also came back with poor digestive enzyme activity in his metametrix even with enzymes. Folate doesn't do anything for him that I can tell. I'm using houston enzymes with him. Do you think the Yasko is superior? Can you tell me the label information on it please?
I have her hydroxy-b12 drops that I'm using with him. I stopped methyl b12 after reading up on it and realizing not everyone could process that form well. How many drops would you work up to?

Rachelle, mommy to 8 year old boys! 

My Blog-free homeschooling finds and my lesson plans and link to the new User Agreement

sbgrace is offline  
#3 of 307 Old 06-03-2010, 05:52 PM
 
chlobo's Avatar
 
Join Date: Jan 2004
Posts: 4,741
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
In case people want to pursue it, can you post the link to the test again?

Mom to DMI & Silly Apple
chlobo is offline  
#4 of 307 Old 06-03-2010, 07:17 PM
 
tanyalynn's Avatar
 
Join Date: Jun 2005
Location: TX, but anticipating one more move
Posts: 11,508
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Quote:
Originally Posted by mamafish9 View Post
2) Pancreatic support. There are several gene mutations that can play into this, but what happens is that your pancreas is "slow" on several functions:

a) blood sugar regulation (mood swings, crashes when you don't eat, etc)
b) pancreatic enzymes (poor digestion, sometimes in non-obvious ways - DS had low amino acids on a pee test, even though he eats lots of protein - I never guessed he wasn't digesting protein well, it wasn't obvious from his poop!). Poor digestion = bad gut flora, so many people find this is a core underlying cause in the inability to permanently improve their gut
c) glutamate -> GABA conversion. This is a big one for many autistic kids, because glutamates are excitatory (wild, unfocused, non-sleeping kids), and GABA is calming (focus, language, stability, better sleep)

I talked in the main chat thread about trying Yasko's special digestive enzyme blend as a good trial for if you need pancreatic support. If you discover those are beneficial, then extra vit D & K2, ground up pancreas, reducing glutamates and possibly supping GABA/valerian root could all be helpful in addition.
In the a, b, c choices above, am I reading it right that you could see symptoms in, say, category a, maybe b, but not really c, and that's probably just a gene combo? DH's family is still a bit mysterious to me but they have very few mood issues (except what seems like a low-level depression-type thing that generally correlates to years of not eating great). Can I mix and match symptoms like that? I don't need to know exact genes, I don't think, I just want to decide how to experiment on him.

I'm waiting for approval to join Yasko's forum... how clearly are things laid out there? Any getting-started docs, or do you just lurk and learn the ropes? Or would it really just be better to read her book, you said it was mostly online, Pathways to Recovery?

And thanks for writing this out... so helpful to see it laid out like this.
tanyalynn is offline  
#5 of 307 Old 06-03-2010, 07:35 PM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by sbgrace View Post
Wow. That's really interesting. Thank you for sharing.

I can't afford the genetics but you wrote a lot that fits us. I strongly suspect I and Andrew (and likely Caleb too) have glutamate issues.

Caleb has allergies that I can't get under control. He also came back with poor digestive enzyme activity in his metametrix even with enzymes. Folate doesn't do anything for him that I can tell. I'm using houston enzymes with him. Do you think the Yasko is superior? Can you tell me the label information on it please?
I have her hydroxy-b12 drops that I'm using with him. I stopped methyl b12 after reading up on it and realizing not everyone could process that form well. How many drops would you work up to?
Rachelle, Dr. Yasko has several supplements she recommends for GABA/glutamate balance - and says she sees issues in almost every spectrum child she works with. Can you get a urine amino acids test covered under your insurance? That will tell you a lot of things, including the numbers for GABA & glutamate - you want balance between the two, and glutamate in normal ranges (I'm happy to help interpret if you can get the test run). It also measures ammonia & taurine levels - if those are out of whack, it's good clues to a couple of other genetics issues a lot of spectrum kids have. Or I know you have some metamatrix tests you've run, maybe they've measured some of the same values?

In the meantime, the supps she recommends for GABA/glutamate balance are GABA, valerian root, grape seed extract, and pycnogenol. All available on her site, along with her digestive enzymes. GABA can also help a lot with language (we are seeing that), don't know if that's an issue for your little guy or not. Please note, I have no idea about x-contamination issues with these enzymes, it's not a problem for us, so do your usual thorough due diligence.

