I've taken her. Randall Neustaedter. he's written a bunch of books that i've actually read through ( a couple, anyways). It was too far to take her every week and her progress was minimal, so we stopped. took her to an acupuncturist closer in the area. we did 10 treatments with her, acupuncture, NAET, lasers, homeopathy and still the eczema persists. she has had some improvements, but i feel like she has had a HUGE setback since i "fell off the wagon" with my diet.
As a side, how long does dairy stay in ones system. Its been about a week since i've re-eliminated it.
I honestly feel like I'm in the same boat as you. EVERYONE has suggestions and judgements yet unless they have a kid with severe ezcema they have no idea what it's like to try everything and still have nothing work. I resisted using medicine for so long and instead tried so many natural remedies, creams, different bath routines, clothing... nothing made a difference. Then starting in May I started giving my son medication (the doctor wanted it to be applied everyday until he's three or four and it goes away on its own... my god) but honestly, even the steroids and protopic weren't helping. Two nights ago his diaper exploded and the inner crystals of the diaper stuck to his skin and made everything even worse. It got to the point that he'd scream when I put on lotion and wake up in the night scratching until he bled. It's horrible. I had no idea this condition could effect peoples lives like this.
Anyways, I just started using cloth diapers yesterday and I notice a huge improvement. My son stopped scratching as soon as the diaper went on and didn't scratch at all today. I'm still wary. We've had false hope in the past where we thought we found the "cure" only to be disappointed But honestly, I am having a hard time no getting excited. We are going to use the medication until he completely heals (and the medication is actually starting to appear effective for the first time in two months) and then see if his skin stays good with the cloth diapers and no meds once he's clear.
I'll keep you posted.
Sorry you are STILL dealing with this!
My dd's eczema trigger seems to be dryness. She only got severe once though until I figured out the trigger. For a couple months I was sure it was dairy and soy (though they seem to have been a factor in her ongoing reflux). Every time there's a dry spell in the weather, she flares. Then I start hanging the laundry to dry in her bedroom to humidify the air and it gets better. In the winter I sometimes ran a humidifier. Before moisturizing, I use a warm washcloth to wet her skin ever so slightly and then slather on really thick "Keys Tortuga" lotion, which is natural and thick/emollient enough to help seal in the moisture. I have to do this several times/day to nip it in the bud. If I do not stay completely on top of the moisturizing routine it can get nasty quick and her skin all over feels like sandpaper. Go figure.
Maybe it's a long shot, but have you considered the dryness of the air as a potential factor? If you have baseboard heaters, they are super drying....
I really would hesitate to wean (and cease a form of nutrition that is well documented to reduce the risk of allergies, ear infections, invasive pneumococcal disease, etc.). While I have no doubt what you deal with is horrible and hard to see....I not sure there's a big risk of serious illness/death due to eczema....compared to something like bacterial meningitis, pneumonia, etc. (all risks significantly reduced by CURRENT breastfeeding). If you weaned, and then your baby suddenly developed chronic ear infections, required ongoing antibiotics (which increases risk of life threatening antibiotic-resistant infections of all kinds)...you might be wishing you had stuck it out. Or what if you weaned and found out your baby had all kinds of IgE allergies and you still couldn't feed her much? Breastmilk (even if there's an allergen seeping into the milk that triggers eczema) is still a bit of a "food insurance" policy....I haven't heard of an anaphylactic reaction from breastmilk. But perhaps I'm wrong.
If your concern is allergies, then I would strongly consider getting your baby to a pediatric allergist. Even if IgE skinprick testing isn't completely accurate at your baby's age, it still gives you a starting point. It's non-invasive - my baby was happily playing with a toy while it was done! They could discuss non-IgE allergies also. My pediatrician, who has practiced a long time and who seems to have an interest in allergies, does testing for the basics only (dairy, soy, etc.) and told me that false negatives are very uncommon, but that false positives are common. (she's referred me to a pediatric allergist to explore the hives we got from avocado and watermelon). However, since you're already accustomed to elimination diets, I don't see potential false positives as being a problem for you, kwim? But if you get all negative results on a wide variety of foods, if anything, it might help you to feel a bit more at ease (though as I mentioned there's still a small chance of false negatives).
Based on the things you DO eat, I'm thinking possibly candida or oxalates/salicylates. Look at the failsafe diet to see more info on salicylates, amines and several other food chemicals. lowoxalate.info for oxalate ideas.
Are you giving babe the probiotic directly?
My daughter's trigger was corn. Even touching it. And it seemed to be everywhere (the corn, not the eczema, which was only on her inner thighs).
My son weaned himself cold turkey at 8 months. He went on neocate. Did it help him? Well, it helped put off finding what the food triggers were. But it didn't cure him. At some point you're still going to have to figure out the triggers.
