i am trying to find insight into what could possibly be effecting my son at this time in his treatment for henoch-schonlein purpura. i am really looking for someone knowledgeable with natural remedies and can offer insight.
my son came down with the slight rash from henoch-schonlein purpura on his ankles and upper thigh on the 8th. we visited the doctor the next day and the rash started to fade and there was no progression. on the 12th, he was put on an antibiotic for a possible upper respiratory infection. on the 15th, his rash exploded. on the 19th, we took him off the antibiotics. on the 20th, we sought the help on a ND and he was put on Zinc, Vitamin A, and Histamine and put on an elimination diet (elimination possible mucus forming foods). On the 23rd, the DF Bifidus came in and we also started giving him Arnica for his inflammation of joints.
He has had noticeably swollen ankles at times, since 15th. He is unable to walk by the end of the each day. Last night, he also had painful gas. Right now, joint pain complaints are in the ankles and knees and abdominal discomfort continued this morning. The outbreaks are less and smaller, but are still continuing which concerns me. He is also not eating well and refused his remedies at lunch and bedtime, aside from the Arnica.
I am wondering about the natural remedies that my little one is taking for treating HSP : Zinc, Vitamin A, Histamine, DF Bifidus, Arnica. Could he be allergic to any of these? Could one or the combination allow for the rash to still be continuing and/or discomfort to be increasing? Did introducing Bifidus later into the regimen, allow for the rash to continue? Is the Histamine the right thing to be taking? Conventional medical sites say to take an anti-histamine and I have read the Histamine causes inflammation? Any insight is greatly appreciated.
A: Henoch Schonlein Purpura - We have been battling this terrible illness since Dec. 2011, when our then 5 yr. old daughter's feet & ankles were so swollen she couldn't stand up. She was on bedrest for a couple of weeks, hoping it would get better on her own. She was in constant pain - joints, and abdominal. In Feb. she started vomiting nonstop, then had uncontrollable diarreah, accompanied by bleeding. She was admitted to our local hospital where she had a CT scan done, that showed her small intestine was severly inflammed. The doctors started her on a high dose of steroids, then sent her via ambulance to a hospital two hours away where there are many specialists. She spent six days there, then we went home, having to continue the steroids for two more months. Her symptoms of the disease disappeared, but she had horrible side affects-gained 15 lbs, serious mood swings, large amount of night bed wetting, and completely swollen with fluid (then teasing from peers who didn't understand why she was "fat") Now she has been off for about a month, and the symptoms of the disease have returned-terrible stomach pains, swollen joints, body aches...I have been doing everything that I can think of/read about-increasing fish oil, trying to juice with tumeric root, avoiding wheat/dairy. It does not seem to make a difference. I spoke with someone who works at an herb shop who suggested guggulu, triphala, and slippery elm bark, 1/4 tsp 2x/day...I guess I need to find this/read more up on it/try it out. It has been 6 months now, and I am so ready for my little sweetheart to feel better. Please let me know of anything that you know of that may help.
i am very sorry to hear about your daughter and your difficulties with HSP. We are only into 2 1/2 months with it and have been working with our pediatrician, ND and now a kidney specialist.
our ND, who put my LO on a diet that eliminated mucus forming foods - dairy, oranges, chocolate, corn (corn chips, corn syrup) sugar, bananas, white potatoes, eggs, peanuts, grapes, wheat, and soy. she also had him on histamine, vitamin A, zinc and a probotic. For the joint pain, arnica and castor oil compressions. We have remained on this diet and decided to eliminate gluten as well based on my LO needs. My LO had a recent reoccurance of HSP after a GI bug. Now, we will start gradually bring 1 item into his diet at a time. I wish you well