We were on Enzymedica & Houston enzymes, and they were very helpful. Dr. Yasko's enzymes were incredibly more effective - better poops, and he can eat apples & corn now, two foods that gave him huge gut pains on the old enzymes. I also see less undigested food when he eats veggies, raisins & dried blueberries digest instead of coming out whole... So for him, HUGE difference and improvement over the old enzymes. And we saw lots of die off with the enzymes as well (pretty sure he had clostridia overgrowth), so it has improved his gut environment as well, without directly going after the bacteria.

Hydroxy B12 is definitely the way to go - and mixing in a little adenosyl & cyano (the latter is good for visual stims apparently) can be good as well. Even for people who tolerate methyl groups well, Dr. Yasko tends to suggest using other methyl donors (SAMe, quercetin, etc). How many of the B12 drops are you currently using? My son is up to 8 drops daily of the hydroxy, 2 of the adenosyl - I put in a spray bottle and just squirt him every hour or two, it works best the more you can spread it out. Your son certainly sounds like he has stuck methylation. Again, if you can get insurance to pay for it, a metabolic analysis profile test (genova) is really helpful, lots of markers for methylation & B12 status, and Kreb's cycle function.

Basically, Dr. Yasko uses the genetics to provide a list of likely needed supps, and then uses those two tests (amino acids & metabolic analysis) to see how well you're responding, and to tweak the supps as necessary. So I suspect you could take pretty good guesses at some of the genetics and supp accordingly if you could just run the tests (or something similar - again, I'm happy to look at tests for you if you think that would help - I'm no expert, but I might be able to at least point you in a few directions).

If you give me more background on your son's typical autism traits (stimmy, sleep, anxiety, moods, etc), that could help guess at some of the genetics as well - our kids tend to have strong outward indicators for a lot of these genetic mutations. (Feel free to move this to PM if you like!). I'd like to share what I've learned if it could help, it's made big differences already for my son.

Quote:
Originally Posted by chlobo View Post
In case people want to pursue it, can you post the link to the test again?
http://www.holisticheal.com/health-t...-analysis.html

If you want to see a sample, you can click on one on that page as well - so you'll see what the report looks like, and also the recommended supplements by mutation.

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#6 of 307 Old 06-03-2010, 07:40 PM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by tanyalynn View Post
In the a, b, c choices above, am I reading it right that you could see symptoms in, say, category a, maybe b, but not really c, and that's probably just a gene combo? DH's family is still a bit mysterious to me but they have very few mood issues (except what seems like a low-level depression-type thing that generally correlates to years of not eating great). Can I mix and match symptoms like that? I don't need to know exact genes, I don't think, I just want to decide how to experiment on him.

I'm waiting for approval to join Yasko's forum... how clearly are things laid out there? Any getting-started docs, or do you just lurk and learn the ropes? Or would it really just be better to read her book, you said it was mostly online, Pathways to Recovery?

And thanks for writing this out... so helpful to see it laid out like this.
There are some getting started docs in the forum, but at some point, it assumes you know your genetics. I think though, that while some of my son's genes were a surprise, some trial and error could probably help you figure out quite a bit.

For the pancreatic support - I wouldn't have thought my son had any of a, b, or c. I never equated wanting to nurse every two hours with blood sugar issues. And it didn't occur to me that he craved protein because his body was low in amino acids because he did a bad job digesting it.

But the vast majority of kids on Yasko's forums benefit from the pancreatic supports. I put my DH on them (I think he's the source of those genes), and he doesn't get so cranky without food anymore either.

Low level depression, that can come from the pancreatic issues resulting in low serotonin. So really, I'd try the pancreatic stuff - it's one of those things like B12 - there's not much harm in trying, and if it works for you, then yay, you've found a key.

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#7 of 307 Old 06-03-2010, 07:41 PM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Rachelle, one more thing about the Yasko enzymes. DS is not small, but he gained 4lbs in the first month he was on them. (After being on the Enzymedica & Houston enzymes previously). So just one more piece of evidence he was digesting better.

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#8 of 307 Old 06-03-2010, 07:44 PM
 
tanyalynn's Avatar
 
Join Date: Jun 2005
Location: TX, but anticipating one more move
Posts: 11,508
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
I'm thinking it's worth a shot with DH, I wanted to make sure, though, that lack of mood issues in him and his family wouldn't rule this out.

DH's family does tend toward eating lots of meat--if they paired it with green veggies, I think a lot of things would be different!

And wow, wouldn't it be cool if this helped with the low level stomach upset both kids, but moreso DD (DH's clone) is prone to.
tanyalynn is offline  
#9 of 307 Old 06-03-2010, 07:54 PM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Nope! Because genes interact, I think it depends what else you have going on as well. There's another couple of genes she tests that dictate how fast serotonin & dopamine break down, for example - and they can mellow out the mood impact of the pancreatic mutations. There are also people in the Yasko forums reporting really good results from the pancreatic supports even without the genetic mutations. So I think it's a really good piece to try, especially if you're kind of "stuck".

