my 10yo ds has this. the ent says it is caused by allergies. not "may be caused", but is
for sure. anyway, he had the RAST at age 5, and it was all neg. the cobblestones appeared at around age 7 or 8. now a new doc had him do a RAST again, and its all neg, again. what now?
his PCP said a food elim would be a good idea, and he wanted me to get the immunolabs bloodprint for ds, but we cant afford it and the doc wont help us by talking to the ins co. i asked the PCP to help supervise the elim, and he said "i'll get out my pom poms and cheer, but i dont know what else to do. you're on your own" i have elim wheat, corn and casein b4, but i have some health issues of my own now that make everything hard for me and just dont know where to start w/ds.
we see the ent again next week, and i plan to ask him about non IgE allergy tests and food elim, but his nurse already told me they refer the hard cases to the allergy guy who couldnt help us b4. if the bumps are made by allergies, but the RAST is neg, what do the doc's do? take back their statment about allergy as the cause, and call it something else?
can anyone help me? tia!