Just finished our testing and don't know what to eat without sacrificing health? - Mothering Forums

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Old 01-11-2012, 01:08 PM - Thread Starter
 
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We were about 90% primal/paleo with some rice cheats here and there but now it seems like that will be really hard to follow...

 

I had no clue DD had allergies but when my supply tanked (due to pregnancy) she started having allergic reactions left and right! (still nursing)Turns out she is allergic to some foods; tomato, eggs, sesame, strawberries, and grapes.

 

The thing is she won't eat meat but always ate eggs so we stuck to paleo pretty easily. The most allergic food was eggs so it's not like it was only a slight reaction!

 

She s not allergic to wheat, gluten, rice, potato, or anything we consider "bad" foods though. I feel like I am at a loss as to what to feed her!

 

She is also highly intolerant to dairy. She loves fruits and veggies and eats them all day long but I don't feel like that's enough for her since my supply is down. I don't want to feed her processed food though whicg is what we have been doing! (cereal, bread) How do you eat healthy with food allergies?

 

NAK and hope that makes sense haven't slept in a month!


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Old 01-11-2012, 02:49 PM
 
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What kind of testing did you do and what are her reactions when she does eat these foods?

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Old 01-11-2012, 05:00 PM - Thread Starter
 
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She was having severe vomiting (like 10+ in an hour or 2) and some skin reactions(eczema, rashes) and one episode where she couldn't breath right.

 

To dairy she has diarrhea and blood in stools and will get ear infections and stunt in growth.


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Old 01-11-2012, 05:07 PM
 
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Was she having those reactions to all those foods listed or was that what they tested for?

 

I ask because allergy tests are not that great.  A positive is only 50% accurate (an negative is 90+% accurate).  So while she may test +, unless there is an actual reaction, a good allergist won't have you pull the food.  

 

I hope you got epi pens for her as well!  With reactions like that, they (a set of two) should be carried at all times!

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Old 01-11-2012, 11:18 PM
 
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our allergist has/had us pull all the foods from our son's diet that he tests positive for. While there may be some that showed positive in your daughter's testing, that she may actually not be allergic to, I think it wise to pull everything for a period of time & then try reintroducing them one at time- if there's anything you think she may not be allergic to (were these IgG or IgE reactions?). As for what to eat, I'm honestly not familiar enough with the Paleo diet to know what to recommend. Do you eat seafood? If so, salmon would be a good food source. What about nuts? almond butter? or sunflower butter? I'm not sure how old she is, so I don't know if it's a good idea to introduce these yet or not. Coconut & avocados are also good sources of fat. Not sure if any of this is helpful, but hopefully a little ;)


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Old 01-12-2012, 09:15 AM - Thread Starter
 
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It's a holistic ped we did intra dermal testing (not scratch) She is 27 m/o, I guess IDK how I feel about grains being healthy and now I feel like well WTH else are we going to eat if we don't eat those?

 

Her ped said the test is extremely accurate and it's not the same test a regular GI Dr would do it's a holistic test and he trusts the results...She was tested for 34 foods (as I had no idea what she was reacting to) and a bunch of molds. dust, common allergens. She had no red flag reactions until my supply dropped.

 

She was always sick though and when she got sick it always lasted forever! Her holistic ped (who we have only been seeing a short while) mentioned he thought she had underlying allergens and we should do the testing but I declined b/c I thought it would be too much on her and she is still trying to heal from vax reactions she had before.

 

Then my supply tanked and she started having red flag reactions but *I* did not notice a food correlation BUT she has only been having red flag reactions for a little over a month.

 

So basically the theory is that my BM was helping her body fight the reactions to an almost unnoticeable point (except for a specialists eye) but when she got sick she got really sick b/c she could not fight off both. So now that my supply is low she isn't getting the milk she needed to fight off the reactions and is having the red flag reactions left and right now. (so she was allergic the whole time we just did not know)

 

She only tested positive on 5 things out of like the 40 or w/e they tested her on and I feel confident we can keep those out of her diet. Since we cut those foods out she has not had any reactions and he eczema and rashes are gone! So she's definitely improving for sure!