It seems to apply to a LOT of autistic kids, and since lots of us here in the allergies forum share some biochemical/nutritional similarities, I just thought it was a useful piece to bring here and see if it works for folks. Same with the high doses of hydroxy B12 - I know there are several people struggling with histamine/seasonal allergy/immune issues that folate doesn't fix, so again, maybe a piece for those folks to consider. They're both pretty low risk trials with potentially high payoff. I'm so curious to see how the pancreatic stuff works for the bunch of you that are considering trying it!

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#10 of 307 Old 06-03-2010, 08:04 PM
 
FireWithin's Avatar
 
Join Date: Apr 2004
Location: Boston area
Posts: 3,340
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Fantastic information Deb. Thank you so much.

Children deserve the respect of puzzling it out.
FireWithin is offline  
#11 of 307 Old 06-03-2010, 08:09 PM
 
tanyalynn's Avatar
 
Join Date: Jun 2005
Location: TX, but anticipating one more move
Posts: 11,508
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
When you re-mentioned extra B12, it made me consider more than I'm giving DS. I know our digestion being off is part of getting sick, but given how much improvement I saw a few winters ago, and I felt like the kids were more caught-up re: detoxification, they were less bogged down then, so it seems worth a shot.

DH actually seems interested in trying this (he just got home from work), this may be a very productive summer for us.
tanyalynn is offline  
#12 of 307 Old 06-03-2010, 08:36 PM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Cool! Ooooohhh - Yasko says (man, those are my two favorite words at the moment, do I sound like a groupie yet???) that B12 is incredibly important for general gut environment, pH in particular. For those kids with "tough" MTRR mutations, she often sees pretty bad gut flora, and says you won't make long term progress on that until you get B12 up. Glad your DH seems open to trying some things - I hope some of it works!

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#13 of 307 Old 06-03-2010, 08:44 PM
 
chlobo's Avatar
 
Join Date: Jan 2004
Posts: 4,741
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I really want to do this test. I'm thinking of trying it for myself first but I know the kids could use it too. DD STILL has loose poops and hasn't responded to anything yet (copious amounts of supps, probiotics, enzymes of different sorts), homeopathy, etc. Maybe I"ll do us both.

Mom to DMI & Silly Apple
chlobo is offline  
#14 of 307 Old 06-03-2010, 08:50 PM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by chlobo View Post
I really want to do this test. I'm thinking of trying it for myself first but I know the kids could use it too. DD STILL has loose poops and hasn't responded to anything yet (copious amounts of supps, probiotics, enzymes of different sorts), homeopathy, etc. Maybe I"ll do us both.
It really empowered me to know what to try next for DS. We made a ton of progress last year, and then hit a wall after Christmas, and I felt like I was shooting in the dark. In the meantime though, maybe put her back on the Yasko digestive enzymes and give it a week or so?

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#15 of 307 Old 06-03-2010, 08:55 PM
 
lastrid's Avatar
 
Join Date: Jan 2007
Location: Cockeysville, MD
Posts: 1,080
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I've been all excited about getting this test done on DS1 and now I see that they won't accept samples from Maryland. WTF? So frustrating....

<>< Alison
lastrid is offline  
#16 of 307 Old 06-03-2010, 10:36 PM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by lastrid View Post
I've been all excited about getting this test done on DS1 and now I see that they won't accept samples from Maryland. WTF? So frustrating....
Laws in Maryland and NY, I think, so they can't. Do you have a friend in another state? That's how most people avoid that issue.

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#17 of 307 Old 06-03-2010, 10:42 PM
 
mom61508's Avatar
 
Join Date: May 2009
Posts: 2,002
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Wow this is so interesting! Thank you for sharing this

I'm really considering the enzymes for DD.
mom61508 is offline  
#18 of 307 Old 06-03-2010, 10:50 PM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mom61508 View Post
Wow this is so interesting! Thank you for sharing this

I'm really considering the enzymes for DD.
LOL - join the big experiment, I think several people are going to try them.

