Calling all experts here..mom panicking over stool test results and needs some interpretations..please. - Mothering Forums

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#1 of 6 Old 12-01-2011, 05:50 AM - Thread Starter
 
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Hi,

 

My DD is 2.5 yrs old and has multiple allergies. She used to react with hives on dairy contact from 4 mos to 1 yr old but lately showed signs of outgrowing it (until 3 weeks back when she had a stomach bug..don't know if it was norovirus or rota but her dairy allergy severity seems to be back). She is also allergic to (we think , never diagnosed it. Only symptoms like green poop..at best and failure to gain weight until we removed wheat) - wheat, egg, chocolate, corn. Since she has these allergies anyway we figured she might have (pineapple, shellfish and nuts)so never ever tried them with her....

 

Now a couple of weeks back we went to a LDA specialist who first ordered a stool test for her and most findings were normal (no yeast overgrowth, no ova or parasites isolated, normal Ph, no toxins , no helicobacter pylori etc....

 

These are the findings that are making us very anxious (we have an appt with the same doc this coming Mon to go over them)

 

Bacterial overgrowth detected:

 

proteus species, staphylococcus spp, Alpha hemolytic streptococcus - all moderate ...which the report says should have been negative.

 

non-pathogenic e-coli - moderate

 

Intestinal Lysozyme - 25 (this seems the worst)  (normal <6, borderline elevated 6-8, elevated >8)

 

one line below that says this indicates colonic inflammation. Another line says "this can be ameleorated by retention enemas of mixed short chain fatty acid solutions".

 

now the funny thing is they tested saliva and these are the results:

 

Dairy, egg, soy and gliadin(gluten) sIGA - negative (which means she doesn't have these allergies right?) How accurate is saliva testing?

 

Anyway...is this very bad?

 

I am guessing she will go through a round of antibiotics for the above bacteria and I am OK with it... I ordered a fresh batch of Custom Probiotics (Infant formula) wwhich will be here in a day and will start her back on that (I had given her half a bottle when she was 12 mos....17 mos I think)

 

What about the inflammation? What is a retention enema? Will that really help? Can they do it to toddlers? This is all soooo distressing ...I am panicking over it....

 

And worse... this was before she had her 2 week bout with the stomach virus...I shudder to think what may be going on in her intestines now......

 

I cannot help being all in tears over this....................

 

Please help!!!!!

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#2 of 6 Old 12-01-2011, 05:56 AM - Thread Starter
 
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I forgot to mention the test was done by Diagnose-Techs in Seattle

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#3 of 6 Old 12-01-2011, 02:36 PM
 
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I think sIGA would show intolerances, not IgE allergies. There's an sIGA deficiency in celiacs, so I'm not sure what a "negative" means. It also depends how long she's been off of those things. I have an intolerance to gluten, dr. tested me for celiac while I was still on gluten and it was negative, and tested me (blood) IgA gliadin/gluten after I'd been off it at least a year and it was negative. So I believe that I'm gluten intolerant, not celiac, but that the test wasn't accurate because I wasn't on it. If that makes sense. So it depends on a bunch of things.

 

My son had a Genova stool test. He had 4+ (which looks like the highest on the test) for alpha haemolytic streptococcus, haemolytic e. coli, Klebsiella pneumoniae (3+), and Citrobacter farmeri. On his, it showed what abx would work on it and what natural agents would work on it (plant tannins and uva-ursi). Did yours list anything like that? The doctor didn't seem overly concerned about the bacteria, so neither did I. He was put on Sulfa (one of the things the bacteria was sensitive to) for Lyme, so maybe it killed that besides. My son went on targeted enzymes, and probiotics after his test. Did they do a test for beneficial bacteria? My son didn't have any lactobacillus despite being on probiotics for a year ahead of time. It wasn't until he was on the targeted probiotics and enzymes that his stomach/intestines got better.

