dd has TWELVE cavities! - Mothering Forums

 
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#1 of 16 Old 10-16-2007, 12:28 AM - Thread Starter
 
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Well, hell.

DD (2 yrs. 10 mos.) had her first visit to the dentist today. I had noticed some decay at the gumline between her top front teeth and wanted to get it checked out. It looked like two cavities were forming. DH has cavities and she really takes after him, so it wasn't a huge surprise.

She was awesome. So was the hygienist. The appointment itself went really well. She got her teeth cleaned with a Dora toothbrush (BIG hit!), had her teeth counted, did the rinse and spit routine, and got her teeth x-rayed. Then The Talk. She had very little plaque and it was clear we were brushing regularly. But there are two cavities visible to the eye. And 8-10 MORE between her teeth. Her molars are fine, but there's a cavity between all of her front teeth, top and bottom. And her enamel looked very strange to the dentist and hygienist. They said it was unusually pitted and didn't seem to have formed properly.

They don't feel equipped to handle her case, so we've been referred to a specialist, a pediatric dentist with hospital privileges. :

We have a healthy pesco vegetarian diet. We eat some sweets but compared to the average American, whoa. Much healthier. DD brushes her teeth once or twice a day, every day, with adult help. We use xylitol toothpaste. We floss her teeth several times a week. We have city water, so it's fluoridated. (Not something I'm thrilled about, but it knocked the dentist's theory about lack of fluoridation out of the water, so to speak.) She has juice maybe once a day, watered down 50-50, and water, raw milk, or breastmilk the rest of the time. We do tend to mix some chocolate into the milk because the sugar helps break it down so it's easier for her to digest. Since I noticed the spots between her teeth, I've taken sticky sweets like raisins out of her diet. She's never had a bottle. And not that it matters, but she hasn't nursed at night for over a year, well before we ever noticed any cavities forming.

I've got two weeks to do some research before we see the specialist. I welcome links, articles, personal experiences . . . whatever you have to throw at me.

Here's what I know:

I was on some prescription medication for vaginosis about halfway through my pregnancy with her. I don't recall the name and I don't recall anything in the insert about dangers to fetal tooth formation, but I'm going to go back and check out my records, then do some looking.

She had a couple high fevers (103F+) about 3 weeks before her first tooth showed up. Never did figure out what caused them; she recovered quickly, but it was one of the first things the dentist asked me.

DH developed cavities fairly early on, although I don't recall him ever mentioning enamel problems. I'll have to check in with MIL. The dentist did say there might be a genetic component at work.

They don't seem to be bothering her, but man oh man, this just sucks.
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#2 of 16 Old 10-16-2007, 01:09 AM
 
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Oh mama.. I know how this feels. My son has had a few cavities since he was around 3 and its just awful. First make sure you find a VERY GOOD pediatric dentist that is not only treating your child's teeth, but the child as a whole and treats them like a person.

Sometimes we have kids that get cavities really easily no matter what we do. The only thing I would cut out is the juice. My son has not had any sicne he was 2 (for his feingold diet) but it is also one of the leading causes of tooth decay. From what I have also read the bad tooth bugs starts after only like 20 mins after eating, so lots of water and brushing as often as possible is really important.

I am so sorry once again. There should be more mamas responding with wonderful advice.
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#3 of 16 Old 10-16-2007, 09:16 AM - Thread Starter
 
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Yeah, I think we're going to cut out the juice except for special occasions, and then keep it watered down and brush right after. She usually doesn't ask for juice except in social situations, when all of her playmates are having juice. That'll be fun. . . . I have been keeping spare toothbrushes for both of them in the diaper bag, so we could brush at playgroup, even, if she has something sweet.

Oy. :
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#4 of 16 Old 10-16-2007, 12:14 PM
 
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You can always call the water "cloud juice." You could also sweeten water w/ xylitol and lemon to make lemondade, although maybe acidic lemon isn't a good idea for your dc's teeth.?. Weak herbal tea?

Anyway, I just wanted to rec' a great Yahoo group, veryyoungkidsteeth (one word). It's a couple of dozen families w/ dental issues and a couple of dental professionals. I've found them very helpful and reassuring. According to a post i just read today, the problem is the bacteria that causes decay, diet is just making it worse, but not the cause.