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#19 of 307 Old 06-03-2010, 10:58 PM
 
mom61508's Avatar
 
Join Date: May 2009
Posts: 2,002
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mamafish9 View Post
LOL - join the big experiment, I think several people are going to try them.
The genetics test sounds great too but I wonder If something like that would really be worth it for DD. We don't have any *major* issues but a lot of little things that I haven't noticed an improvement in through enzymes and diet. I have some more major things going on with me so maybe it would be more reasonable for me to consider it
mom61508 is offline  
#20 of 307 Old 06-04-2010, 12:45 AM
 
DevaMajka's Avatar
 
Join Date: Jul 2005
Location: Burnaby, BC
Posts: 10,519
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Could you do me a huge favor and link to the "pancreatic support" please? (Or give me something I can google).
My mind is a mess with all this supps and reactions stuff as it is- I can't find where you first linked it.

Becky, partner to Teague, SAHM to Keagan (7yo), Jonah (2yo)
 

DevaMajka is offline  
#21 of 307 Old 06-04-2010, 12:56 AM
 
tanyalynn's Avatar
 
Join Date: Jun 2005
Location: TX, but anticipating one more move
Posts: 11,508
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
There are two pancreatic supports...

This is the first....
http://www.holisticheal.com/special-...upplement.html
These are the strong ones...

The second is basically a pancreas glandular...
http://www.vitacost.com/NutriCology-...as-90-Capsules

The second is available multiple places, and I guess other brands are around too, but it's not terribly expensive.
tanyalynn is offline  
#22 of 307 Old 06-04-2010, 12:59 AM
 
DevaMajka's Avatar
 
Join Date: Jul 2005
Location: Burnaby, BC
Posts: 10,519
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thank you!

Becky, partner to Teague, SAHM to Keagan (7yo), Jonah (2yo)
 

DevaMajka is offline  
#23 of 307 Old 06-04-2010, 12:59 AM
 
tanyalynn's Avatar
 
Join Date: Jun 2005
Location: TX, but anticipating one more move
Posts: 11,508
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Quote:
From mamafish9 from the last thread....
Quote:
Yasko uses three different things primarily for pancreatic support - her special enzyme blend, with lots of pancreatin. Then ground up pancreas - which I think is basically what the vitacost stuff would replace (it has pancreatic enzymes too, in the ground up pancreas, but likely lower concentrations - DS didn't have nearly the reaction to the ground up pancreas as he did to the enzymes). Then three, a list of supps to support the pancreas. Or you can cover off #2 and #3 in this compounded supp she puts together (linking to that so you can see the list of compounds she suggests - this is all related to a key mutation in the vitamin D receptor that impacts pancreatic function, and increases the need for vitamin D).

If you can take it, I'd start with an enzyme with straight up pancreatin for most direct impact on digestion - and then if that works, consider some broader pancreatic support on the theory that the pancreas does lots of things besides digesting, so general support is good if there is indicators of pancreatic weakness.

Best place to get an overview of her stuff is her Pathways to Recovery book, you can read most of it on google books.
Tanya getting clarification....
Quote:
Okay, so #1 above is a specific blend of digestive enzymes with lots of pancreatin ($20 = 17 days of an adult taking 2/meal, 6/day... most people start lower dosages, with kids it's a whole lot lower)

#2 is just ground up pancreas (some digestive enzymes in that, generally good/supportive for the pancreas?) (a product like this Nutricology pancreas supp is about $9/mo)

#3 is to help eventually not need #1 and #2?
(haven't looked at this list or costs yet at all)

Do I have that at all right?
Shannon helping me understand....
Quote:
Looks about right, Tanya. FWIW, I've just done the enzymes, plus lots of greens (for the K) and lots of connective tissue/gelatin (for the glycine/serene). And am making Rosemary my new favorite herb. I think most of the benefit I'm seeing has to do with dumping my old gut bacteria more than anything else. I think it must have been eating my food/vitamins.

I'm debating bringing ds in to the doctors office for this round of bloody poop I'm pretty sure they wouldn't be helpful on the allergy/die off front, but they could confirm blood and check for any major stuff. And there'd be a record that I brought him in, for better or for worse.
Cutting/pasting Deb twice because wow, we're bopping all over the place with questions and I was having trouble just keeping up on my 2nd re-read!
Quote:
Yes on #1 and #2. #3 is in addition to #1, but replaces #2.
tanyalynn is offline  
#24 of 307 Old 06-04-2010, 01:01 AM
 
tanyalynn's Avatar
 
Join Date: Jun 2005
Location: TX, but anticipating one more move
Posts: 11,508
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Quote:
Originally Posted by changingseasons View Post
Ok- what's the difference between the pancreatic enzymes and the pancreatin support?? The ones I'm ordering are enzymes, right?
Deb responding...
Quote:
I think what you're getting is basically pancreatic extract. So lots of pancreatic enzymes, but not quite as concentrated as the straight pancreatin (which I think is just really isolated pancreatic enzymes). Since you can only do lamb, it's the best choice for you, LOL! Dr. Yasko's enzymes have pancreatin, and then a bit of other enzyme stuff, papaya, etc. But that's not where the power is, IMO, and just adds a bunch of other potential allergens.
Originally Posted by tanyalynn View Post
Okay, so #1 above is a specific blend of digestive enzymes with lots of pancreatin ($20 = 17 days of an adult taking 2/meal, 6/day... most people start lower dosages, with kids it's a whole lot lower)