Do you have pets? If it was the bird, taking the bird out of the house for a couple weeks isn't going to tell you much. The dander is still in the house. I know cat dander stays in a house for simply months. My husband still reacts to his sister's house and her cat has been dead a year. The dander is extremely hard to get rid of.
My ds has eczema, and taking him to a classical homeopath really seemed to help. I know you said you tried homeopathy, but did you see a classical homeopath with experience dealing with eczema?
My son had eczema since he was six months old. Dermatologist said eczema in most babies is due to allergies. I would reccommend geting your child allergy tested (blood) test as soon as possbile. The allergy test should help identify any possible triggers.
Have you thought about the GAPS diet? We never tried this, but it helps a lot of children with eczema. Also, have you considered a yeast overgrowth, like Candida?
We went through he** with my oldest (who's now 6) with severe eczema, head-to-toe, for a good few years. It got really bad around 15 months & didn't get 'good' (manageable?) til about 3.5-4. He still gets flare-ups, but it was so incredibly awful for so long, I can completely relate. I'm pretty sure we tried everything (at least it felt like it)- both conventional & alternative. Some major turning points for us was treating him for yeast overgrowth (this didn't 'cure' anything, but he definitely had major yeast issues going on), we tried LDA (low-dose allergy immunotherapy) that was helpful but not life-changing enough to continue with it, & Traditional Chinese Medicine (TCM), which was our major turning point. When we went to the TCM doc, his wrists/ankles were still majorily flared, cracked, rough, etc. & he had a patch on his forehead where hair wouldn't grow. He also slept terribly. Within days of his first appointment, he slept through the night & his wrists/ankles began healing. It was crazy, but so incredible to actually have something finally work! I know every TCM doc is different, just like any field, but the one we saw in Los Angeles was truly an amazing asset to his healing journey. We also still use a peppermint cream from her on any flare-ups, that makes a huge difference.
We're now dealing with allergies & eczema with my youngest (10 months) & so I've found myself back on this forum, looking for some help :) I hope you & your family are doing better & it looks like the original post was quite awhile ago, so hopefully some major healing has been happening for all of you!
My son had severe head to toe eczema at around age three. It started at birth and gradually worsened and we hit rock bottom at three. Now he's about to turn five and he's close to eczema free. He still has a few spots that flare up here and there, but if we keep them well moisturized with natural balms, he's fine.
So, first, hugs. Eczema stinks. And it's so hard, mentally and physically for everyone, not just your child. Surely your stress levels are through the roof and sleep is probably pretty hard to come by. I understand and can relate. You are not alone. You will get through this.
How long did you eliminate all the foods? Did you remove them all at the same time or at different intervals? The reason I ask is that it's possible you removed one allergen when another allergen was still being consumed. So, you wouldn't see much if any improvement. Also, it's best to remove the foods for one month. I'm sorry if you know all of this, which it sounds like you probably do, having gone through everything listed above. Not to scare you, but allergies can be to thinks like mustard, garlic, pepper - very hard to trace herbs and spices as an allergen.
You didn't mention any environmental allergies.I see the air purifier, which is great and very helpful IF you have a really good one. Otherwise junk. Do you have carpets in the house? Curtains? Huge dustmite magnets and will need to be heavily cleaned constantly or removed altogether. I know many parents that swear by the dust mite mattress covers. I personally don't have any experience with that.
Keep in mind fish oil and probiotics take a long time to work - at least three months. And make sure you're giving a dairy free, gluten free, soy free probiotic. Genestra makes the absolute best one called HMF. Most natural Drs will tell you there really isn't a better one. I've been taking it and will move my son over to it soon.
Have you tried virgin coconut oil as a moisturizer and in the bath? Have you tried wet wrapping? Yes, it's a band-aid, not treating the cause, but it can really help give you all a break from the eczema stress for a few days. http://itchylittleworld.com/2012/03/20/our-eczema-trials-wet-wrap-therapy/
Let's see, what else?
Oh, another thing that many claim healed their guts (which you probably know a leaky gut is now thought to be a major source for the increase in many illnesses based on inflammation in the body, like eczema) is the GAPS diet. Also Candida diet. Candida is essentially an overgrowth in yeast that can pass on to your child during birth and is pretty common. Triggers to an overgrowth are abundant and include antibiotics, birth control pills, etc.
One more thing, you say no soap in the baths, but you're using a soap to clean the laundry. I'd try something like soap nuts or a Smart Kleen ball instead. I've used both and they were amazing and didn't cause any skin irritation and were fantastic.
I hope this isn't information overload or boring because you've heard it all before. Just don't give up. You can figure out your child's triggers!
Please let me know if you have more questions!