We've had great luck w/ MI paste and a super-small blob of Tom's of Maine fluoride for kids. I'm going to start disinfecting all our mouths again w/ cholorexadine (sp?). We had horrible decay at 1 year when he had a fabulous, completely controlled diet and now have it under control (fingers crossed!!!) at 2, when his diet is much, much, much worse!

G/L--try that group and don't beat yourself up. Cavities don't mean you're a bad parent. All our little playgroup friends drink juice, eat Skittles...and we're the one w/ cavities! :
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#5 of 16 Old 10-16-2007, 12:49 PM
 
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I just want to mention that Enamel Defects are a side effect of Celiac Disease, google the two. My ds2 has horrible cavities and brittle teeth from CD.

And you can have CD without symptoms.

I'm just throwing that out there b/c it is odd to have Enamel defects visible to a dentist, odd enough that there should be a reason. And vaginosis during pregnancy isn't it. I've taken antibotics with 3 of my pregnancies and only 1 has Enamel Defects, it was not from the sinus infection.
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#6 of 16 Old 10-16-2007, 01:45 PM - Thread Starter
 
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Interesting. I'll definitely look into that discussion group and into celiac disease. Oddly enough, I'm getting evaluated in a couple weeks for intestinal issues and that's one of the things they want try to rule out. (I was thinking IBS related to panic disorder.) Hmm. Thank you both for the leads!
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#7 of 16 Old 10-17-2007, 09:41 AM - Thread Starter
 
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Anyone know anything about amelogenesis imperfecta? I was poking around and she seems to fit the profile, right down to the discoloration. Obviously, this is just a shot in the dark, but if anyone's dealt with it and that's what we're dealing with, I'd love to hear what you did for treatment and what the outcome was, since what I'm finding online seems pretty mainstream and might not be the only option out there.
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#8 of 16 Old 10-18-2007, 01:45 AM
 
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Quote:
Originally Posted by Electra375 View Post
I just want to mention that Enamel Defects are a side effect of Celiac Disease, google the two. My ds2 has horrible cavities and brittle teeth from CD.

And you can have CD without symptoms.

I'm just throwing that out there b/c it is odd to have Enamel defects visible to a dentist, odd enough that there should be a reason. And vaginosis during pregnancy isn't it. I've taken antibotics with 3 of my pregnancies and only 1 has Enamel Defects, it was not from the sinus infection.
Wow. That is interesting. I have decay problems as well as gluten intolerance (or worse..My IgA glianden blood test was very high) I have been GF for a little over a year and I hope that combined my nutrient dense diet and supplements will help.

Love your neighbor. Say yes to vax.
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#9 of 16 Old 10-18-2007, 08:58 AM
 
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we were pretty down when dd was diagnosed with 9-12 cavities (we got three opinions!) in spite of our healthy diets, minimal junk food ...

BUT now 3 months later, the cavities are all FILLED and we appreciate all we have learned.

Quote:
They don't feel equipped to handle her case, so we've been referred to a specialist, a pediatric dentist with hospital privileges.
This is what the 2nd dentist told us. (1st dentist was wonderful and was willing to fill them, but was too expensive for us)

After consulting this board I was convinced that I needed to find another dentist whom we could afford and who COULD fill them in the office. Of course, cavities in between might be harder to fill than cavities on top (what dd had).

Stay calm, I know it is hard .... but you will get through it.

relaxed-unschooler mama to dd (2003). hoping for second one. love being a mama!!
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#10 of 16 Old 10-18-2007, 09:07 AM - Thread Starter
 
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Thank you for the words of experience. That really is reassuring to me.

A chiropractor friend of mine pointed me toward "painting" her gumline with liquid folic acid daily and adding cod liver oil to her diet, as folic acid and vitamin D can be related to enamel development and maintenance? Anyone tried that or heard of that?
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#11 of 16 Old 10-21-2007, 10:30 AM
 
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Quote:
Originally Posted by Electra375 View Post
I just want to mention that Enamel Defects are a side effect of Celiac Disease, google the two. My ds2 has horrible cavities and brittle teeth from CD.

And you can have CD without symptoms.