 

As far as nutrition goes though I am concerned b/c we ate all whole foods and now it's like we ate eating processed foods since she can't have some of the whole foods. Like breakfast now is either potato hash and sausages, cereal (organic but still has sugar...), oatmeal, or toast with earths balance (which has canola oil in it even if I get the soy free one) and blueberry jam (low sugar). At lunch we usually have a sandwich now which has bread...I mean I though gluten and wheat were like the devil for humans and yet she tolerates them fine?

 

I guess I'm really confused about what's healthy now and what to feed our family. Like I have to compromise some things so she will eat something!

 

 


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Old 01-12-2012, 09:28 AM
 
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There isn't any testing that is really that accurate except for food trials.  It would be great if there were but ya know....

 

 

As for what to feed her.  If you are really sure she WAS reacting to those foods and you take them out you do what you have to.  Have you thought about working with a nutritionist?  Not that we have found them helpful but I know some do.  

 

We have had to relax what I would like for my kids due to real allergies (IgE).  It isn't a choice, we have to avoid them.  I was an all organic all the time Mom but that isn't an option any more with our allergy set, where I can find these foods and what my kid will eat.  It sucks and I hate it.  I buy as much as I can organic BUT we just can't find all organic.  So I do what I can with what I have and try not to beat myself up over the choices we have to make.  If it's between my kid eating at all vs. eating organic, I am sure you can see which wins out.

 

It's taken me some time to get over it too. To kind of "mourn" the diet I wish for my kids.  That said, they eat better than most kids I know still.  Asked for carrots and apples when we got back from trick-or-treat.  Drink water freely and have never had McDonalds or pop so, pick your battles is what it comes down to, like much of parenting :)

 

Good luck!

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Old 01-12-2012, 10:11 AM - Thread Starter
 
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I believe he said it was IgE testing?

 

I KWYM about picking the battles and yeah she still does eat better than most kids. I just don't want to feel like I'm damaging her gut or inflaming her body and what not with wheat and canola oil! I mean I *could* make bread from sprouted four if I had a bread maker they just cost so dang much...we aren't exactly financially stable over here.


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Old 01-12-2012, 11:58 AM
 
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:( I know. It's hard.
 
We are dairy, egg, peanut, tree nut, banana and gluten free d/t Celiac here and a few others. (for DS, I am currently D &E free, DD eats as her brother does for safety).  I get local organic meats (pork and beef, haven't found chicken yet so we get "naturally" raised...not great but the best I can do).  My DH and I don't even discuss our grocery bills.  It is what it is and we can't really do anything about it.
 
I do understand about what you want to vs. not want to add to her diet.  Everyone was pushing soy on us so I was happy when DS was soy allergic because that was a non issue.  Now that he tests fine for it after an in office food trial, everyone is all "OH soy this soy that! (esp. my vegan BIL) and I am all....NO NO NO!  There is enough soy in everything already that I will NOT add soy milk/icecream/tofutti cream cheese!  So I do understand.  Hang in there and follow your gut ;) 
 
And yes, I do believe that is for IgE allergies, but again, the results aren't always accurate. I am not totally sure of the stats to ID testing but no allergy test is that great.  That said, until we did test DS, he was a mess. Even after I tried to eliminate dairy and egg.  There were many more I needed to drop that I wouldn't have known about if it hadn't been for testing.  Double edged sward.  I think I asked, but did you get Epi Pens?  If not, you really should.  Esp with non-top 8 foods that can and often do hide in things.  Not trying to scary you but just want you to be prepared!
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Old 01-12-2012, 02:09 PM - Thread Starter
 
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They did not give me an epi pen. We don't actually see her ped until the 31st. I will ask him about it.


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Old 01-12-2012, 02:13 PM
 
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Quote:
Originally Posted by sosurreal09 View Post

They did not give me an epi pen. We don't actually see her ped until the 31st. I will ask him about it.



I would call and ask them to call you in a script.  They should be able to do that pretty quickly.

