Ok...I can talk now for a minute.
I am just really overwhelmed with all this. I never expected to feel this way, but here's the general idea..
His head hasnt grown in 3 months.
His weight dropped. He did grow a little taller, but nothign else.
He apparently isnt getting enough nutrition to support his body and brain..
the gastro Doc gave us sample cans of this medical grade liquid food, that is super high calorie. 30 calories an ounce, instead of 20 calories an ounce for regular babyformula.
We have to go back to see the nutritionist on the 4th, and back to see the Dr on the 23rd.
I am just so upset...the Dr didnt like the enzymes we've been giving him, saying that some kids get liver damage from using "supplements like THAT".
well, geez doc, the prevacid is only working on the reflux..its not fixing the root of the problem.!
I dont know what we're supposed to do. Do we stop the enzymes and just do the prevacid, and just do nothing?
Our hope was that the enzymes would help the source of the problem...and we hope that the nutritionist can give us more insight on what can help us.
I cant just treat the symptom...and leave the root cause unknown and unfixed.
So right now, his technical diagnosis is that he's considered GI compromised, and he's IGg and IGa deficient.
And btw..the liquid medical food, which is used in feeding tubes, is $170 or more a case of 24 cans..little 8 oz cans.
He's supposed to drink 1 or 2 cans a day....
I hope the insurance is going to pay for this!