I was born with eczema and it was severe. I suffered from it for many years, but when I was a teenager I found a regimen that works for me. I'm 33 years old now, I've had healthy skin since I started using my regimen. A friend of mine tried my regimen on her daughter and her skin is healthy now. Theres no cure for eczema, so I have to do my regimen everyday in order to keep my skin healthy. I hope it works for others as it does for me. http://cataleyabella.com/
I also came across an article that explains how emollients mimic the epidermal lipids, which in turn create a protective barrier on the skin The article doesn't list which emollients work to create this protective barrier, but in my experience Aquaphor has been the only one that works for me in doing this. It protects my skin and keeps it healthy and moisturized.
1. I take a shower every night.
2. If you can afford a water softener get it because it does help the skin feel moist after a shower.
3. I wash my skin with Eucerin Calming Body Wash, or Kirk's Original Coco Castile Bar Soap Fragrance Free
4. I was my hair with Head and Shoulders Smooth and Silky Shampoo. I've tried expensive brands but they irritate my scalp causing dandruff. For babies I would try the Aquaphor baby line they have hair and body wash for babies
5. When I get out of the shower I wrap my hair in a microfiber hair turban to keep my hair out of the way
6. Next I dry my body with an organic cotton towel
7. Next If I have any eczema patches/flareups then I apply Triamcinolone Acetonide Ointment USP 0.1% this medication is by prescription only. I’ve tried many different types of medications one of them being Elocon but that was too strong for me, the Triamcinolone works the best for me in getting rid of the rash fast. I rub the ointment only on the rash area. I don’t have to use this medication often because the Aquaphor helps keep my skin healthy so I don’t have to use the medication much. Make sure when you ask your dermatologist for this medication to get the Triamcinolone Acetonide Ointment USP 0.1%, because my dermatologist accidentally gave me the cream base formula once and my skin didn’t absorb the medication, it only worked for me in the ointment form.
8. Then I apply Aquaphor (miracle stuff for my skin) on my body, except my face. I start by applying it on my upper body first starting with my neck all the way down to my ankles
9. Then I get my organic cotton towel, and wipe off the Aquaphor, don’t scrub it off, just wipe it off starting from your neck down to your ankles. This is the method that works the best. It seems like the skin absorbs the moisture it needs so even though you are wiping it off, your skin will have absorbed what it needs and it creates a protective barrier on your skin. The protective barrier protects the skin from pollutants that would normally irritate the skin, it also leaves the skin feeling comfortable.
10. Also if your eyelids are dry and flaky (mine get like this due to eye allergies, I will be making a post on my regimen for that) before bedtime you can apply Aquaphor on your eyelids. I went to my Opthamologist to see what I could use on my eyelids (wanted to make sure it was something safe for the eye area) and she actually recommended Aquaphor, so I put it on my eyelids at night before bedtime when they are dry and flaky.
For babies I would try using the Aquaphor baby line, they have shampoos, body wash, and all kinds of other good stuff
Growing up my mom actually tried organic natural products, she also had me on a restricted diet, non of which help control my eczema the way Aquaphor and the medication I occasionally use has. My eczema was extremely bad, and would still be bad if I don't follow my regimen. There is still no cure for eczema but with the regimen I use my skin stays healthy, comfortable and normal. A few days ago my mom asked me to come to her work because a client of hers has a son with severe eczema. I went to my moms work and met her client and met her son and his eczema was in terrible condition. I went and bought all the products I use and gave it to the lady, she went to the doctors to get the medication that I use. That was two weeks ago, she recently came to see my mom and her son's condition has greatly improved, she said that this is the first time he has been able to sleep well through the night:) I'm going to track his progress to see how effective my regimen works for him because so far in only two weeks his skin has greatly improved. Aquaphor is nothing like vaseline, vaseline is irritating, Aquaphor isn't.
Aquaphor may not be exactly like vaseline, but it's still a petroleum product.
I will try to link to a book called the eczema cure:
I don't have time to go into everything that we had tried or how horrible the eczema was on my daughter. But, after trying everything imaginable and 6 different types of doctors. We discovered Bentonite Clay. She took a bath in it for 30 minutes every day for a week. Then went to every few days. Then once a week. The time between the clay baths stretched out longer and longer until at this point it has been 2 months since she required a clay bath.
Please consider trying it. Here is a link so you can read more. http://www.bulkherbstore.com/Bentonite-Clay-Powder?s=bentonite%20clay&id=kmAhtQr6
I didn't get a chance to read through the entire post but have you tried lye soap?
Has anybody heard about the Buteyko breathing method? I was sent this link about http://learnbuteyko.com/buteyko-for-asthma-allergies-and-other-breathing-problems/ also check out the introduction video any comments or suggestions would be appreciated - many thanks Bill