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Old 01-12-2012, 02:34 PM
 
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So what exactly is she allergic to? Can you list out all the things you want to pull out of her diet so it is a clear and concise list for you to reference? There is a lot of food out there - it just isn't always easy to find or afford but there is a large variety. You don't necessarily have to fill in the gaps with processed or grain based foods - you can still be mostly paleo/primal, you just may have to think outside the box....by miles! :)

 

If you can list out what are definite no-nos, then maybe it will be easier/less overwhelming to get input as to what replacements would make you comfortable to feed her. As with all kids, it will be trial and error to figure out what she will tolerate taste-wise, texture-wise, etc. Every kid goes through phases anyway, regardless of allergies, so the majority of parents can feel your pain!


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Old 01-12-2012, 02:48 PM - Thread Starter
 
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She is allergic to

 

eggs

strawberry

sesame

grapes

tomato

 

and highly intolerant to dairy.

 

The reason why it is hard is b/c she won't eat meat and eggs were our go to food.

 

On another note since we started the testing this girl will not sleep! She is up at 4am everyday ready to go and throws a fit when I tell her it's still bedtime (like an hour or so long fit) iDK what to do about it and haven't slept in a month and a half (between hospital visits, vomiting, teething and now this!) Do you think it's related to the wheat or is this common when you cut out allergens?


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Old 01-12-2012, 04:47 PM
 
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Quote:
Originally Posted by sosurreal09 View Post

She is allergic to

 

eggs

strawberry

sesame

grapes

tomato

 

and highly intolerant to dairy.

 

The reason why it is hard is b/c she won't eat meat and eggs were our go to food.

 

On another note since we started the testing this girl will not sleep! She is up at 4am everyday ready to go and throws a fit when I tell her it's still bedtime (like an hour or so long fit) iDK what to do about it and haven't slept in a month and a half (between hospital visits, vomiting, teething and now this!) Do you think it's related to the wheat or is this common when you cut out allergens?


does she wake up hungry? when ds1 had his first allergy/intolerance testing he was waking up at 5am every morning, which was completely unusual for him, but he wanted to eat. It was like all of the sudden, we were feeding him foods he wasn't reacting to internally, so he was making up for being a very light eater for a long time. 

 

As for food ideas, if the following are okay:

-sunflower butter

-hemp milk & hemp butter

-almond butter (but you may want to avoid nuts at this point because they're a top 8)

-salmon (but as same as above)

-breakfast ideas: brown rice farina, Erewhon crispy brown rice cereal, there's lots of great waffle & pancake recipes out there that are gluten, dairy, egg free, etc. (are you guys avoiding gluten right now? or not?)...top them with coconut oil, fresh fruit, maple syrup

-avocado

-coconut (oil & milk)

-pureed fruit to make fruit leather

-fruit smoothies with coconut milk, creamy & high in fat

 

a couple other things to consider is that tomato is a nightshade, which is comprised of potatoes, tomatoes, eggplant & bell pepper (I think that's all of them) & so she may react to others in that same family, if she's testing allergic to tomatoes...or she may not, but just so you're aware

 

there's also a correlation between sesame & kiwi, which we found true for DS1...he's allergic to sesame, but has positively tested for kiwi, but if he eats it he says his mouth itches, which is enough for me not to feed it to him :)

 

also, you can order a lot of dry groceries from Amazon & get free super-saver shipping with $25 purchase. The prices are great on there! If you do subscribe & save, it saves an additional 15%, it has been a huge $ saver for us because it's definitely expensive to eat healthy, & we just don't have a choice on most of what we feed our kiddos because there's so few things we can actually buy at the grocery store for them.

 

just remind yourself regularly how much better she seems to be doing, with the clear skin & overall health improvements. It definitely is challenging at times, but when you see how much the health improves, it makes it worth it! I also have a blog, if you want to check it out, for more food/recipe ideas- it's: http://www.allergicadventures.com

 


SAHM to two boys & a girl. DS1 has eczema, asthma & is allergic to: dairy, eggs, peanuts, shellfish, seafood, sunflower, yeast & garlic. 

