This will be quick since I have to elave for work in a few minutes, but I'm at my wit's end and stressed beyond belief about this. DS was diagnosed with FPIES at age 1, with a very long list of food sensativities. Looking back, I was never convinced that FPIES was an accurate diagnosis as he never had violent vomiting....just a bad rash all over his face and horrible reflux, red anus, etc. RAST showed no IgE allergies. We've been seeing an allergy specialist at the children's hospital here, and after a year and a half of seeing her and DS being down to only 3 foods right now she has decided that apparently all of the testing we have done on him and her dx was not accurate. Time to dig deeper and find out what's causing all of this. His list of NO foods is tremendous, and he recently lost a whole bunch of foods he was eating. His trend is that he does okay with some foods for a period of time and then builds up an intolerance to them. Some he reacts to quickly and others slowly. Once he reacts to it, if we continue giving it to him, his reactions come on quicker and more fierce. She's wanting me to go back to GI specialist for a full re-eval. I don't even know what to ask him at this point other than to beg and cry to help my son!!
We tried NAET with absolutely no success, and some homeopathics with no success.
He drinks about 8oz. of water kefir a day (24 hour brew) and is on a multivitamin. I know the vitamins are not enough for him at this point and we are awaiting blood tests to check his nutrition levels. I don't know what else to do....he basically can't eat any proteins, no dark leafy greens, no vegetables at all really....he eats spelt, grapes, watermelon and that's really it right now because he keeps losing foods. I'm wondering about metabolic diseases and the dr's are sort of blowing me off and pushing me off on one another. I just don't know anymore what to ask for or demand for his health!! HELP....any suggestions of what to do!!
We tried NAET with absolutely no success, and some homeopathics with no success.
He drinks about 8oz. of water kefir a day (24 hour brew) and is on a multivitamin. I know the vitamins are not enough for him at this point and we are awaiting blood tests to check his nutrition levels. I don't know what else to do....he basically can't eat any proteins, no dark leafy greens, no vegetables at all really....he eats spelt, grapes, watermelon and that's really it right now because he keeps losing foods. I'm wondering about metabolic diseases and the dr's are sort of blowing me off and pushing me off on one another. I just don't know anymore what to ask for or demand for his health!! HELP....any suggestions of what to do!!