 

I'll also say that my son was intolerant to milk and soy, and outgrew them at 13 months (challenges at Children's hospital) and was fine until he had a horrible stomach bug at 18 months old, and got them back. It took him a year and a half to get rid of them again (that time, they're back again).

 

When I get test results like that, I do a google search on each of the keywords, and then I have questions to ask the next time I see the doctor. There may be options besides enemas.

 


Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)
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#4 of 6 Old 12-01-2011, 03:37 PM - Thread Starter
 
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Quote:
Originally Posted by kjbrown92 View Post

I think sIGA would show intolerances, not IgE allergies. There's an sIGA deficiency in celiacs, so I'm not sure what a "negative" means. It also depends how long she's been off of those things. I have an intolerance to gluten, dr. tested me for celiac while I was still on gluten and it was negative, and tested me (blood) IgA gliadin/gluten after I'd been off it at least a year and it was negative. So I believe that I'm gluten intolerant, not celiac, but that the test wasn't accurate because I wasn't on it. If that makes sense. So it depends on a bunch of things.

 

My son had a Genova stool test. He had 4+ (which looks like the highest on the test) for alpha haemolytic streptococcus, haemolytic e. coli, Klebsiella pneumoniae (3+), and Citrobacter farmeri. On his, it showed what abx would work on it and what natural agents would work on it (plant tannins and uva-ursi). Did yours list anything like that? The doctor didn't seem overly concerned about the bacteria, so neither did I. He was put on Sulfa (one of the things the bacteria was sensitive to) for Lyme, so maybe it killed that besides. My son went on targeted enzymes, and probiotics after his test. Did they do a test for beneficial bacteria? My son didn't have any lactobacillus despite being on probiotics for a year ahead of time. It wasn't until he was on the targeted probiotics and enzymes that his stomach/intestines got better.

 

I'll also say that my son was intolerant to milk and soy, and outgrew them at 13 months (challenges at Children's hospital) and was fine until he had a horrible stomach bug at 18 months old, and got them back. It took him a year and a half to get rid of them again (that time, they're back again).

 

When I get test results like that, I do a google search on each of the keywords, and then I have questions to ask the next time I see the doctor. There may be options besides enemas.

 




Thank you for answering Kathy.

 

I will address each of your bolded lines ... Did yours list anything like that? No it doesn't list any remedies.

 

Beneficial bacteria : I don't see where they have tested for beneficial bacteria. there is no mention. The test just has one line that says "Early disturbances in microfloral balance may be reflected in the non-expected and selective overgrowth of microbial species that are usually non-dominant" If i try and understand it right..they are saying that we should expect bad gut flora because of these pathogens which should normally be non-dominant? Right?

 

How did you realize that his intestines got better? Another test?

 

Have you ever read anything about toddler enemas? Any insights?

 

I didn't understand the last part in the parenthses: It took him a year and a half to get rid of them again (that time, they're back again).

 

Thank you so much for your time........ :)

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#5 of 6 Old 12-01-2011, 03:40 PM - Thread Starter
 
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Also the test showed positive for occult blood...

 

and there is one more thing which needs to be typed here I think...

 

Here Chymotrypsin (marker enzyme for pancreatic exocrine output (which seems important in google searches ) is 23 and normal is > 9 , low being (4-9)..... I have more to read but this seems promising.

 

 

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#6 of 6 Old 12-02-2011, 01:55 PM
 
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I've never even heard of an sIgA saliva test for allergies, but no- that won't show actual (IgE-mediated) allergies. Maybe they're testing for intolerances (which is controversial)? I've also never heard of enemas used to treat inflammation. I'm not saying it won't work... but there are certainly alternatives. Probably the first thing to address is the bacteria overgrowth, and then you might see all the other stuff go away too. I wouldn't stress too much until you see what the doc has to say. wink1.gif And if you don't like what the doc suggests, tell him you want to research it first and/or get a second opinion! There are almost always alternatives to any treatment.

Mom to DD1 (10/07) and DD2 (3/11)
geek.gif I blog about our life with food allergies and eosinophilic disorders.
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