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Old 01-13-2012, 07:22 AM - Thread Starter
 
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Thanks for the tips we do coconut everything! She is not allergic to gluten but I am wary of it KWIM? We did test for the potato and other nightshades and they came out negative.

 

I have been nursing her ALL NIGHT LONG and providing a banana and water at like 3am when she wants it. (she asks every night now) She was eating an extraordinary amount daily with her allergies in her diet now she's barely eating for her. I don't think she's eating enough during the day really.

 

How is the hemp butter? Does it taste anything like traditional butter? (we like the coconut but it's sweet and doesn't do well for us pallet wise for cooking)


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Old 01-13-2012, 12:21 PM
 
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Sounds like she may be adjusting to her new 'body feelings' since she isn't eating the foods she's allergic to. Also, she could just be going through a sleep issue because of the decreased milk supply.

 

I agree that your main issue seems to be the eggs for protein without dairy as a back-up (not that it's really a complete protein anyway). You don't have to switch to processed foods or grain-based foods unless you just want to for ease, expense, etc. Nothing on your list would prompt me to fall back on those items as fillers. You can always start out with small amounts of different protein sources - nut-based things, meats, etc. She may decide she likes one or two meats right now - tastes change so quickly at the young ages. You can try tuna, salmon, halibut and other white fishes as well as chicken, turkey, pork etc. My brother refuses to eat ground beef (he's 21) but he'll eat all sorts of other meats and other forms of beef - he's been this way FOREVER. It's all just a trial at this point - you can feed her all the foods she loves without the allergens to make sure she's got enough calories, right? She will survive while you try out new things to find new favorites - think about all the people who live for YEARS on a SAD diet compromised mostly of science experiments rather than food.

 

Good luck!


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Old 01-26-2012, 11:06 AM
 
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Lil guy scratch tested positive to dairy and nuts, and is reactive to eggs, rice cereal, oatmeal, bananas, sweet potatoes. I did an ALCAT test, and cut out about 30 foods out of my diet (beef, potato, soy, gluten, egg, yeast, etc.) My diet is pretty much chicken, some fish, fruits, and veggies. I do corn cereals with coconut milk, and have been able to keep my supply up to BF my 6o. Lot of luck, but it is possible with some dietary changes.

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Old 01-27-2012, 06:35 AM
 
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I've been on a restricted diet since DD was 6 weeks old and she tested sensitive (IgG, so keeps changing because the real problem is leaky gut) to such a wide spectrum of foods that I won't bother to list them. But she cannot have eggs, rice, coconut, root veggies or really many veggies at all, nuts, dairy, soy, corn, etc... the list is long. We are also gluten free. Before this we were vegetarian and now we HAVE to eat meat. I have to cut the pieces really small or else put ground beef well dispersed through whatever food I make. since she can't have rice, nuts, or gluten, we have alot of Quinoa, millet and amaranth. I bake with gluten free flours (Sorghum instead of rice flour) and we eat alot of beans and potatoes (the one root vegetable that she is OK with).

 

It's hard. I no longer like food or look forward to cooking or eating. But it makes a difference for DD so she sleeps better, has fewer rashes and is easier to be with and happier.

 

It's really hard. Hugs and support to you.


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Old 01-30-2012, 10:42 PM
 
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We are dairy, corn and soy free, profoundly limited gluten, but then also salicylate free (that's a naturally-occurring substance in specific fruits and veggies).  The list on that one is long, but it includes ALL berries, grapes/raisins and tomatoes.  So I hear ya.  The last maybe year of entries on my blog goes through what we eat.  It's not Paleo, but it's predominantly whole foods.  We're big on eggs, but really more for breakfast (and really, we've gone to eating lunch/dinner foods for breakfast).  It may at least give you some ideas.  There are tags for breakfast, lunch, dinner, meal planning and snacks to narrow it down for you a bit and weed through the non-menu posts.

 

http://hereswhatweeat.blogspot.com/

 

Also, since 3 of your 5 "no" foods are salicylates, I would consider an allergy to aspirin (not that you'd have occasion to use it, but heaven forbid she ever land in the hospital--you'd want to give a warning shot to the docs).  Does anyone in your or dh's family (even as far out as cousins) have an allergy to aspirin?

