This may get long, so please bare with me.
A little background, my DS has suffered with severe reflux, vomitting, and food refusal. We just got the delayed gastric emptying dx a few weeks ago, but he's had it for at least a year. He also has eczema.
We noticed a dairy and soy intolerance at 6 months old and I removed all traces from our diets (mine to as I'mBFing). Symptoms were mucusy poops, screaming at night, eczema flares, reflux flares.
His skin prick are negative to everything, they only tested blood for milk and soy, both negative. I'm still suspecting a true allergy to milk, as his reaction is always pretty immediate (well within 10-20 minutes he breakes out with eczema all over). We had him patch tested a week ago and it was positive for wheat, corn, and dairy. In fact, the wheat circle is still there. So, this means he has a delayed allergy to these foods. However, the doctor went on to tell my husband that my son is allowed to eat whatever he wants because its only a delayed reaction, and its up to us if we want to remove those foods.
I'm still putting a few oz. of BM in his bottles (still drinking around 28 oz of liquid nutrition = elecare/BM a day due to food refusal). I'd like to quit pumping as two years of EPing is enough for me! So my plan is to stop pumping and then start him on an elimination diet to see if the GI symptoms get better and maybe his gut will heal and he'll stop refusing food (this is my DREAM!).
My main questions are...Would you only avoid the protien in these foods or should I steer clear of all derivitives. We do so with dairy, but I know corn and wheat are in practically everything. I'm planning on getting a cookbook (any recommendations?) and baking him bread, etc. as he is VERY selective about what he eats, if he even eats at all.
And on top of these restrictions, his diet also needs to be low in fat and fiber due to the delay in gastric emptying..high fat and fiber foods make it worse.
I'm so dreading doing this but at the same time looking forward to the results, and seeing if it helps him feel better.
I'd love any advice or any personal stories, websites, ANYTHING you want to throw my way to help guide us in this journey! TIA!
Hayley, exclusively pumping (eliminating dairy and soy) 2 years now! Proud mommy to:Owyn 2/8/03 and Dominic 10/16/08 (GERD, SPD, pediatric feeding disorder, eczema) # 3 EDD 07/13/11