#2 is just ground up pancreas (some digestive enzymes in that, generally good/supportive for the pancreas?) (a product like this Nutricology pancreas supp is about $9/mo)

#3 is to help eventually not need #1 and #2?
(haven't looked at this list or costs yet at all)

Do I have that at all right?

Deb answering in bold below
Yes on #1 and #2. #3 is in addition to #1, but replaces #2.


More info from Deb....
Quote:
Yup, Yasko is very big on supporting organs, and supporting to bypass mutations, and then lots of other symptoms tend to resolve themselves. I don't like how she handles metals, but for a lot of other things, I think it's a really good approach.

Anther small example, DS' vitamin C need has cut in half in the last month (he had to be on 2000mg a day or he got a stuffy nose). So vitamin C got the job done, but it was just a bandaid on one symptom of poor methylation - now that he is methylating better, he doesn't need the vitamin C to handle the histamines.

We'll be rerunning his pee tests this month, so I should have very clear evidence of what differences have come from her supps (we ran the tests in mid March just before starting anything from her program, and we'll do them again in mid June, 3 months later, and after him being on most of what I think he needs based on his genetics).
tanyalynn is offline  
#25 of 307 Old 06-04-2010, 01:12 AM
 
changingseasons's Avatar
 
Join Date: Mar 2008
Location: Seattle
Posts: 8,802
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
subbing so I can come back and read later...

Mom to DD1 (10/07) and DD2 (3/11)
geek.gif I blog about our life with food allergies and eosinophilic disorders.
changingseasons is offline  
#26 of 307 Old 06-04-2010, 01:30 AM - Thread Starter
 
mamafish9's Avatar
 
Join Date: Jul 2006
Posts: 4,459
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Tanya, you're my hero. Thank you for moving all that!! It seemed like it belonged in it's own thread, but I'm so used to just saying everything in chat.

Pick battles big enough to matter, small enough to win. ~Jonathan Kozel
mamafish9 is offline  
#27 of 307 Old 06-04-2010, 07:43 AM
 
Koalamom's Avatar
 
Join Date: Dec 2007
Location: Earth
Posts: 4,579
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
subbing!
Koalamom is offline  
#28 of 307 Old 06-04-2010, 10:18 AM
 
tanyalynn's Avatar
 
Join Date: Jun 2005
Location: TX, but anticipating one more move
Posts: 11,508
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Glad to help, Deb.

Well, I ordered last night, so I'll add us to the experiment.

DH: overweight, did well low-carb last fall but I didn't keep it up, would bet on insulin issues (either current or building),

me: weird digestive issues (bloating, weight gain, raw veggies not being digested well) for the past ~18 mos since I started the alpha lipoic acid

kids: fewer stomach aches for the past few months (I *think* I've got all their problematic foods out, always hoping they haven't developed new ones, I don't see a pattern) but still some stomach aches and generally touchy digestion (probably also related to me not making kimchee regularly... got that going now)
tanyalynn is offline  
#29 of 307 Old 06-04-2010, 10:46 AM
 
mom61508's Avatar
 
Join Date: May 2009
Posts: 2,002
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I wonder...I've been trying to do green smoothies lately(I stopped awhile back because they were making me sick to my stomach) and unfortunately they're still making me sick to my stomach right after the first sip. I just can't get more than a sip down!

Could this have anything to do with what we are talking about???
mom61508 is offline  
#30 of 307 Old 06-04-2010, 12:39 PM
 
deditus's Avatar
 
Join Date: Feb 2006
Location: In the LandOLakes missin the mitten
Posts: 2,986
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mom61508 View Post
I wonder...I've been trying to do green smoothies lately(I stopped awhile back because they were making me sick to my stomach) and unfortunately they're still making me sick to my stomach right after the first sip. I just can't get more than a sip down!

Could this have anything to do with what we are talking about???
Green smoothie issues for me were related to low stomach acid.

Emily, cooking allergen free, knitting, reading, gardening Mom to 1 beautiful girl, born in the water on July 1, 2006 Wife to 1 handsome man since September 10, 2005
deditus is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off