I'm just throwing that out there b/c it is odd to have Enamel defects visible to a dentist, odd enough that there should be a reason. And vaginosis during pregnancy isn't it. I've taken antibotics with 3 of my pregnancies and only 1 has Enamel Defects, it was not from the sinus infection.
My ds had a recent dentist visit that sounded almost identical to the OP except he has 17 cavities (in 20 teeth!) and an obvious enamel defect. He's 3.5. Thanks for the lead on CD, I'm going to check it out.
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#12 of 16 Old 10-25-2007, 01:05 AM
 
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any updates here?
We also rarely eat sweets and dd had 4 cavities, 2 of which were pretty bad. She also has discoloration as well. I just found this post while searching for posts on celiac for her and myself of all things.

Hope everythings ok!

Helping women overcome postpartum depression and birth trauma. http://www.postmommyhood.com

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#13 of 16 Old 10-26-2007, 03:03 AM
 
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enamel defects... FYI, Ectodermal Dysplasia, can have some pretty bad teeth issues, any missing or peg shaped teeth? hair thinness? fingernail/toenail issues? check out http://nfed.org/

For amelogenesis imperfecta , there's the head of the pediatric dental department at Univeristy of NC, chapel hill, Dr. J. Timothy Wright, he has that listed as one of his research interests and if I remember correctly, he had a bunch of articles out there on the subject. we went to him for consult because of the ED, he sits on the advisory board of the NFED, I really liked him, insurance won't pay for him to do the work for our little guy but we got the 'second opinion' we needed to know if we were doing the correct thing or not.
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#14 of 16 Old 10-26-2007, 11:14 PM - Thread Starter
 
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Originally Posted by lightheart View Post
enamel defects... FYI, Ectodermal Dysplasia, can have some pretty bad teeth issues, any missing or peg shaped teeth? hair thinness? fingernail/toenail issues? check out http://nfed.org/

For amelogenesis imperfecta , there's the head of the pediatric dental department at Univeristy of NC, chapel hill, Dr. J. Timothy Wright, he has that listed as one of his research interests and if I remember correctly, he had a bunch of articles out there on the subject. we went to him for consult because of the ED, he sits on the advisory board of the NFED, I really liked him, insurance won't pay for him to do the work for our little guy but we got the 'second opinion' we needed to know if we were doing the correct thing or not.
I looked into Ectodermal Dysplasia, including some pics, and she really doesn't fit the description. Her teeth, aside from the cavities and slight discoloration, are well shaped and even. She has a beautiful smile. Her nails and hair are healthy and grow quickly. She's got longer hair at her age than most of her friends and like me, she rarely breaks a nail because they're strong.

We had dinner with my parents tonight and I told them what was going on. As it turns out (and I had no idea), my father's mouth is FULL of fillings and he had cavities in all of his baby teeth, too. The dentist at the time told his mother he had "soft teeth." Which, to me, sounds like an enamel problem. He had a healthy diet and brushed his teeth regularly, but he just seemed to attract cavities. He said he'd feel sick with nerves for a week before every dentist visit, because no matter what he did, they always found 2-3 new cavities at every single visit. His father had the same problem.

My father also said he'd noticed that my MIL also has a lot of cavities, which dh confirmed. And he thinks she also had cavities very young. I know dh did, although not as many. His teeth aren't "soft," but they are cavity-prone. So I'm really leaning toward something like amelogenesis imperfecta, with dh and I both carrying recessive genes.

So I'm going to call my grandmother and my MIL this weekend and get some more details, and then talk to the specialist when we go in on Monday and see if we can figure this thing out. In the meantime, I picked up a bottle of cod liver oil and am going to see if dd will take some every day, and am looking for liquid folic acid. Can't hurt.
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#15 of 16 Old 10-27-2007, 09:57 AM
 
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Too much floride can cause soft bones, why not soft teeth?
Some areas of the country have naturally high floride levels in the water, my mother's home town is one. The levels in the water are so high, the water is not recommended for children to drink, there are other contaminates too from the flood in 2000.

It is possible to have too much floride, just like Iodized salt can be a bad thing for some people.
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#16 of 16 Old 02-12-2016, 11:18 PM
 
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Did you figure out what kind of enamel problem they had? Did it affect adult teeth too?
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