 

It's an adjustment.  There's a learning curve.  Be gentle with yourself.  Hugs, mama.


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Old 01-30-2012, 11:25 PM
 
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Have you tried hiding meats in things like soups or spreads, or giving her options to dip meat in?  My dd loves dipping chicken in honey or ketchup (organic or homemade).  I think I would just keep offering the meats with fruits and vegis, and then something like coconut or hemp milk, or a mix.  27 months is an age when many children are picky eaters.  My dd, 3 now, went through stages where all she wanted to eat were grapes.  They passed quickly, and we just continued to offer her all sorts of options, and let her pick and choose.  If she starts to lose weight, appear tired all the time... then I would be worried, but otherwise I think she will likely come around on the meat.  

 

We don't have any food sensitivities here, but do eat primal/paleo.  

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Old 01-30-2012, 11:52 PM
 
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You might check out The Spunky Coconut blog for some ideas.  She has a good number of egg-free, grain-free recipes.  I second the above posters suggestions to hide the meat if you can. 


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Old 01-31-2012, 05:56 PM
 
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Sosurreal, I only had time to scan this thread but I can really relate to you questioning your dietary beliefs about what is healthy.

I've been vegetarian for 17 years and vegan for the last 8. Totally opposite end of the spectrum from you, but the same in that I felt a vegan diet was absolutely the healthiest diet we could follow, that animal products were at best not well digested and at worst, toxic. But severely limited options due to allergies/intolerances (gluten, certain fruits & nuts, even GF pastas) and being constantly hungry and feeling worse every day made me recently try including animal products in my diet. I don't regret it at all & I will probably continue eating mainly animal products and veggies for a while. I say all this to illustrate that sometimes we need to re-evaluate our dietary ideals in the context of reality -- including allergies, local availability of products, strong dislikes, etc. I would be open to exploring the options out there -- maybe look into the benefits of eating wheat instead of the dangers, or trying out soy, for example -- and be willing to try something completely different than what you've always thought is best.

I've been hiding meat in my food because I'm just not a fan of meat & can't eat a lot of it. Mexican & Indian dishes are good because the strong spicy flavors are a good disguise. I shred or crumble up the meat. Also bone broth has been a good way to sneak animal products into soups, sauces, grains, etc.

I would second some of the others that they could still be false positives... I don't know a ton about allergy testing but from the little I've read, intra-dermal tests do have a high false-positive rate. I'd consider getting her to baseline & then doing trials of each food to make sure she's in fact reacting to them so you're not eliminating stuff unnecessarily... but obviously you'd need to do this carefully to keep her safe, and avoid trials of anything she's already demonstrated a reaction to directly. I went 15 years without eating eggs because I tested allergic to them (but never actually had a reaction eating them) and now I've started eating them with no problems at all & it's kind of annoying that I went so long avoiding them probably unnecessarily.

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Old 01-31-2012, 05:57 PM
 
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Oh and flax seeds are a good substitute for eggs in baked goods. And are really nutritious!

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Old 01-31-2012, 07:46 PM - Thread Starter
 
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Well I'm pretty convinced the dx is real b/c she had ONE raisin the other day at a play date and vomited 5x. :(

 

I have started using sprouted wheat flour and baking with that. She's not that into it though. She's eating like 6 bananas a day....throwing fits for bananas always wanting bananas...I bought her blueberries the other day and she ate the whole pint!


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Old 01-31-2012, 08:02 PM
 
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LOL if it's any consolation, my DS who has no known allergies (except possibly gluten which we've avoided for a couple years now anyway) can also eat an entire pint of blueberries and several bananas a day!! I think toddlers don't quite get the idea of moderation & variety yet!

That's a pretty scary reaction though, vomiting that much after just one raisin. Have you been able to keep her off all the foods she's allergic to for a good week or two yet? Did the vomiting & other issues disappear?

