I'm not asking for medical advice or anything, just wanting to know if anyone has been there, done that. My sister is in the hospital with her newborn (born by C-section last night, not in distress), and the baby is turning blue when she eats. She bottle feeds--my sister had a double mastectomy, so cannot nurse--but with my breastmilk in the bottle. She seems fine and healthy the rest of the time.
The doctors are stumped. They're starting to run all the tests today. But I'm wondering if anyone else experienced this?
TIA for any responses.
P.S. I know this isn't a breastfeeding issue, per say, but I don't know where else I could post about newborn feeding issues.
Perhaps try a few different bottle nipples? Dr brown makes a preemie nipple, which should fit on a standard size nipple.
Texmati-- Knitter, Hindu, vegetarian, WOHM. Wife to superdad and mom to DS 24 months, and DD 8 months! .
Mom to two daughters born in 1997 and 2000
Me, DH, DD1 (2009), DD2 (2011), and DS (2015).
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Dysphagia with aspiration
Undiagnosed cleft palate (look specifically for a submucous cleft)
Cricopharyngeal acholasia (sp?)
Unfortunately, I've been through something similar, and all of the above were on the differential diagnosis list (the list of possible causes to be ruled out).
FWIW, my son ended up having a combination of all of those except the cricopharyngeal, and no one is sure yet about his palate (it's obviously malformed and dysfunctional, but we're not exactly sure how or how to fix it).
Get an ENT in there quickly, and a feeding therapist.
Then just pray that it's something as simple as a nipple/flow problem!!!
ASK for an EKG or a heart u/s or AT LEAST a blood oxygen test (that little clippy thing they put on your finger that has a red light).
Seriously it is the most common birth defect (heart defects) and they are almost never tested / detected before being released from the hospital.
Mama to a 3 year old awesome kid, Rowan (aka Mister Boopy) and TTC another at 43!
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Anne, Mama to Conner 2/27/04 Gabrielle 2/6/06 W/LMC-TCS, Neurogenic Bladder, AFO & KAFO wearer, Neurogenic Bowel & Delaney 5/12/08 & Beethoven & Gizmo
My dd did that sometimes for the first few weeks...I sort of just thought it was normal. Oops. She was low birth weight and was weak at first--more so than the average baby. I think eating took too much concentration so she just forgot to breath sometimes...like rubbing your belly and patting your head @ the same time. I would just re-latch her and she would go back to normal. I had to pay VERY close attention while she was nursing, though.
My son did this. For him it was due to muscle weakness from a genetic disorder.
There's really no reason why the docs should be stumped. The need to find out why it is happening. The baby definitely needs a cardio consult and an ENT consult. Possibly more testing after that.
It was very stressful for me going through swallow dysfunction with my son, however I am happy to say that as long as he is not ill, he can safely eat now.
if you don't live in an area with a major university hospital, and your docs cant come up with anything, travel to the nearest university hospital and see what they have to say. and i agree baout getting a cardiologist and an ENT on the team.
hi there i was wondering wat the diagnosis was with ur sisters baby because my son is having
that same problem when he eats and i dont know wat it can be i would gladly appreciate any
information i can get right now
by worried mother and father
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