Will she eat nut/seed butters? Or dips like guacamole or hummus (minus the tahini) or soy/coconut yogurt? Those would be good accompaniments to fruits and veggies. Maybe some whole-grain crackers too (GF if you prefer). Seaweed snacks? Fish? Homemade bars like the Lara bars (basically just nuts, dates, and dried fruit)? DS does like cereal with coconut milk so we buy that occasionally, but cereal low in sugar at least. I'd prefer oats or something instead but we don't do that because of the gluten so it seems a good compromise. He also loves dark chocolate, which we obviously minimize because of the caffeine & all, but it does have fats, vitamins & nutrients so I consider it a healthy thing in small amounts...

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Old 02-01-2012, 08:11 AM - Thread Starter
 
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Originally Posted by crunchy_mommy View Post

LOL if it's any consolation, my DS who has no known allergies (except possibly gluten which we've avoided for a couple years now anyway) can also eat an entire pint of blueberries and several bananas a day!! I think toddlers don't quite get the idea of moderation & variety yet!
That's a pretty scary reaction though, vomiting that much after just one raisin. Have you been able to keep her off all the foods she's allergic to for a good week or two yet? Did the vomiting & other issues disappear?
Will she eat nut/seed butters? Or dips like guacamole or hummus (minus the tahini) or soy/coconut yogurt? Those would be good accompaniments to fruits and veggies. Maybe some whole-grain crackers too (GF if you prefer). Seaweed snacks? Fish? Homemade bars like the Lara bars (basically just nuts, dates, and dried fruit)? DS does like cereal with coconut milk so we buy that occasionally, but cereal low in sugar at least. I'd prefer oats or something instead but we don't do that because of the gluten so it seems a good compromise. He also loves dark chocolate, which we obviously minimize because of the caffeine & all, but it does have fats, vitamins & nutrients so I consider it a healthy thing in small amounts...


She has been fine since we cut out everything except when she ate that one raisin and then the other night when we ate at MILs house. I was soooo viligant about what she ate there but obviously something happened!

 

She won't eat any of those things. She actually won't even eat the bread I make...She will eat corn puffs cereal in coconut milk.

 

I tried her on a very small piece of raw dairy (since we hadn't tried the dairy in a long time) and she reacted right away. She had multiple accidents in her pants, vomiting that night, then the runs all the next day. They said she's not allergic but with the vomiting I am assuming she is!

 


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Old 02-01-2012, 08:37 AM
 
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I'm sorry she seems a bit picky, that must be tough. I'm very grateful to have a kid who will eat anything, it sure makes it much easier to deal with restrictions!!

But it's only been 2 weeks since you got the allergy test results? (Maybe I'm misunderstanding the timeline) and in those 2 weeks she's had 3 reactions? Which I'm not doubting could be caused by those foods, but also could still be coincidence, or caused by something else. I think you need to keep her totally off everything she even *might* be reacting to, and make sure she can go several weeks without any reactions. That will probably mean bringing food for her everywhere you go to ensure there's no cross-contamination, at least for a few weeks. I think you need to be 100% certain that she's not having any more reactions if she avoids those foods -- so that she's not avoiding things unnecessarily, but more importantly, to be sure you have eliminated all the things she reacts to & there's not some other underlying medical issue. I would just let her eat bananas & blueberries & corn puffs for a few weeks if that's all she'll eat, and make sure she's 100% reaction-free. THEN start worrying about what else to feed her, how to get more variety, slowly introducing foods, etc.

Also, something weird I noticed with DS, he doesn't seem to have a strong reaction to eating gluten himself (though I'm still trying to figure that out and he may be having less visible reactions) but he definitely reacts to ME eating gluten -- if I have any more than a small bite, he will vomit after nursing. So I don't know if he's actually reacting to the gluten or reacting to something my body produces in response to the gluten or something? Or just the oversupply that I get when I consume gluten? (I seem to be gluten intolerant/possibly celiac). Just wanted to throw that out there, perhaps it's not just something she's eating but something you're eating & reacting to or something (I think you said she's still nursing?) Or maybe I'm just really weird lol.

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Old 02-01-2012, 12:40 PM - Thread Starter
 
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Yeah my new plan is to always have our own food. No food from guests of dinners at families I need to be really careful here. I don't believe it's a medical issue.


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